Carrie & Calvin Mold & Lyme Fight

My 4-year old and I are fighting Lyme disease and the treatments are not covered by insurance.   Below is our story.

My name is Carrie Koenig. I’m 39, am married to my soul mate and I have two beautiful kids.


I’ve struggled with my health for years. Everything from meningitis, to gall bladder removal to at least 6 trips to the ER after turning septic from gastroparesis but I was able to somewhat manage.


Then, in 2014 several events occurred that made me turn a corner. I got into a wreck and had a TBI, our house flooded 3x and I had my son.



I’ve been struggling pretty significantly since then with terrible brain fog, debilitating fatigue, cognitive issues like loss of balance, dizziness, vision problems, physical issues like arthritis, nerve damage, twitching muscles and horrible headaches. I’ve developed anxiety, have retreated from my friends and my life and have been increasingly depressed and disassociated with my own body, life and mind.


I’ve seen my primary care team around 4 times in the past 4 years for this and they can’t find anything wrong. I decided that while on maternity leave with my now 4.5-months-old daughter, I would get down to the bottom of it.


Since her birth, Imogene has had 3 surgeries (resolving with our traveling to Portland to see the top Dr in the country). She was born with a severe tongue tie and could not effectively nurse, drink from a bottle or breathe. With the surgeries, we had to stretch her wound on her tongue every 4-6 hours for 10-weeks straight! It hurt her terribly and caused us an unbearable amount of stress. She also had torticolis so had to do Chiropractic and cranial sacral therapy 2x/week. I have also been triple-feeding her since birth to keep my supply up.


In the middle of this storm, my son Calvin’s behavior issues exploded into what we thought was autism. He is now in therapy and was diagnosed as having sensory processing disorder and possibly, bi-polar disorder. Outside of surgery costs, out co-pays alone for their care has been $1,200/month.


Then, my health took a really bad turn. I can’t explain all of it but I feel like I’m dying. My Arthritis is so bad that I can’t sleep and am in constant pain. I feel like I’m 80 years old. I’m suffering balance, coordination, word-finding, dizziness, tremors and other terrifying neurological issues like my hands not working correctly (ie: dropping things, reaching for a cup and missing it by 6”) and major cardiac and nervous system issues with racing heart, panic attacks, chest pain, shortness of breath, air hunger and a constant state of “fight or flight”. Calvin and I both have had hives since mid-Feb and are becoming seemingly allergic to everything (had to quit gluten and dairy) and he started complaining about joint pain and muscle pain. His is so bad somedays now that we have to carry him to the car and that is when I realized that we have the same thing.


I was recently diagnosed with advanced neurological Lyme disease, likely many co-infections and possibly mold. Looking into Lyme treatment, you figure out very quickly that people spend years and tens-of-thousands of dollars taking complicated and intense either herbal or antibiotic protocols and very few get well.


I turned a corner in my belief the other day. I have been praying a lot and it came to my heart that I will get through this - I just didn’t know how. Then, I found it. A German stem cell treatment facility had opened in California. https://www.infusio.org/ programs/lyme-disease- treatment/



This Dr has a philosophy that makes sense to me. Instead of trying to treat Lyme (ticks can put upwards of 100 pathogens in your body so if you spend money on testing and trying to flight each one, you spend years very ill and go broke). He focuses on improving the cellar terrain, improving the immune system and repairing damage through stem cells. I’ve now talked to several people who have gone through the treatment and who have gotten their lives back.


I booked it for 6/18. It’s a two-week treatment in California and costs $25,000. I put it on a credit card but I just know in my bones that this is going to allow me to heal.


For Calvin, we have to be much less invasive. We will travel to Idaho to LymeStop: http://www.lymestop.com/ to have a very successful magnetic treatment in October (their next slot) which will activate Calvin’s immune system to fight the bad guys. This treatment is $3k without travel costs and subsequent home care. The at home care runs at least $1k a month for us both.


I’m not typically one to ask for help but with all forecasted costs, we’re looking at well over $50,000 (we’re already at over $30k with infusio and testing alone).


Anything you’re willing to contribute will help us greatly.

Thank you from the bottom of our hearts,

Carrie, Todd, Calvin and Imogene Koenig