Bryce Thomas Heckendorf

$18,952 of $50k goal

Raised by 230 people in 33 months
Mia Mauer Heckendorf  DODGEVILLE, WI

Bryce Thomas Heckendorf, at age 6 and a half months, was diagnosed with Krabbe Disease, a rare and incurable genetic disorder that falls under the umbrella of leukodystrohpy. The average life expectancy of a child diagnosed with the early infantile form is 13 months, though with proactive care, many children are living up to 5 years. This fund will help Bryce's parents, Kyle and Jenna, two public school teachers in Dodgeville, WI, with the financial support needed to be proactive about Bryce's care. This will allow them to work with a functional medicine doctor and travel to Pittsburgh to meet with a doctor who specializes in Krabbe. We want them to have every resource at their fingertips without concerns about the price tag or related expense.

Please visit thebstrongfund.org for more information on Bryce's story.

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Update 2
31 months ago

Such amazing support - thank you, thank you, thank you! For all the friends and family that will be able to attend the March 1st "Sky is Blue" Benefit in Lancaster, WI - we look forward to seeing you!! You can find out more on the benefit here: http://thebstrongfund.org/fundraisers/sky-is-blue-benefit/
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Update 1
32 months ago

Words cannot express the gratitude the Heckendorf and Kuenster families have to all you wonderful friends and family that have supported Bryce, Kyle and Jenna throughout this trying time. Please feel free to follow Bryce's story at www.thebstrongfund.org. Kyle, Jenna, Bryce and Jenna's mom travelled to Pittsburgh this week to meet with Krabbe specialist Dr. Maria Escolar. It has been a very informative trip and our little B-man has been a trooper! Aunt Jamie Martin (Kuenster) will keep everyone updated on Bryce's progress on thebstrongfund.com webpage.
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Read a Previous Update
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 488 total shares
Kristine Springer
32 months ago

Thank you Jamie, I see a few families on her that donated that were invited, but if it says Anonymous I can't tell. All I know is I hope that any amount donated helps in every way we can! God Bless little Bryce!

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Jamie Martin
33 months ago

@Kristine Springer: Thank you for your thoughtfulness it means more than you'll ever know.

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Kristine Springer
33 months ago

I am having my twins, Blaine and Brandon Springer's, birthday party on Sunday and have invited several kids. Instead of gifts, I've asked that anyone put forth a monetary donation to help your family out. Just wanted to let you know. God Bless and Happy New Year. We are praying for you all.

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$18,952 of $50k goal

Raised by 230 people in 33 months
Created December 18, 2013
Mia Mauer Heckendorf  
UP
$49
Underground Printing
17 months ago

Q1 2015 Royalties

UP
$191
underground Printing
18 months ago

Caleb Pressley10 2014 Royalties

VO
$25
Vicki Oboikovitz
21 months ago
RM
$200
Robert & Emily Martinez
22 months ago
LB
$25
Louis Brown
23 months ago

God bless big guy.

CL
$20
CustomInk LLC
23 months ago
CB
$50
Candi Kirschbaum Buss
24 months ago

Praying for superhero strength for you and your family Bryce

PJ
$50
Patricia Jordan
24 months ago

You are in my prayers.

LS
$100
Lee Spencer
24 months ago

May God heal Bryce and Bless you All.

KS
$100
Karen Sneed
24 months ago
Kristine Springer
32 months ago

Thank you Jamie, I see a few families on her that donated that were invited, but if it says Anonymous I can't tell. All I know is I hope that any amount donated helps in every way we can! God Bless little Bryce!

+ Read More
Jamie Martin
33 months ago

@Kristine Springer: Thank you for your thoughtfulness it means more than you'll ever know.

+ Read More
Kristine Springer
33 months ago

I am having my twins, Blaine and Brandon Springer's, birthday party on Sunday and have invited several kids. Instead of gifts, I've asked that anyone put forth a monetary donation to help your family out. Just wanted to let you know. God Bless and Happy New Year. We are praying for you all.

+ Read More
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