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Christine Miller Cancer Fund

$5,225 of $10,000 goal

Raised by 62 people in 10 months
 The Diagnosis
     -in Clinical Terms -
Metatastic adenoscomous carcinoma

     -in layman’s terms - Stage 4 Lung Cancer that spread to the brain and adrenal glands

 - The long Version - AS I UNDERSTAND IT-  I have non-small cell lung cancer (65% of cases), that has a pathology  showing the presence of 
both scomous cells (20% of Case’s) and adenmoscomous cells(80% of Case’s). The fact I have both cell types is rare and seen than less than 1% the cases.

 - What’s Positive
    -With cancer,the common is better as it typically has better odds of treatment.  
   - Both cell types I have may have pill treatment remedies that can increase cure rates and reduce treatment side effects. These work provided the genetic mutation of my cancer cells matches the treatments ability to kill the cells.  
   -further genetic testing of biopsied tissue and then full pathology from brain tumor being removed January 29 2018 will determine the course of treatment the Oncologists will take.  


The Onset
  - On January 17, 2018, I was admitted to Valley Medical Center in San Jose, CA after I  came into Express Care voluntarily.
  -I Had been  
experiencing a cough since Oct 2017
 -I 
thought it was related to the Santa Rosa Firestorm as I was in Oakland and San Francisco driving full-time for Uber and I absolutely loved it.

 -from Oct 2017-Jan -2018, I experienced 
increasing frequency of nausea, dizziness, headaches and fatigue.  I could go back to jan 2016 with the nausea, dizziness, headaches and fatigue and ovulation as every  mid month I felt like I was in a first trimester.   I can also go back decades on the headaches  but this tumor is not that old.


-at VMC Expresscare, within 4 hours at most and in the presence of my son, I turned to my son and said “I’m probably being admitted and we need to get prepared for a diagnosis. This is not good!

-
having worked for Diasonic ultrasound in the early 1990’s for 3 or 4 years, I know what the progression from X-ray, then CT scan then MRI means. I really knew a diagnosis was coming the moment when they fi I shed the 2nd X-ray afree “iodine ran thru my veinsheaded to CT Scan and started asking about metals”) ”you see, Iodine illuminates blood flow and the illumination can show that a tumor is actively being supplied blood and glucose. That illumination can mean malignancy. The CT scan just gives a crisper pic)

-after the first MRI failed, I was now admitted to Valley Medical Center, it’s 9am at most, doctors start arriving at bedside. I have no idea who is here with me or even which doctors told me the news but I would need biopsy to be sure but they were looking at lung cancer among other things.


About Christine - 

I am 48year old single mom from San Jose Ca. I live with my 16 year old son. I  Have a 21year old daughter in college (that is possible only because of the selflessness and genuine love extended from my mother). My life story is a cliche that when best summed up would just simply be “”the good, the bad and the ugly.” It pile drives through, sex drugs and rock-n-roll and could now end with “batshit crazy.”  

On Monday, January 29 I will undergobrain surgery at valley medical center to remove a tumor that’s roughly the size of a golf ball on right temporal lobe. I also have smaller eraser sized brain tumors on the left side of my brain. Then I will undergo radiation and chemo for lung cancer.

on Thurs Feb 1 2017 at 5pm I walked out of VMC on a mission and a changed woman

 An overwhelming amount of people responded to my Facebook posts.  I appreciate all the prayers all the comments and outpouring of love and the support from people that I’ve known my whole life or even just a few months.

Right now our immediate need is to ensure that we stay in our apartment and we keep food in the fridge , that cell phones stay on, that we have transportation and that the utility bills  paid.

I am in the process of putting a letter together and reaching out to different cancer foundations for nonprofit organizations to see what kind of resources they have  to assist us through this time.

I have spent the last six months as a self-employed Uber driver however I’m not able to drive right now for the safety of other people because of what’s going on in my brain. I have a contacted the  finance company for my truck and I will be turning in my car so at this time we have no transportation. On March 1 my son will be taking a behind the wheel driving test and we should pass without flying colors at that time and thenhe will have have a drivers license and he will be in the market for a car and insurance for him.

And starting this campaign, it’s hard to ask for money but if there are people that are willing and able to help with  donations, itwould be gratefully appreciated.  Donations money will be used for transportation costs so I can get to my treatments and doctors appointments, also  for my son to be able to come and visit me while I’m in the hospital , assist with paying for dmv fees, used small practical car and wrench set, , as well as utility bills food phone bills, and any other needs that we may have as we embark on this journey on things that I can’t even begin to think about yet.

this time I will be collecting the money but if that changes due to my brain condition the person in charge of my affairs will be Michelle Kincart. If have any questions about me please reach out to her she is on Facebook. Again thank you all for your prayers, your  generosity, for your love and your support I’m very humbled.

I will be the victor



https://www.facebook.com/michele.kincart?fref=ts
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MERRY CHRISTMAS!

I made it 11 months. With a stage 4 lung cancer diagnosis that metastasized to my brain, I wasn’t sure I would have made it this far. Literally!

There’s nothing in life more surreal than facing a diagnosis like I received. The frightening part was having a minor at home, that for all intensive purposes, I am raising solo. The thought of Johnny growing up without me scared the living shit out of me.

It is strange logging passwords and putting things “in order” in the event of death. How does one prepare to die? While I said this isn’t a fight, it also wasn’t going to take me out, and knock on wood, I’m doing far better than I ever thought.

I’ve contemplated what I could do to return to work and I don’t think it’s doing any kind of work I had done prior. Interacting with the public or negotiation IT sales is way beyond my abilities at this time.

While I am physically stable with favorable blood tests and diagnostic results, I feel a definite decline in my mental clarity and cognition. My memory is shot and I find myself completely void of thought at times.

Last week, I ran into the American Cancer Society at a 49er event the Bill Wilson Center took us too. During our discussion, they were talking about early detection. I told the lady I was already diagnosed. My heart breaks seeing the lols that are returned. There’s nothing that can be said and I find myself comforting the other person because what roams through their mind about my diagnosis hasn’t been what it would have been had I had radiation and chemotherapy. I would not be alive. Or if I was, I’d be 60lbs lighter and sick.

But during that conversation, I thought about volunteering in their offices. I can do simple repetitive tasks that don’t require too intensive brain strain. I can’t do anything physical, even being on my feet is unlikely. I would like to help a small business owner or a realtor with any marketing collateral they need. I could post to social media, create marketing materials, update databases, answer phones, do customer service activities, organize a small office, etc. I may even look to Uber again but that requires a car.

Point is, I’m trying to figure out what next because I’m house bound and bored silly. I have been afraid to put myself out there as I don’t want to get sick. I’m a cold away from a whole different outcome. I’ve had very mild and moderate colds that pass quickly.

I spend most of my days doing various time wasting activities, crafts, doodling on iPad, watching QAnon decodes on YouTube and chilling when friends slide through. I applied to a different unit that’s two bedrooms and based on low income. I won’t be on a voucher program like I am now so once in, I’m in. I have a heafty deposit here which is two times the rent that we will get back after we move. That will help furnish Johns room with a new-for-us bed for John, a kitchen table and area rugs. I hope to find out this week.

I will also be mailing Christmas cards the by this time next week. Please reply to my gmail sjmookie at gmail dot com with your address so I can include you in the mailing.

We appreciate all of your prayers and well wishes. God has been good to us and we wish you a merry Christmas and a happy new year!

Any donations prior to Christmas will help us have a tree and lights! Thanks again and remember to email your current address to sjmookie at gmail dot com.
Dec 2018
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Update after PET SCAN and latest MRI results!

Hello everybody. Ive been putting this update off waiting for a PET SCAN. I had that about the
three weeks ago and it showed a little something I’ll discuss. So I had to delay the update a little longer for those results.

That said, I met with my radiation oncologist in Mid Sept just a few days after they conducted a PET SCAN.

FOR THE PET SCAN, I had to fast, avoid sugar and carbs day before (standard now) and eat/drink nothing 4 or more hours before procedure. Once at appt, they dose me with a radioactive solution, I sit still for about a half hour, then the preform the scan. It’s the same test, basically, as a CT Scan and was about 30 minutes long. They look at how the tissue lights up where glucose is being consumed, indicating tumor activity.

I was given the scores or ratings and I can’t remember what they were exactly but the score or rating is called the SUV Or Standardized Uptake Values. I am not sure of the range, but in looking online, I found people that had them in the 17-19 range. Mine were 3.1-3.7 which is still high enough to show malignancy, (above a 2 I read) but it wasn’t “impressive” to the doctors. When a doctor is impressed, or in awe, that normally is not a good thing.

The Radiation Oncologist also said she had the main radiologist look at my first and last two MRI scans to see if this small tumor in the center of the brain is getting more defined (bigger, or brighter) and it was confirmed that the tumor doesn’t appear to making a resurgence! YAY!

That’s the good news! The concerning news is the Pet Scan showed a “moth bitten” area in my right femur (PICTURE SPONGE). . I was ordered to an immediate X-ray and once orthopedics viewed the X-ray, if I needed to be seen, they would call.

Well, he called the next day and said I needed to be seen so that appointment was set for Halloween. Appt was quick and the doctor confirmed that something is seen in my femur. Apparently cancer going to the bones is common, however, if it’s slow growing, new bone could regenerate negating this bone loss, thus becoming mute. But he doesn’t know the growth speed and said to X-ray in 6 months or to call with pain.

Since I have no aches or pains, that’s a good thing. Bone pain is very painful and after they mentioned this, I started getting aches. It’s all placebo effect but so far I’m good! That happened only a day or so.

Now, if the femur is degenerating, I am at risk of breaking my leg and to avoid that they mentioned placing a rod to strengthen the femur. I don’t want that and don’t have to think about that now, but that’s out there if cancer advances to my bone. Plus radiation doc said we could radiate. Of course she did! I’d radiate my leg, it’s the brain I’m not hip to radiate. Johnny and I have talked at great length and we aren’t going to radiate my head. If it comes to that point, I pretty much do not want to be a vegetable or impaired permanently from whole brain radiation. One of the side effects is necrosis which is death of cells.

Thus far I’ve been fortunate that the Tagrisso and juicing I do has not increased the size or number of tumors.

I go back to my regular oncologist end of November and I’ll have another MRI in December. They scheduled for Christmas Eve at 40pm but that’s getting rescheduled!

On other news, Johnny is great! He’s working as busboy Saturday and Sunday at House of Genji and he’s my In home Care Provider. He is helpful, never complains, and is always giving hugs and making sure I’m ok!

I don’t get out much, more from far versus poor health. Physically, I feel tired when I get up and do things. Walked to the store last night and I do well until I hit the stairs I get winded. I’ve not had headaches and nausea is there some days and eating helps that pass.

I am working on ancestry, photo albums and just set up a bullet journal. This has already been helpful because my thoughts flea quickly and I go off task really easily. That is a concern because I slowly feel my memory leaving me. This causes great concern for my ability to work in the future when better able to and I’ve had to tell john to watch kitchen stove and oven that I don’t leave it on an a few times they weren’t turned off.

I rarely go out because I’m well aware that a cold could cause pneumonia which could lead to my death! So while it’s getting expensive, I take i cant talk right now - ill holla back when i finish what im doing Uber to appts and not the bud because the less contact with people, the healthier I will stay! Provided I have 1 appt a disability check, I’m able to meet my appointment and transportation costs.

We are good to stay here in our little apartment thru may 2019 but we are applying to a 2 bedroom low income and that meeting should happen next week. We won’t be on housing, but it looks like a descent complex by the flea market that will capture 30% of our income. In the coming week, I will begin looking for other properties and if they have open waitlists, I’ll put our name on it.

My state disability runs out in about 10 weeks so I’m filing for SSI hoping that there’s little time period between SSI and SDI stopping. My doc has me disabled through Sept 2019 so I can file now, rather than wait!

I haven’t “fund raised” because the money I did receive from donations made getting from my diagnosis and hospitalization to my SDI disability check was helpful and I felt odd about pushing for donations knowing I had income to buy organic, pay bills and pay uber to get around. Now that holidays are here, Disability coming To an end, I’m growing concerned that some bills won’t get paid so I’m grateful for any contributions made.

If you choose to help in other ways than just donating to my GoFundMe campaign, you can help in other ways such as sending an amazon gift card, Walmart gift card (I can buy groceries thru both), Safeway Gift Card, Boost Mobile ReBoost Card, gift Certificate from Farm Fresh To You. For TV we use YouTube TV and I pay for the subscription through iTunes. Uber and/or Lyft cards. Many of these can be emailed to me sjmookie@gmail.com if you needed my address, please email me.

I also would be able to help with any kind of photo album, especially digital, that needed to be put together or light graphic and website work, envelope stuffing so if you have simple mundane tasks, I’m happy to earn a contribution through work you need help with.

I’m including a recent pic of me and Jasmine at Stanford’s women’s volleyball and me and Tyler at Nitro Circus. The Nitro Circus was real ambitious for me with the bigger crowd and later venue, but I made it and he had a blast! Tyler and Jasmine are my best friends kids and for their birthdays, I decided to spend the day with each of them to give them alone time while I’m able to.

That concludes my update for now. Thank you for your prayers, love and support as I continue on with my journey with cancer! I’ll update again after next Oncology appointment as I had questions not answered about lung tumor and some bloodwork that is on the low side of normal.
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Hello everyone! I thought I would post an update since I’ve met with my Radiation Oncologist yesterday, September 17th.

Long and short is that I’m stable and my tumors are still present and more or less the same size as in May. There was an are of concern in the middle brain area called the nasal ganglia. This area affects movement, speech and cognition. This is the area that was being smashed by the tumor removed in Jan from my right front parietal lobe.

My radiation oncologist, Dr Chu, pulled up a chair and flipped thru the MRI images do I could see for myself what we are talking about when compared to google images of brain MRIs my tumors are micenuts in size as compared to some I saw softball sized.

Still, I have some dozen or so tumors all over, literally. They range from 1mm up to 1cm. They are in the parietal lobe, occipital lobe, cerebellar and the foci was being watched. They see the area where tumor was removed where I had definite symptoms of balance issues, slurring, headaches, vertigo and nausea. The tumor removed offset my brain 10cm pushing from left to right. If the basal ganglia tumor grows, it will affect me similarly to before.

I was concerned that I had new tumors as the last MRI said I did but she said it’s always been seen, it shrunk, dimmed in color and was less pronounced in prior scans. By pronounced I mean symmetrical and brighter. May shows a gray blob that was asymmetrical. August showed bright and symmetrical like January’s MRI but the size of May MRI.

She wants to look again in about 4 weeks to see what it is going. If it’s bigger, her and my regular oncologist, Dr Zhao, will discuss what to recommend. Could me med change, could wait and see, could talk radiation. Depends on meds I have to take. Tagrisso crosses blood brain barrier. Chemo does not. If I’m ever ordered to a drug that doesn’t cross, radiation would be recommended but I really fear that because of necrosis that radiation can do to a radiated brain.

I’ve been battling a MRSA infection since March. I’ve been on and off antibiotics and finally saw a dermatologist that prescribed a solution and ointment that fights this very resistant staph infection.

Emotionally I feel okay. I have good days and hard days. The more I think the more I stress so I try to focus on different things I have going on to occupy myself. I’ve been scrapbooking, painting ricks, setting up a journal to stay organized and lists for shopping and subscriptions. Trying to find what we need for cheapest price possible.

My disability will goto Jan 1st -ish then I’ll have to look to SSI. I was able to get an extension on housing to June. That gives us time to look at options and God willing beat this crap.

Talk about being tired of being sick and tired. I don’t have colds, no coughing and am generally stable feeling, but I don’t feel well. I’m fatigued, I don’t have stamina like before and I tire easily. I miss driving for Uber, seeing sunrises and people. It gets lonely but I have friends that slide through and I enjoy the deep conversation!

Here’s a few pics I thought I’d share.
MRSA on my knee
Early Onset noticing change in face
09/17/18 in my new Q Shirt
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I will keep this short and sweet

Recap - last MRI showed a normal surgical heeling where I had a 4.5cm metastatic brain tumor removed. And the other tumors that were 7mm in size showed a reduction in size and no new tumors. My next MRI is end of August.

NEW NEWS
My adrenal gland (right side where metastatic cancer was found) shows NORMAL on the CT Scan. Next scan is in THREE months. I’ll see doc afterward.

Adrenal tumor was right about 2cm and it’s normal. I Cried.

My left lung, the primary cancer, shows no new tumors and like the brain,shows a reduction in size. The intern said out loud “no way!” YES WAY!!!!

Next scan is inTHREE Months.

I just had to share that. I am holding on, still fatigued, on and off MRSA but I’m good. I’m really good right now. I’m gonna celebrate the great news and I’ll give another update that is more in depth once I come back to earth.

I love you. All of you. Thank you. U’ve all made a difference, especially Michele Kincart and my son Johnny Miller. This is for you!!!
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Raised by 62 people in 10 months
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