Carson's Heart Journey
Thank you from the bottom of our heart and soul to everyone who has donated! You all are amazing people!!
This page has been set up to help Carson and his family get to and through Boston.
In Feb 2013 Carson's cardiologist mentioned that it was time for him to have his third open heart surgery. She said it would probably happen over the summer. In May he went in for his pre-op cath (where they go in through his vein and artery in his groin area with a catheter up to his heart to get a better picture of his hearts anatomy, and measure pressures etc). When he came out of his cath procedure we got the news that his cardiologist and surgeon here in California do not think he is a candidate for the biventricular repair surgery and instead he would wait at least a year and have a Fontan surgery done.
A bi-ventricular repair means that he would have a normal functioning heart with two separated pumping ventricles (2 lower chambers of the heart). A Fontan would mean he would be a single ventricle his whole life and it would mean a different quality of life.
Carson's mom decided that she wouldn't take no for an answer until it was a no from the best of the best. Children's Hospital Boston is not only the #1 Children's Hospital in the Nation but they are also number one in pediatric cardiology. She sent his file to Boston and within two weeks an answer was give. They do think he is a biventricular candidate and would like to do the surgery sooner rather than later.
Carson and his family need help with all the expenses associated with packing up their family and going to Boston. They plan to go sometime in October, since Carson will become a big brother in September. The surgery recovery time is estimated between 8-12 weeks so they plan to stay at least 3-4 months if not longer. We will try to keep everyone as up to date as possible.
Thank you all so much for your love support and prayers <3
If anyone who isn't already following his story that would like to he has a facebook page set up: