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Breathing For Courtney

Tax deductible
Hello everyone!

May is Cystic Fibrosis Awareness month. Cystic Fibrosis is a life threatening genetic disease where the cell membranes have trouble allowing water to pass through them. This results in a build up of heavy mucus because cells cannot adequately regulate the water they need to dilute mucus in the lungs. This heavy mucus causes chronic coughing and low oxygen intake levels. Digestive problems in the stomach in regards to the absorption of nutrients causing low weight. CF patients suffer from a weakened immune system because they body is constantly trying to compensate for this chronic problem.

I care about this disease because my cousin, whom I love like a sister, Courtney Virginia Backhaus, has Cystic Fibrosis. Between doctors appointments, medications, stays in the hospital, and the daily treatment routine Courtney is still the rock that keeps me grounded. The courage, strength, and grace in which Courtney faces the realities of her illness, in addition to the challenges of life, are truly inspiring. At birth the doctors told her Mother that Courtney "Would not make it to high school." And "...failure to thrive." (Those are real quotes)

In spite of this, Courtney will be turning 25 on November 30th, 2017. I am very proud of her. The first time that over 50% of CF patients in the United States of America were over the age of 40 was in 2016! However, with any life threatening disease, it is a race against the clock to find new medications, new treatments, and hopefully one day- a cure.

Here is where you come in:
For every share, like on this post, or comment with #CysticFibrosisAwareness or #BreathingForCourtney, I will donate $0.25 cents to the Cystic Fibrosis Foundation, the world's best non-profit organization for research and development towards a cure of CF.

Here is my personal agreement with you, dear reader. If we rase over $500 by the end of the month (May 31st 11:59p.m.) Courtney will film a video of me getting my chest, back, legs, and arms waxed for your viewing pleasure. I suspect that it will hurt.

Organizer

Matthew Karl Neuvirth
Organizer
Ypsilanti, MI
Cystic Fibrosis Foundation
 
Registered nonprofit
Donations are typically 100% tax deductible in the US.

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