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Baby Cameron Geerken

$22,108 of $50,000 goal

Raised by 216 people in 13 months
Created November 5, 2017
Baby Cameron Geerken, four months old, started having seizures Friday October 27th. His parents, David and Katie Geerken, rushed him to the emergency room at Children’s Hospital. After 12 long hours and countless tests, scans and ultrasounds, he was diagnosed with Tuberous Sclerosis. TS is a rare genetic or spontaneous gene mutation that disables either one or two genes that prevent benign tumors from growing in your major organs. Cameron has one moderate size tumor on his left frontal lobe, of his brain, which caused the two seizures he had last Friday. He also has 6 or 7 small tubers (tumors) throughout his brain. He has also been suffering from about 30 to 40 infantile spasms a day, which are basically smaller seizures. Along with the brain tumors, he has another tumor on the right ventricle of his heart and a cyst on his right kidney. He is on a anti-seizure medication for the major seizures, which thank God has been working so far. He also started another medication today to, God willing, stop the infantile spasms. As of right now, we don’t know the prognosis for Cameron. It’s going to be a lifelong, day by day effort. No one child, with this complex disease, is alike. There is an extremely wide spectrum, from mild to very severe outcomes. We obviously are praying that Cameron is on the milder form of the spectrum; but we won’t know that for a long time. Our first priority is to get the seizures and infantile spasms under control. We are writing this first and foremost for continued prayers from everyone. Second, the Geerkens’ are bringing Cameron and their girls, Avery and Addyson, to a Tuberous Sclerosis specialty clinic in Birmingham, Alabama this coming Tuesday November 7th. The entire family will be tested in case this has been a genetic mutation. We are so thankful for all the thoughts and prayers! Please, please continue to pray for baby Cam to gain some relief from these seizures and that the girls don’t have any trace of this horrible disease. Thank you so much!
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New update for Baby Cam:
Message from Katie Geerken:
We just got back from Memphis and completed a thousand diagnostic tests. It was so hard to see my baby have to go through all of this. All in all, we now definitively know the seizures are coming from the tumor in Cameron’s left frontal lobe. They have changed his medication and the plan, for now, is to wait and see if the medication will work. We will return to Memphis in about 3-4 weeks to have another EEG. This news is considered “good” in that if we have to move forward with surgery removing that tumor will hopefully stop the daily seizures. Thank you again for all the prayers and please continue to pray for my sweet baby boy!
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Message from Katie:

Please continue to keep us in your thoughts and prayers as we travel to Memphis for more understanding of Cameron’s TS diagnosis. He will undergo a ton of diagnostic testing to better confirm if the tumor on his frontal lobe is causing the seizures. I hate that my baby has to go through all of this but hopefully we will gain the information required to stop the seizures. David and I continue to be so thankful to everyone for everything. Please ask everyone to pray!
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Sweet baby Cam is 5 months old today!

Update:
After returning to Birmingham for further testing, we were very upset to find out that Cameron is still having seizures although outward signs have disappeared. Since the medication is not fully working, the doctors are now recommending surgery as the next option to remove one of the tumers, but the surgery has to be approved by a board of physicians next Wednesday. If approval is given, we will update further at that time. We continue to thank you for all the continuous prayers, love, and support we have received! Please please keep your strongest prayers coming for baby Cam!
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Message from Katie Geerken:

"We are finally leaving Birmingham after seeing a specialist in Tuberous Sclerosis for Cameron and the girls. Thank God Cameron has been responding to the medications and his seizures have decreased significantly. The medication makes him agitated and lethargic so it has been a struggle seeing my sweet baby go through all of this. Our entire family had genetic testing completed in Birmingham and we continue to constantly pray Avery and Addyson are unaffected and Cameron is on the milder side of the spectrum. Cameron had another EEG of his brain and an echo of his heart. The echo showed he actually has about 5 to 6 tumors on his heart, instead of the 1 we originally saw, but none seem to be obstructing blood flow. The EEG proved that the medication is, so far, doing its job and we will continue to pray he gains relief from the seizures. As of right now we will start Cameron with physical and occupational therapy as soon as possible to continue to give him the best care possible. We have more tests and scans next week at Children’s Hospital and will return to Birmingham in 6 weeks for another EEG. Close monitoring, seizure control and lots of love is our main goal as of now. David and I can’t express in words how thankful and grateful we are for everyone’s generosity and prayers. Thank you to our family, friends, St. Dominic family and everyone and anyone who has reached out to us, prayed for our family and supported us. Please continue to pray for my sweet baby boy and baby girls. They are all that we care about and, like any parent knows, mean the world to us. Please continue to pray!"
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$22,108 of $50,000 goal

Raised by 216 people in 13 months
Created November 5, 2017
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