Chiara's Treatment Appeal

$21,920 of $40,000 goal

Raised by 165 people in 48 months
Chiara's journey since birth has been very traumatic. What began as simple treatment for her Talipes (clubfoot),  soon changed to a more serious diagnosis that is thought to impede her ability to ever walk, talk, or live a long life. Chiara has been given many labels since an MRI conducted at 5 months of age found she had a rare genetic condition called Bilateral Perisylvian Polymicrogyria, Microcephaly, Quadriparetic Cerebral Palsy, and an off shoot to this, Global Development Delay . All the labels come down to one thing – brain injury. The medical team attribute the aforementioned diagnosis to a possible stroke Chiara had in utero.

If someone was to tell us a year ago that we would give birth to a beautiful girl, yet would spend our days rehabilitating her as a full-time job, we wouldn’t of believed them.  After all, we already had a perfectly healthy 4 year old named Grace. Our family time has been replaced with therapies, specialists, tests, research and over 150 hospital visits to date. 

Chiara requires constant assistance in all daily activities: feeding, drinking, dressing and bathing. She relies on us to act as her body, as she is unable to roll, sit, stand or even walk independently. As parents we want to be able to provide her with as much opportunity as possible.

We would like to return to Philadelphia every 6 months for ongoing specialised medical treatment for Chiara, in order to help her reach her highest potential. The program with the Institute for the Achievement of Human Potential (IAHP) in Philadelphia has improved the lives of many children with conditions similar to Chiara's. Some children with severe disabilities, like Chiara's, have undertaken this program and have even gone on to study at university. We would also like to access other highly specialised healing modalities, special needs equipment and brain development opportunities.

We are hopeful about the possibilities for Chiara. Funding for the IAHP program is not available from the Australian government.

Here is her story in the local media:
Herald Sun Newspaper Article

You can follow Chiara's journey as she defy's the odd's via our visual diary blog:
 Chiara's Journey

Thank you for your amazing support.

With love and gratitude

Mauro & Natalie
+ Read More
On behalf of Mauro and I, we would like to send a huge shout out to Chiara’s Aunty Rebecca, who brought ‘Chiara’s Journey’ to the the ski hills at Mt Hotham for DRY JULY!

What a phenomenal fundraising effort reaching $3,569!!

Bec, you officially deserve to enjoy lots of celebratory drinks tonight!

A massive heartfelt thank you to every single person who supported Bec, with her cause to help Chiara. We are extremely grateful for the support and ongoing encouragement.

Here is a look at the special needs equipment we will purchase with the raised funds. Each piece of equipment is posturally supportive and clinically focuses, to assist with Chiara's mobility impairment.

We had a trial of the products below and Chiara absolutely loved each one! The Upsee allowed her to stand upright, and even kick a ball with her big sister Grace. It also allowed her to feel the movement of walking, which she enjoyed so much.

The 3 in 1 Scoot (advanced version), allowed her to scoot around on her tummy, as well as sit and wheel herself around the room in a seated position.

Lastly, the Playpack is a portable device which allows Chiara to enjoy tummy time and sitting, for places and spaces we cannot bring or fit her wheelchair pram.

All of the equipment is so easily transportable which is a huge bonus, as a lot of the equipment at home is extremely heavy not transportable. Chiara relies on us to move, lift, sit, stand and hold her entire body, having this equipment and ease will help Chiara enjoy some independence.

Thank you again for your amazing support.

You can stay connected to Chiara’s Journey and share in her achievements as she continues to defy the odd’s. We have so much more planned for her, in terms of neurological therapies and potential stem cell treatment. We are seeing so much progress - I have a feeling this little lady is going to surprise us all.

If you would like to check out the products from Firefly here are the links:

- Firefly 3 in 1 Scoot (We are getting the 'advanced' seat. ( http://www.fireflyfriends.com/scooot)

- Firefly Upsee ( http://www.fireflyfriends.com/upsee)

- Firefly Playpack ( http://www.fireflyfriends.com/playpak)

Let's be realistic; and plan for a miracle!

All our & gratitude to Bec and the amazing Mt. Hotham crew, friends, family and our loving community.

Thank you again from all of us,

With love,

The Mazzeo Family
xo
3 in 1 Scoot (Advanced Version)
Firefly by Leckey Playpack
Firefly Upsee
+ Read More
Don't forget to purchase your copy of Melbourne's 2016/17 Entertainment Guide! Each copy sold via the link below helps to support Chiara's Journey.

https://www.entertainmentbook.com.au/orderbooks/9r34896

Featuring the most popular restaurants, attractions, shopping, travel and more.

They don't call Melbourne the most liveable city for nothing - check out what is on offer! You will be amazed.
+ Read More
Thank you to all those who support us, so we can continue to provide Chiara with the level of care she requires to reach her highest potential.

Chiara's recent hip surgery went well. Although we all lost a lot of tears, sleep and energy in the process. It's all part of the journey, some months are smooth sailing, others are very challenging.

Chiara is now out of the hip-spika cast, and the next 6 months are crucial for her, in terms of keeping her hips healthy. So we will make sure we keep up to date with all the therapies she needs to stay on track.

You can also provide support by purchasing Melbourne's 2016/2017 Entertainment Guide, every copy sold helps Chiara. Click here to purchase your copy: https://www.entertainmentbook.com.au/orderbooks/9r34896

Keep up to date with the journey @ www.chiarasjourney.com

Thank you again for the continued love and support.

With all our love & gratitude,

Mauro & Natalie
+ Read More
Over the past 6 months we have seen some exciting changes in Chiara. We recently attended a three week Intensive for Laser Therapy, and have since noticed a significant decrease in the strong cerebral palsy tone.

As a result, she is now able to travel in a car-seat (without severe physical reactions). She is also able to hold her head up much better, without it dropping forward all the time. Her eye contact has become a lot more purposeful, as she is able to communicate her needs to us, through eye contact.

Chiara is less reactive to sounds, she never used to be able to cope with a sudden sound, such as: a cough, a sneeze, a burst of laughter, a dog-barking, the food-blender etc.

Chiara can now manage motion better i.e: car going over a speed-hump, or just movement in the car alone, elevator or turbulence on a plane. Where, previously she would react with an extremely exaggerated startle reflex, that was debilitating for her.

Her sleep is so much better, both at night and during the day. She is also trying to feed herself food, and using fine motor skills to hold a spoon. Overall, Chiara seems so much more present and her over-reactive nervous system, seems to of calmed down so much.

We are happy with her improvements, however we need to focus on her mobility. At this stage, Chiara is unable to roll, crawl, sit or stand.

We are on mission to try and give Chiara even chance she can, in order to gain independent movement.

We have decided to next attend a 4-week Intensive at The Anat Baniel Method centre, in San Rafael, to further consolidate her gains.

Mobility is our major focus for Chiara in the next 6 months. Here you can find information about the therapy and see the positive gains with children of special needs.

http://www.anatbanielmethod.com/children/children-with-special-needs

We would be so grateful for any support towards Chiara's ongoing treatment, as well as the adaptive equipment she needs to manage day-today-life.

You can keep up to date with her progress via:

http://chiarasjourney.com

We will be posting updates from the upcoming 4-week intensive.

Thank you for your support.

Love Chiara & family xo
+ Read More
Read a Previous Update
Jo Capicchiano
37 months ago

Such a beautiful video, Natalie. What an amazing family you have, and a wonderful support network. Wishing you all the very best on your journey ahead with beautiful Chiara xx

+ Read More

$21,920 of $40,000 goal

Raised by 165 people in 48 months
Created December 15, 2014
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
GS
$30
Georgina Sheens
16 months ago

Beautiful picture of a lovely girl, Chiara. What a journey the family is on!! The family sound like a supportive and loving bunch, what a beautiful gift for Chiara (and visa versa). Thanks Jac Jac for a bloody fun day up at the snow. Heres cheers.

AP
$50
A.a-ron Patrick
16 months ago

Good job jac jac!

SP
$150
Shaz Peel
16 months ago
1
1

Well done Shaftie! Only a couple of days to go. I'm so proud of you and thankful of your support for Chiara. Xx

HF
$277
Hotham Family
16 months ago
1
1

Jac Jac you absolute legend! Love your Hotham Family

JH
$50
Jemma Hull
16 months ago

Good work Jac Jac!

GH
$150
Geoff Hubbard
16 months ago
1
1

Big cheers to Jac Jac for giving up her July to soberness! Lots of love to the gorgeous Chiara from Denise and me xx

LP
$40
Louise Pennington
17 months ago
1
1

Yeah Jac Jac, you legend!!

SH
$1,000
Second Home
17 months ago
1
1

To a most deserving family. You have supported us since day one and now we would like to give a little bit back to you. We love you guys, you stand for so much that is good in the world and do an amazing job not just for your family but for so many others. Nat and Mauro you are inspirational people raising two beautiful souls in times of such challenge. May this gift from us bring you closer to the next goal of life enriching treatment for your little Angel Chiara and your family as a whole. With lots of love - Catherine, John and all the staff at your Second Home xox

Jo Capicchiano
37 months ago

Such a beautiful video, Natalie. What an amazing family you have, and a wonderful support network. Wishing you all the very best on your journey ahead with beautiful Chiara xx

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.