Haiden's Medical Journey
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Well doing a blog has been harder to figure out since we have very little internet unless we are at the hospital, which if we are at the hospital I want to be up in the NICU with Haiden.
Update for the week...
He had a pretty good week, the Dr.s' just keep saying having a preemie is like being on a roller coaster, you will have great days and you will have not so great days. Haiden has a small heart murmur and while he was in Puerto Rico the Dr.s' decided to use the medicine that is normally for the heart closure on improving his brain stability instead, so we'll just have to wait for the flap on the side of his heart to close up on its own. But because he has this issue they have to be careful that he doesn't get to much fluid in his lungs, so he gets about 2 Tbsp. of milk every 3 hours over a 90 min period. This has been a good rate for Haiden and he has had very little issues with the tolerance. He gets the milk through a tube that is in his stomach, the nurses also give him a cotton swab of milk on his mouth/lips which he will clamp down on. He is slowly gaining weight but he is still only at 1lb. 9oz. He loves to sleep on his stomach, he hasn't gotten to sleep on his stomach lately since he had to have the respirator tube put back in to assist him with breathing.
The hardest part about all of this, is every preemie is different, what worked on one won't work the same for another. Some grow faster than others, the list just goes on and on. If any of you know me I don't like to just sit, I like to be kept busy and with him we don't get to touch him much so we just look through a glass wall at him. Haiden is such a mover, he gets touch time every 3 hours and the nurses always will say hold still he will kick and stretch while they are changing him and it makes it very hard for them to get his diaper back on.
The best part of all this is Haiden should of still been in my stomach for another 15 weeks and I get to see the steps of him growing in person. To see all the little characterics that he has gained in the short time already has been amazing. Haiden is a fighter and he will make it through all of this. He might not like needles or want to go to any checkups for a very long time after this, but he will continue to be an inspiration to all that hear his story. Thank you all for the kind thoughts we receive, its nice to know so many people are praying for our family. Chloe is in Utah with family and she is doing very well. She will ask to see Baby Haiden and we will either show her a picture or if we can she will Facetime with him. He will pick up his arm like he is waving to her and Chloe will say momma he waived at me, or she will ask if she can give him a kiss. She will tell my mom that she wants Haiden to come home when he is better so she can hold him.This little girl is amazing and if she can remain strong and be okay without both of her parents we can remain strong as well. Chase and I have been blessed with amazing kids who are true fighters. For now we will remain in Florida till Haiden gains more weight and then can be life flighted to Primary Children in SLC.
Any Help for Haiden and our family would be greatly appreciated, as we are all going to have a long road ahead of us.
Thank You
Update for the week...
He had a pretty good week, the Dr.s' just keep saying having a preemie is like being on a roller coaster, you will have great days and you will have not so great days. Haiden has a small heart murmur and while he was in Puerto Rico the Dr.s' decided to use the medicine that is normally for the heart closure on improving his brain stability instead, so we'll just have to wait for the flap on the side of his heart to close up on its own. But because he has this issue they have to be careful that he doesn't get to much fluid in his lungs, so he gets about 2 Tbsp. of milk every 3 hours over a 90 min period. This has been a good rate for Haiden and he has had very little issues with the tolerance. He gets the milk through a tube that is in his stomach, the nurses also give him a cotton swab of milk on his mouth/lips which he will clamp down on. He is slowly gaining weight but he is still only at 1lb. 9oz. He loves to sleep on his stomach, he hasn't gotten to sleep on his stomach lately since he had to have the respirator tube put back in to assist him with breathing.
The hardest part about all of this, is every preemie is different, what worked on one won't work the same for another. Some grow faster than others, the list just goes on and on. If any of you know me I don't like to just sit, I like to be kept busy and with him we don't get to touch him much so we just look through a glass wall at him. Haiden is such a mover, he gets touch time every 3 hours and the nurses always will say hold still he will kick and stretch while they are changing him and it makes it very hard for them to get his diaper back on.
The best part of all this is Haiden should of still been in my stomach for another 15 weeks and I get to see the steps of him growing in person. To see all the little characterics that he has gained in the short time already has been amazing. Haiden is a fighter and he will make it through all of this. He might not like needles or want to go to any checkups for a very long time after this, but he will continue to be an inspiration to all that hear his story. Thank you all for the kind thoughts we receive, its nice to know so many people are praying for our family. Chloe is in Utah with family and she is doing very well. She will ask to see Baby Haiden and we will either show her a picture or if we can she will Facetime with him. He will pick up his arm like he is waving to her and Chloe will say momma he waived at me, or she will ask if she can give him a kiss. She will tell my mom that she wants Haiden to come home when he is better so she can hold him.This little girl is amazing and if she can remain strong and be okay without both of her parents we can remain strong as well. Chase and I have been blessed with amazing kids who are true fighters. For now we will remain in Florida till Haiden gains more weight and then can be life flighted to Primary Children in SLC.
Any Help for Haiden and our family would be greatly appreciated, as we are all going to have a long road ahead of us.
Thank You
Organizer
Emily Dimick Morgan
Organizer
Ogden, UT
