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Chemo Treatments for Jessica Rae

$5,740 of $50,000 goal

Raised by 45 people in 3 months
Created October 9, 2018
First, Thank you to everyone who has donated to help Jessica!  Your time, prayers and gift are very appreciated! 

October 24, 2018 - update:  Jessica still does not have a decision on chemo treatment.  There is no  Avastin planned for  October 26th - a second treatment missed.   
Monday, October 22, 2018, on the phone we had a representative from Caremark Pharmacy, a Nurse Navigator from Hospital of University of Pennsylvania and a Nurse Navigator from Health Advocates from the employer, Blue Shield Pre Cert specialist, Jessica and her Mom.  After 1 hour 20 minute call no decision could be made sadly.

Cancer Treatment Centers of America advised on October 23,  2018, their team won't  see Jessica now until they can evaluate her "HEALTH iNSURANCE " status on November 1st and won't be able to see her for 6 - 8 additional weeks.  Their team without seeing her or viewing records has decided they do not agree with the current treatment plan.  

Glioblastoma tumors spread quickly and are the most invasive type of brain tumor. Due to the severity of a GBM-4, we needed to act immediately to keep the tumor from spreading....WE MUST GET STARTED!

Any donation big or small is greatly appreciated!
Jessica has  missed her second dose of Avastin that was due October 12, 2018  due to specialty pharmacy and hospital rules.   We are trying so hard to find a new place to go but until then we need help to pay the costs privately.  The cost of the drug only - every 2 weeks is $2,000+ and not including infusion services.

Avastin
is the last chemo drug for Jessica. We've been told by the University of Pennsylvania to find another place to go for the drug and its infusion .  Cancer Treatment centers of America has the drug approved for her if we can get to Chicago but are trying to see if we can get the Avastin at their Pennsylvania center.   Tower Health Pottstown's Cancer Center has agreed to see her on Friday, October 19th but they do not have a neuro oncologist only general oncology.

Jessica is 37 and the squirt with her in the photos is Hannah Rose her 10 year old daughter.    

Diagnosed 4 months after her father passed away from primary, first generation, Glioblastoma in 1999 and 2 months before graduating high school, Jessica underwent surgery for her first HEREDITARY tumor in 2004 and was left paralyzed on the left side.  With physical therapy and a few weeks her leg returned followed by the left arm. 

Yes, anyone reading this BRAIN TUMORS CAN BE HEREDITARY!! DO GET YOUR CHILDREN CHECKED. 

Jessica has had several tumor surgeries and radiation treatments since 2004 at the University of Pennsylvania and Jefferson University.  January 2017 saw a change in the cells from benign to oligodendroglioma (grade 2).  The next 11 months were spent on Temodar an oral chemotherapy with the last of those months adding a second chemo drug, Lomustine.  Neither were able to stop the development of yet another tumor.

Jessica kept saying something was “different or wrong” but it wasn't showing on the MRI's so the standard chemo continued until August 3, 2018 when the tumor lit up on a follow up MRI in the matter of weeks.  A 4th craniotomy was done on August 23, 2018.  A week later pathology was Glioblastoma (grade 4).   I think even the doctors were 

Rebuilding a life time and time again, Jessica is and has been a strong young woman, owning a home now sold and living with her mother and step father, raising a child alone and working full-time during and through every ordeal.

Jessica is worthy of a chance at good care that could leave her able to be alive and being a Mom raising her daughter Hannah.  Life is never the same after brain surgery, for anyone, something is always different and we’ve been blessed to still be in this journey but we shouldn't have to lose due to arbitrary rules of hospitals and insurance companies.                                                                                     

...
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Update 4
Posted by Connie Corbin-Miller
10 days ago
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Written by Lisa Geisinger (my sister & Jessica's Aunt)

Sitting on the edge of the window looking in.
So no laughing matter, Diagnosed 4 months after her father passed away from primary, first generation, Glioblastoma in 1999 and 2 months before graduating high school, Jessica underwent surgery for her first HEREDITARY tumor in 2004. She was left paralyzed on the left side. With physical therapy and a few weeks her leg returned followed by the left arm.
I will never forget the night before that first surgery. At the time I was pregnant with my first son Brandon. Jessica laid on the bed with me rubbing my belly and said that if the baby turned out to be a girl, would I put the name “Rose” in there. I told her she needed to save that for her child one day. So we had decided that if I were to have a girl she would be named Brianna Rose and if a boy Brandon Maxwell. We all know how that turned out and I am sure Brandon is thankful that I did not call him “Brandon Rose Geisinger”.
The next day after surgery, I walked into Jessica’s room and my heart sank to my feet. This beautiful child that had grown into a beautiful women with more courage than I had in my pinky lay in her bed bruised and bandaged. I had hoped this would be her one and done tumor, sadly no.
Jessica is a fabulous person inside and out. She has always had a kind heart but with a stern hand. She loves her family, community and her Lord. She will be the first one to bring home a purse puppy and say that he will not get any bigger to give him a home (Coby) or invite in a friend to her home to help her and her children out. She has been blessed with a wonderful daughter, Hannah Rose, who is now 10 and has seen several surgeries and procedures in her short life.
But all in all, down and dirty, I have seen this beautiful person brought down to near nothing. Headaches so bad that she can’t sleep, body spasms, memory loss, weight gain and loss due to meds, emotional and physical exhaustion, seeing her need help to walk, eat, use the bathroom, and get dressed. Her bed currently in the dining room of their home so that she can be on one level. Jessica has tried to keep a smile on her face to keep her spirits high for Hannah, and to keep Hannah on the straight and narrow.
I could go on, but when the few visitors go home, the little bit of help leaves, the front door is closed and the world is different. David and Hannah have gone to bed and in the little bit of light there is only Jess and Connie left, a mother and her daughter. The process begins, meds on top of meds, changing for bed, rubbing out the left leg and arm, rearranging pillows for comfort to sleep, dealing with the headaches, and the inability to sleep other than daily cat naps.
A mother and her daughter, all alone except for each other. In the dim evening light they are holding on to whatever time they have left together. And I ask you, if you would look into your hearts and help them keep as much time as possible by donating, praying or posting this to your FB page. Every little bit helps in whatever way you can...
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Update 3
Posted by Connie Corbin-Miller
2 months ago
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November 8, 2018: Jessica's physical therapist said she feels her left arm and hand have plateaued so they will stop after next week :(

BIG prayers are still needed for her arm & hand.

Anyone that wants to come by and help her with arm/hand exercises is WELCOME. It can be as simple as playing cards, folding laundry, working with the exercise ball or doing stretches with her!

I made Jessica walk about 20 feet without her walker yesterday, it was ugly and encouraging for her! The steps are small but we have to push past what physical therapy will let her do -- to what she must do to get back to being a Mom and drive so she can go back to work. It's all in God's hands but we can't quit!

She will finish Proton Therapy next week and then we will have to see how the cancer reacts.

Please keep Jessica and Hannah in your daily prayers.

I will post a photo as soon as I can sneak one :)
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Update 2
Posted by Connie Corbin-Miller
2 months ago
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10/30/18: We have news! Jessica received her MRI reports for the brain and spine yesterday. Her spine is clear of any cancer/tumor...this is great news!

The MRI of the brain did not show any tumor but multiple "flares" which are suspect areas where cancer cells may be grouping. Cells need blood vessels to become a tumor which is why the AVASTIN is so important.

The best news! Jess will be able to get the AVASTIN at Pottstown Hospital now Tower Health System on November 12th! Thank you Nancy, Marie and Marley for making this happen for Jessica!!
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Update 1
Posted by Connie Corbin-Miller
3 months ago
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1
1
These photos were during rehabilitation after surgery to gain control over and re-train Jessica's left side which is paralyzed. The smiles between Jessica and Hannah are ones of love and encouragement.
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$5,740 of $50,000 goal

Raised by 45 people in 3 months
Created October 9, 2018
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