Donate for Donny!
Our dear friend Jerry was diagnosed with ALS earlier this year. His real name is Donny, but at work we call him Jerry. Yes, that’s a Parks & Recreation episode, and yes, the same thing happened in real life. We only realized his real name was Donny after four years of knowing him, and of course by then how could we start calling him a completely different name?? Typical Jerry/Donny.
Donny is a quiet genius. No really, like...a real genius. I’d be willing to bet his IQ proves it, but he hasn’t shared it with us (because he’s also extremely humble). And genuinely, touchingly kind. It seems like every pay-day we show up to work and find donuts sitting out for everyone. It’s always from Donny, who’s just quietly working away at his desk, hiding his heart of gold.
Donny keeps loyal, lifelong friends. He loves his nephews & nieces. He’s fascinated by cosmology, is an avid Sci Fi reader, and has excellent taste in television. #TheGoodPlace
ALS (or Lou Gehrig’s disease) is a rare neurological disease that progressively causes the muscles producing voluntary movements (like chewing, walking, and talking) to shut-down. There is no cure for ALS. Most people with ALS die from respiratory failure, usually within 3 to 5 years from when the symptoms first appear.
Please donate whatever you can to help Donny with his medical and living expenses. Donny is currently living in a third floor walk-up without an elevator—he is unable to leave his apartment by himself. This money would help him move into a first floor apartment where he can come and go by himself, and where his friends are close-by to help him. It would also help Donny be able to afford the doctors visits, treatments, medical equipment, and support that unfortunately are still very expensive, even with insurance. Funding would also go towards helping Jerry live a comfortable life (for example, he needs to have food delivered to him for every meal, because he’s unable to cook or get to the grocery store). After the 2.9% (+30 cents) taken on every transaction, 100% of the money raised will go directly to Jerry’s bank account.
Every little bit truly helps, and emotional support is just as important. Everyone who know’s Donny has great stories about him; we would love to hear those stories along with donations as they are submitted.
Thank you, and Happy Holidays!
As for his condition, he goes to the ALS clinic on Friday where he will be evaluated. If you text or call him and he doesn’t reply, it’s not because he’s ignoring you but because he cannot hold the phone to his ear to talk and struggles to text. His speech has also started to see the effects of the disease. The left side limbs have weakened dramatically and it is hard for him to move them.
He thanks everyone for the outpouring of support and donations, as does his family.
Maja, Donald, Johan, Quincy and I visited Jerry/Donny today at the rehab facility where he was moved early this morning. We hung out fora few hours, sharing donuts & laughs. Jerry's a trooper and seems to be keeping his chin up. But of course I didn't dare ask for a photo of him. ;-)