Carter's Wright Too Treatment
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Carter's Story.......
Carter Was Born 8 Weeks Premature. He Spent 8 Weeks On SCBU At St James Hospital Leeds & 1 Week At SC
BU At Barnsley Hospital Before Been Allowed Home.
Carter Suffers With GORD/GERD (Gastro-Oesophageal Reflux Disease) And Vomits Majority Of His Feeds Up After Several Different Med
ications It Was Decided Carter Would Have An Nissan Fundoplication (Surgery To Tighten Top Of Your Stomach) And A Gastrostomy Mic-Key Button Placed But He Still Vomited And Had To Have A Jejunostomy Button Placed To Feed Him.
Last Year 2013 Carter Had To Av An MRI Scan On His Head Due To His Head Growth Continuing To Go Up And Bulging At The Front.
He Had 2 MRI's One With Contrast Which Showed Carter Had 2 Extra-Axial CSF Collections (2 Fluid Filled Pockets) At The Front Of His Head And A Low Grade Brain Tumour In The Left Cerebral Peduncle Which Is Inoperable Due To Its Position.
So Far The Low Grade Tumour As Remained Stable But We Are Still Unsure Weather Its Benign Or Not Due Not Been Able To Take Biopsy.
At The Minute Carter Is Under The Neurosurgical Team At Leeds General Infirmary And Paediatric Neurology But They Are Struggling With Carters Case With Both Gastro And Neuro Side.
So We Have Asked To Be Referred To Great Ormond Street Hospital For Their Opinion.
Their Is A Treatment Carter Can Have But Its Not Available In The Uk Only In America Prague n France. The Treatment Is Proton Beam Thearpy Which Is Similar To Radiothearpy But Its A Beam That Is Directly Aimed To The Tumour.
To Get The Treatment Completely Funded It Has To Be Diagnoised As Cancerous And Carters Cant Be Biopsied At The Minute Due To It Been Next To The Nerve That Controls His Heart, Breathing Etc But Hopefully We Will Get Some Funding Towards The Treatment Otherwise We Will Have To Fund The Treatment Ourselfs.
My Little Dude Deserves The Chance To Get Rid Of The Brain Tumour And Have A Near Normal Life Hes Been Threw So Much In Such A Short Space Of Time.
If You Could Find It In Your Heart To Help This Little Boy We Would Be So Grateful.
Thank You ........
Carter Was Born 8 Weeks Premature. He Spent 8 Weeks On SCBU At St James Hospital Leeds & 1 Week At SC
BU At Barnsley Hospital Before Been Allowed Home.
Carter Suffers With GORD/GERD (Gastro-Oesophageal Reflux Disease) And Vomits Majority Of His Feeds Up After Several Different Med
ications It Was Decided Carter Would Have An Nissan Fundoplication (Surgery To Tighten Top Of Your Stomach) And A Gastrostomy Mic-Key Button Placed But He Still Vomited And Had To Have A Jejunostomy Button Placed To Feed Him.
Last Year 2013 Carter Had To Av An MRI Scan On His Head Due To His Head Growth Continuing To Go Up And Bulging At The Front.
He Had 2 MRI's One With Contrast Which Showed Carter Had 2 Extra-Axial CSF Collections (2 Fluid Filled Pockets) At The Front Of His Head And A Low Grade Brain Tumour In The Left Cerebral Peduncle Which Is Inoperable Due To Its Position.
So Far The Low Grade Tumour As Remained Stable But We Are Still Unsure Weather Its Benign Or Not Due Not Been Able To Take Biopsy.
At The Minute Carter Is Under The Neurosurgical Team At Leeds General Infirmary And Paediatric Neurology But They Are Struggling With Carters Case With Both Gastro And Neuro Side.
So We Have Asked To Be Referred To Great Ormond Street Hospital For Their Opinion.
Their Is A Treatment Carter Can Have But Its Not Available In The Uk Only In America Prague n France. The Treatment Is Proton Beam Thearpy Which Is Similar To Radiothearpy But Its A Beam That Is Directly Aimed To The Tumour.
To Get The Treatment Completely Funded It Has To Be Diagnoised As Cancerous And Carters Cant Be Biopsied At The Minute Due To It Been Next To The Nerve That Controls His Heart, Breathing Etc But Hopefully We Will Get Some Funding Towards The Treatment Otherwise We Will Have To Fund The Treatment Ourselfs.
My Little Dude Deserves The Chance To Get Rid Of The Brain Tumour And Have A Near Normal Life Hes Been Threw So Much In Such A Short Space Of Time.
If You Could Find It In Your Heart To Help This Little Boy We Would Be So Grateful.
Thank You ........
Organizer
Carter Wright
Organizer
