In 2016, Cody and Ethan had a healthy baby girl, Adelynn who is developmentally on target and the joy of their life. Cody did not experience any complications or issues during her pregnancy with Adelynn. Cody and Ethan became optimistic about their second daughter, and tried for their third child. They later found that they were successfully pregnant. Being closely monitored, everything seemed great until 19 weeks along. That is when they found that Cody was carrying another baby girl, Avery; however, she had Hydrops Fetalis like Ellyana did. Again, they underwent more genetic testing since the doctors have never seen it happen twice. The genetic results concluded that they each carry a gene that only 6 families worldwide have. The genetic testing that was completed was not covered by insurance. They also learned that this gene that creates hereditary lymphedema type III that produces the hydrops fetalis. Doctors were amazed at their genetic make-up since they had never seen such. After the genetic testing, Cody and Ethan were told Avery has Turner Syndrome that occurs randomly in cell divison.
Once doctors discovered Avery had hydrops, Cody and Ethan have had to make weekly appointments in Chicago. At 31 weeks, Cody will be delivering Avery due to her decline in health again. Because Avery is the second child with hydrops and doctors have never seen their case, Doctors are wanting to complete further testing on Ellyana and Adelynn in hopes for more insight for Cody and Ethan.
As a community, I would love to see us come together to financially help Cody and Ethan out as their expenses keep increases. Cody and Ethan expenses include hospital stay, medical bills, funeral costs and transportation fees for Avery, weekly trips to Chicago, genetic testing, and a bill still left over from Ellyana's testing phases in 2014. There is a 25% chance of reoccurrence for their future children unless they look into IVF, which is highly recommended. As IVF is quite costly, I would like to also ask that as a community we can try to help make that happen for them. Giving them one last chance of having another healthy baby.
Below I have listed the blog that Cody wrote during her first experience with Ellyana and a link to spread awareness of Hydrops Fetalis.