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Donate for Donny!

$7,406 of $8,000 goal

Raised by 105 people in 1 month
Created December 1, 2018
Fundraising Team
on behalf of Donny Jones

Our dear friend Jerry was diagnosed with ALS earlier this year. His real name is Donny, but at work we call him Jerry. Yes, that’s a Parks & Recreation episode, and yes, the same thing happened in real life. We only realized his real name was Donny after four years of knowing him, and of course by then how could we start calling him a completely different name?? Typical Jerry/Donny. 

Donny is a quiet genius. No really, like...a real genius. I’d be willing to bet his IQ proves it, but he hasn’t shared it with us (because he’s also extremely humble). And genuinely, touchingly kind. It seems like every pay-day we show up to work and find donuts sitting out for everyone. It’s always from Donny, who’s just quietly working away at his desk, hiding his heart of gold.

Donny keeps loyal, lifelong friends. He loves his nephews & nieces. He’s fascinated by cosmology, is an avid Sci Fi reader, and has excellent taste in television. #TheGoodPlace

ALS (or Lou Gehrig’s disease) is a rare neurological disease that progressively causes the muscles producing voluntary movements (like chewing, walking, and talking) to shut-down.  There is no cure for ALS.  Most people with ALS die from respiratory failure, usually within 3 to 5 years from when the symptoms first appear. 

Please donate whatever you can to help Donny with his medical and living expenses.  Donny is currently living in a third floor walk-up without an elevator—he is unable to leave his apartment by himself. This money would help him move into a first floor apartment where he can come and go by himself, and where his friends are close-by to help him.   It would also help Donny be able to afford the doctors visits, treatments, medical equipment, and support that unfortunately are still very expensive, even with insurance. Funding would also go towards helping Jerry live a comfortable life (for example, he needs to have food delivered to him for every meal, because he’s unable to cook or get to the grocery store).  After the 2.9% (+30 cents) taken on every transaction, 100% of the money raised will go directly to Jerry’s bank account. 

Every little bit truly helps, and emotional support is just as important. Everyone who know’s Donny has great stories about him; we would love to hear those stories along with donations as they are submitted.  

Thank you, and Happy Holidays!

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Update 4
Posted by Jessica Barnes
15 days ago
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It has been a trying time for Donny. He was staying at the rehab facility that he's been in since December, private paying as insurance will not get back to the facility about coverage. However, as of yesterday 1/7/19, Donny is at Vanderbilt due to two big blood clots in his lung. It caused him difficulty in catching his breath and taking deep breaths, which ultimately affected his blood oxygen level. Last night, they put two catheters in his neck to pump medicine into his heart to help breakup the blood clots, as well as, giving him an IV blood thinner. As of 3:30 this morning, the catheters were removed. He is still on the IV blood thinner and in CCU. Hopefully by this evening he will be moved to a regular room.
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Update 3
Posted by Jessica Barnes
23 days ago
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Donny will be moved to another facility that will be less costly than the one he is in as it is a new year approaching and deductibles and out-of-pocket expenses start over. The cost for the new rehab facility will be paid out of pocket for at least 42 days of room and board.
As for his condition, he goes to the ALS clinic on Friday where he will be evaluated. If you text or call him and he doesn’t reply, it’s not because he’s ignoring you but because he cannot hold the phone to his ear to talk and struggles to text. His speech has also started to see the effects of the disease. The left side limbs have weakened dramatically and it is hard for him to move them.
He thanks everyone for the outpouring of support and donations, as does his family.
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Update 2
Posted by Sarah VanArsdal
1 month ago
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Thank you to everyone for your generous donations! I'm so touched by seeing all of the names on this list.

Maja, Donald, Johan, Quincy and I visited Jerry/Donny today at the rehab facility where he was moved early this morning. We hung out fora few hours, sharing donuts & laughs. Jerry's a trooper and seems to be keeping his chin up. But of course I didn't dare ask for a photo of him. ;-)
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Update 1
Posted by Jessica Barnes
1 month ago
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Donny is currently at Vanderbilt after an incident yesterday. He's fine, no injuries etc. However, they are talking about putting him in a rehab facility because they do not want him going back to his apartment. We are in dire need of finding an affordable handicap accessible apartment until family is able to get a home to accommodate his needs.
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$7,406 of $8,000 goal

Raised by 105 people in 1 month
Created December 1, 2018
Fundraising Team
on behalf of Donny Jones
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KR
$30
Kira Rutherford-Boese
9 days ago
$50
Darlene Glasgow Barnes
16 days ago
$10
Adam Hinds
23 days ago
$500
Anonymous
24 days ago
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$25
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26 days ago
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27 days ago
RB
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1 month ago
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