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CECILIA'S KIDNEYS HAVE FAILED!

$3,701 of $30,000 goal

Raised by 58 people in 8 months
Created April 10, 2018
Paws Across America Advocacy
on behalf of Cecilia Maida
PayPal address:
https://paypal.me/pools/c/842WkIVpe9

CECILIA'S KIDNEYS HAVE FAILED! WE'RE BEYOND CRITICAL! IF FUNDS AREN'T RAISED, SHE WON'T GET A KIDNEY. SHE HAS NO HUSBAND, NO KIDS, NO FAMILY, JUST US! HER LIFE HAS BEEN SOLELY DEVOTED TO PKD & SAVING ANIMALS! TIME TO SAVE HER! SHE'S JUST 57! 

Cecilia just found out her live donor has been cleared to travel from Texas to California to undergo final testing on November 16, 2018. Once completed, the steps to transplant procedure will go quickly. If the funds aren't there, she'll miss out on the transplant. Without the transplant, she won't survive! If everyone who already looked at this fundraiser had donated just $10 each, the goal would have been met! PLEASE, IT'S URGENT, DONATE & SHARE ASAP!!

Cecilia Maida was first diagnosed with Polycystic Kidney Disease (PKD) when she was 19. It's genetic, and killed her father in 2002. She was young, athletic, healthy & now afraid and devastated by drastic changes to her life. She became the poster child for PKD, traveling the USA in a motorhome with her beloved Dalmatian, Max, as a spokesperson for PKD. One of the hardest parts of this deadly diagnosis was realizing she would never have children, so her focus shifted to animals to fill this void. Her passion drove her to become founder of Paws Across America Advocacy, a now nationwide grassroots movement in all 50 states, fighting for animal rights, giving them a voice, making progress with the help of hand-chosen leaders who share her passion.

Over the years the PKD has progressed, her kidneys are now quite huge & crowding all other vital organs, compromising their ability to function as they need to in order to sustain life! Her liver is compromised now too! It has become urgent to undergo kidney transplant surgery ASAP or she won't survive. 

A lengthy search ruled out several possible donors. Donors don't have to be a perfect match, but they need to be slender, healthy and have no other possible detrimental issues which could compromise their own future health. Once someone has passed all these hurdles, a matching donor kidney is used and the other donor kidney goes to another needy recipient. Cecilia's donor has passed all but one of these tests. Kelsie, a lovely young mother who resides in Texas, is one step away from approval. The next tests must be done in San Francisco, requiring travel expenses. Distance is problematic, as she must fly to and from San Francisco (2 round trip flights, and her mother will need to come too, to take care of her post-surgery). While in the bay area they need to stay in an extended stay type hotel, her recovery may take awhile before flying is possible, and a rental car will be necessary. All this increases expenses, but no nearby donors were found.

At this stage, all options for funding this critical surgery have been explored. Being totally disabled, she now survives on Social Security and Medicare. Cecilia had to decide long ago a supplement to go with Medicare wasn't an option, as her PKD elevates monthly premiums to $700. The Affordable Care Act gave her more coverage, but isn't considered a supplement. Cecilia's on the transplant list, but without this supplement, her transplant surgery has repeatedly been declined by all qualified medical facilities. The surgery can only go forward with funds available to guaranty payment. This fundraiser goal includes out of pocket costs for the surgery and some follow-up care. The donor's travel expenses and accommodations during post-surgery recovery in San Francisco area. With all this, the fundraiser's $30,000 goal is quite modest.

Cecilia has lived a selfless, simple life. She cared for her ill mother, who was her best friend and support system, until she died in 2014. Money set aside by her mother to cover the inevitable transplant surgery had to be used to help care for her step-father, who is now critical. There is nothing left. This fundraiser does not include the unknown course of anti-rejection drugs which will be necessary post-surgery.

Now here she is, in her 50s, in dire need of surgery to save her life. She still has so much to accomplish, so much yet to give, don't let the flawed medical system be the end. She's continually given to everyone, supported all the causes she passionately believes in, given voice to the voiceless, please help her now, it's time to give back. Consider donating. No amount is too small, it all adds up. If just $10 was donated by all of our combined friends, this goal could be easily met!

PayPal address:
 
https://paypal.me/pools/c/842WkIVpe9


#KidneyTransplantFundForCecilia

Photo of Cecilia taken on a day trip to her beloved California mountains.
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This is Kelsie, the beautiful young mom who has the soul of an angel. She is the kidney donor!
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Photo of Cecilia after a relatively recent procedure, done to buy her some time. You can see how enlarged her abdomen has grown from the PKD. They've grown more since then.
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This shows how enlarged Cecilia's kidneys and liver have become. You can only image how crowded her vital organs have become! Her situation is critical!
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Cecilia Maida traveling USA as poster child for genetic polycystic kidney disease (PKD) in RV sponsored by Coachman.
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Cecilia receiving award from Polycystic Kidney Research Foundation in late 90s, for public awareness efforts to make PKD a household name. Her goal was to educate people, hoping to recognize the name of the disease responsible for wiping out entire families. It had already killed her Dad in 2002, and she will be next without this transplant.
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Cecilia and her mother, she was her mom's life-long caregiver. Cecilia still helped her in Hospice after to sudden diagnosis of pancreatic cancer 2014. Her mother was terrified of dying and leaving her ill daughter behind.
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Cecilia and her rescue dog Max in Arizona desert as they traveled USA for public awareness and a cure for genetic PKD. She was airing on TV with a transplant patient that had lost everything, and was living with children trying to keep their father's kidney by cost sharing for anti-rejection drugs. This may be Cecilia's next financial issue, but drugs required won't be known until after transplant. 
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Cecilia and Jennifer Kanady, whom helped Co-Found Paws Across America Advocacy groups in all 50-states, at their first nationwide rally when her health was stronger back in June, 2015.
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Photos below: Top photo is a picture of a normal healthy kidney, the size of a human fist. The photo below it is a PKD diseased kidney, which can become so large they can weigh up to 4 pounds each, and can be larger than footballs!  Cecilia has two diseased kidneys, each about the size of a football. She also now has an enlarged liver caused by PKD, as it can affect all the major organs, causing deadly crowding of organs as it is doing in her case.
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CT scan done of Cecilia many years ago, depicting the enormous cysts that take up her entire abdomen (which are now even  larger), crowding out her other vital organs, putting her in her current life threatening situation.
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Cecilia in hospital with complications that have escalated her kidneys towards failure in last 6 months. After this picture was taken, Cecilia's kidneys continued to fail quickly and she may have to undergo dialysis in upcoming months even if her donor is cleared. 
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Hey folks, just a quick update on Cecilia. Reluctantly, Cecilia had to agree to commencing dialysis. She's recovering from the procedure to insert the dialysis port. Unfortunately, her veins are too deep and they're going to have to do a far more invasive procedure, slicing from her shoulder clear down her arm, lift fat from her arm and enbed it below the vein, to elevate the vein to the surface. Recovery will take several weeks before dialysis can commence. In the interim her kidneys and health continue to decline. Without a kidney transplant soon, we may face losing one of our biggest animal advocates, at a time when the animals most need her leadership and fierce determination to give them a voice, and move steadfastly forward to make changes!
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Hello all. Sorry for delay in posting updates but I am not online much as my kidneys are getting worst fast and I'm ill struggling to just exist. My update is, the good news is... I am still waiting to see if my, solo, donor gets approved to be flown out to California for next step of testing.

The bad news is I am trying to dodge surgery to put the dialysis apparatus into my arm to do dialysis, per my doctors request to do so now. I am delaying hoping my donor clears fast. but, sadly, it looks like my kidneys won't cooperate & I will be forced to do surgery & start dialysis in upcoming weeks. (sigh)
I'm devastated having run from this dialysis machine for 40 years but my symptoms are so severe I must start dialysis or my body will crash, and I could die, soon. It is scary it is happening so fast..

So, while this is sad news I am still holding out hope my, solo, donor will be cleared as I have no other offers for backup, which is scary.

Hence, if you could please keep sharing my "Cecilia Needs a Kidney" (attached here or you can find on Facebook page or request from me) and please keep sharing the GoFundme as I am not online and it has gone dormant and the hospitals will want their 20% once my donor clears and I can be freed from the dialysis machine.

Most that know me know I am a "free spirit" so to be tethered to a machine has been my ultimate fear. I have considered not doing dialysis & going to be with my Mom & Max (in heaven) but then I walk in and see my (2) sweet rescue cats (Junior & Misty) and I know they need their Mom to fight to live to care for them. So, to all my animal rescue friends I admire so much, oddly, it appears my rescue cats are now "rescuing me and giving me the will to fight for my life" in my biggest struggle yet. I made a commitment when I rescued them from abuse...so I must live to care for them. They are older and I have had no success in anyone local wanting to help me care for them after I am gone so I am obligated to do dialysis to save them too...

I apologize for having to have such depressing updates and to have to ask for money and even ask for kidney donors but it all comes down to money when your health fails, which is sad but true. My Medicare covers me but the hospitals want their other 20% and they will let you die, if you can't provide it. I'm already concerned I could be rejected off of dialysis if I can't pay the 20% of hooking up to that machine every day, if I use a home unit or 3 days a week at a clinic, which must cost a fortune? I was raised to be strong and this genetic polycystic kidney disease has forced me to beg for money & organs to survive...and my heart felt thanks goes out to all of you fighting along my side.
You all mean everything to me and I thank you from bottom of my heart. I will try to post updates as to my surgery date to start dialysis, etc. and I will try to be strong... I love all of you. Please keep sharing. Godspeed to all...
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Cecilia Maida here again with an update and a heart felt thank you for those whom have donated. I am still seeking back-up donors (have to be healthy w no medical issues or overweight, etc..but do not have to be a match). Reason I am still searching is my, current, donor has completed all testing that can be done from out of State but can be rejected at any time. The transplant team tells me to keep looking until kidney is in my body...so please spread the word for me, if you can.
Good news is, so far, my current donor has not been rejected on her labs so we hope to get call it is time to fly Kelsie and her Mom out to California for further testing. This is when we will need these funds you have so graciously helped me with. My hospital is 2.5 hours from my home so I will need to get my donor airplane flights or railway tickets and add a weekly rate hotel & rental car for them to get to the hospital. My home is too far away to drive daily for to heavy traffic issues and I don't have a spare room to accommodate anyone comfortably, regardless. If God is willing and she passes further testing in California she will return to Texas and fly back out for approximately 3-weeks to 1 month to undergo life saving surgery with me. (I almost cry writing this...to know people like Kelsie and her family exist...giving me a chance to live.)
I have not come close to raising 20% of hospital charges for what Medicare won't cover and the hospital will require this as we proceed further. I, also, hope to raise enough to help Kelsie with her loss of wages while her and her Mom abandon their lives to help me...so please keep sharing.
I will keep you updated as this process continues. God bless you for helping me in my moment of need because I have been rejected by many hospitals for only having Medicare. I am hoping I raise enough to make the hospitals happy so I can live my life not on a dialysis machine.
I love all of you because you give me hope during this challenging time. And Kelsie you are my hero, literally. You are like my guardian angel...so thank you! ❤
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Cecilia Maida here wanting to thank all of you, personally, for your generous donations. It's embarrassing to need to ask for help but this medical crisis has made me see the empathy and compassion of others and it's a very beautiful thing.
My donor was doing more testing this week and if she is cleared she will be flying from Texas to California for further tests.
I'm very scared and excited to say the least. Praying my donor is cleared or I must seek more backup donors willing to test, soon. This is a long process and I'll keep you updated.
Until then thank you, again.
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$3,701 of $30,000 goal

Raised by 58 people in 8 months
Created April 10, 2018
Paws Across America Advocacy
on behalf of Cecilia Maida
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