Hiking for a cure:Dysautonomia

$698 of $1,500 goal

Raised by 28 people in 24 months
Tess Nicholson
for Dysautonomia International Inc
  DURHAM, NH
Hello,
My name is Tess Nicholson. I am a proud Dysautonomia patient. Never heard of Dysautonomia? I am not surprised, but that is why I am doing this!

Dysautonomia is a group of complex diseases that affect the autonomic nervous system (ANS). The ANS regulate all of the unconscious functions our body performs each day such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control. My specific type of Dysautonomia is called Postural Orthostatic Tachycardia Syndrome (POTS) and I also suffer from a condition of unknown origin that caused my colon to fail and be removed in 2013.
I have had over 12 major surgeries in my 22 years on this earth.
2 years ago I was wheelchair bound and had constant IV therapy. I was quite literally fighting for my life.

More in-depth information about Dysautonomia Here: 
More about my story and recovery Here:

I am raising money for Dysautonomia International whose primary goal is to research the causes and cures for all types of Dysautonomia. Right now they are funding a groundbreaking research study on my type of POTS.

On Sept 13th and 14th I will be hiking 4 mountains one being the highest mountain in NH. Mt. Washington, Mt. Monroe, Mt. Franklin & Mt. Eisenhower. This hike will be a total of 10.9miles but for fundraising purposes we are rounding up ; ).

Please sponsor me by giving a donation per mile.
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Update 2
23 months ago
Thank you all for helping me raise money. It was a great hike. We hiked in late Saturday afternoon to Lake of the Clouds hut with a storm chasing us. Iced in with crazy winds we decided to relax and summit in the morning. Then next morning was still pretty cold -3 windchill on the summit of Mt. Washington,rime ice and fierce winds. The clouds finally broke for us when we descended Mt. Washington and started up Mt. Monroe but the wind got more fierce. The following peaks of Mt. Franklin and Mt. Eisenhower were all fogged in. Despite the cold and the fog it was a great trip and very tiring. Thank you for giving me the privilege of hiking in honor of your loved ones and Dysautonomia International's amazing work.

I will be announcing the winners of the prizes at the different levels after i finish my exams next week.

Again Thank you all for your support.
Coming down off summit of Mt. Washington
Hiking in honor of:
Gem pool on the hike into the hut
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Update 1
24 months ago
" We make a living by what we get, but we make a life by what we give. " -Winston Churchill
Thank you all so much for your support. Every dollar is cherished.
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Read a Previous Update
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$698 of $1,500 goal

Raised by 28 people in 24 months
Created August 25, 2014
All funds raised go directly to:
Dysautonomia International Inc
  Certified Charity
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  East Moriches, NY
Tax ID: 455437249
How it Works
  1. You make a donation. Payments are processed by FirstGiving.
  2. Checks are issued. Once a month, a check will be sent directly to the charity.
  3. Charity receives money. The listed charity receives their check directly.
MN
$110
Mark A. Naig
23 months ago

Stay FIERCE my Badass Friend! Conquer ALL your Mountains!!! $10 for each Mile!

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BM
$25
Bryant Mitchell
23 months ago

Way to go Tess!

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KD
$11
Keaton Donovan
23 months ago

Knock 'em dead Tess!

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$5
Anonymous
24 months ago
CH
$5
Courtney Hernandez
24 months ago

Get it girl! I also have POTS. And praying everyday for a cure for all of us.

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MA
$11
Melinda Alexandre
24 months ago

Good luck Tess! You go girl! So sorry you have to deal with such an illness. You are a beautiful young woman.

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A
$5
Anonymous
24 months ago
RC
$55
Rebecca Cosme
24 months ago

Good luck Tess. My prayers go out to you on your journey. Please write "Heather L. Botto" on the rock.

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KC
$33
Kathy Carrico
24 months ago

Go for the gusto. You can do it!!!

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KD
$5
kim dibona
24 months ago

Best of Luck & thank you for raising awareness!

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