Campaign for Samuel
$66,772 of $350,000 goal
Tax deductible donations for Australian taxpayers to the "Samuel Thorne Fund" with auto-generated tax deductible receipts can now be made through our website - look for the Give Now information. Give Now do NOT take a commission to manage the funds.
Springwood Road State School supporters' page with upcoming fundraising activities:
To get Samuel home, over $350 000 has been estimated as the amount of funding we are needing. This will go to covering costs for home modifications, specialized medical and therapy equipment, wheel chairs and a modified motor vehicle.
Until all basic equipment, home modifications and staffing are in place, we cannot bring him home.
Friday evening 27 November 2015: Samuel was running around with all his mates at his school disco. Before his classmates would be arriving for school on Monday 30 November 2015, Samuel was in an induced coma, fully paralysed and on a life support ventilator breathing for him.
His entire spinal cord and parts of his brain stem were being attacked by his own immune system brought on by rare condition known as Transverse Myelitis.
Life had been fully upended for Samuel and for his immediate family with so many more family and friends traumatised by how this fit, healthy and loving young boy has seemingly overnight been robbed of so much capacity.
Essentially, he cannot walk, move, use his arms/hands/fingers, speak, swallow or breath for himself.
If the ventilator tubing separates from his tracheostomy tube, he is unable to reconnect it at all by himself to maintain his ventilation.
He is quadraparesic (quadraplegic with sensation) with only functional use of his right foot/toes.
His torso and arms are paralysed including his diaphragm - rendering him reliant on a ventilator for survival.
The paralysis from his brain stem renders him unable to swallow causing oral secretions to build up in his mouth requiring constant suctioning.
Use of his vocal cords appears to be intact but because his epiglottis is also paralysed (the epiglottis covers the wind pipe during the act of swallowing), the inflatable cuff on his tracheostomy tube must remain inflated.
While this protects his respiratory system from the build up of oral secretions that he cannot swallow, it also renders his vocal cords as useless because there can be no airflow through them because of the inflated cuff.
Funding for staff to be monitoring Samuel during the day and at night when we are asleep is also needing to be sourced - and this will be for the long term.
There will also be ongoing equipment costs after Samuel is home which will serve to provide some quality of life
http://ameliathorne.wix.com/campaignforsamuel#!get_involved/c8k2 and Campaign for Samuel
Samuel's story is so similar to Josh, my son. He had a brainstem bleed the day before his 13th birthday, the cause is different but the prognosis is the same, My thoughts and prayers are with you in this difficult time. If there is any help I can give experience wise please contact me. Take care and it does get better.
Samuel still being blown away by the support out there - another big thanks!
Thank you everyone for your generosity in helping our campaign pass the $30 000 mark. No matter how large or small the donation, it all adds up. Please keep spreading the word! http://ameliathorne.wix.com/campaignforsamuel https://www.facebook.com/campaign.for.Samuel/
Please help Samuel and his family get home and get well!