Berillo's Fundraiser

$15,148 of $20,000 goal

Raised by 189 people in 15 months
Jess Lane
on behalf of Cody Berillo
 MACHESNEY PARK, IL
Cody and Ethan are a loving couple who are always the first ones to be there for anyone in a time of need.  I am hoping that as a community, we can come together to help two of our dearest friends.  This has been a long and devastating road for their family and friends the last couple of years.  It began during Cody’s first pregnancy. At 22 weeks they received the devastating news that their first daughter had a fatal diagnosis. They then had to deliver at 29 weeks due to Cody's failing health. That was when Ellyana unfortunately passed away. Being first time parents, they wanted all the information about Hydrops Fetalis that they could find. This is where two or more parts of the baby's body retains fluid.  In most cases, this is fatal. During their journey with Ellyana they did genetic testing and found no results. Because of this rare symptom, Cody's health began to become affected as well. She developed something called "Mirror Syndrome" during her pregnancy. This is where her symptoms began to "mirror" Ellyana's and results in Preeclampsia and organ failure. They did everything they could before Ellyana was born to save her, including a few blood transfusions through Cody. After they delivered and Ellyana had passed away, they never found a cause for the Hydrops. They were also told that since this is so incredibly rare, it would not happen again (less than 1% chance).

In 2016, Cody and Ethan had a healthy baby girl, Adelynn who is developmentally on target and the joy of their life.  Cody did not experience any complications or issues during her pregnancy with Adelynn.  Cody and Ethan became optimistic about their second daughter, and tried for their third child. They later found that they were successfully pregnant. Being closely monitored, everything seemed great until 19 weeks along. That is when they found that Cody was carrying another baby girl, Avery; however, she had Hydrops Fetalis like Ellyana did. Again, they underwent more genetic testing since the doctors have never seen it happen twice. The genetic results concluded that they each carry a gene that only 6 families worldwide have. The genetic testing that was completed was not covered by insurance. They also learned that this gene that creates hereditary lymphedema type III that produces the hydrops fetalis.  Doctors were amazed at their genetic make-up since they had never seen such.  After the genetic testing, Cody and Ethan were told Avery has Turner Syndrome that occurs randomly in cell divison. 

Once doctors discovered Avery had hydrops, Cody and Ethan have had to make weekly appointments in Chicago.  At 31 weeks, Cody will be delivering Avery due to her decline in health again.  Because Avery is the second child with hydrops and doctors have never seen their case, Doctors are wanting to complete further testing on Ellyana and Adelynn in hopes for more insight for Cody and Ethan. 

As a community, I would love to see us come together to financially help Cody and Ethan out as their expenses keep increases.  Cody and Ethan expenses include hospital stay, medical bills, funeral costs and transportation fees for Avery, weekly trips to Chicago, genetic testing, and a bill still left over from Ellyana's testing phases in 2014.  There is a 25% chance of reoccurrence for their future children unless they look into IVF, which is highly recommended.  As IVF is quite costly, I would like to also ask that as a community we can try to help make that happen for them. Giving them one last chance of having another healthy baby. 

Below I have listed the blog that Cody wrote during her first experience with Ellyana and a link to spread awareness of Hydrops Fetalis.   

     

https://ethanandcodyberillo.wordpress.com/

http://perinatology.com/conditions/Hydrops.htm
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Let's help share and share again! Cody and Ethan are almost to their goal! Let's help them reach it by the end of this weekend!
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Hey everyone, I had a request to share this again. The post is public so anyone is able to share it. If you could out of the kindness of your heart continue to share it we would be so happy. We have an amazing community behind us and wonderful support team! Thank you to all the well wishes and prayers. Ethan and I are now home starting to heal
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Hi all, I know a lot of you have been awaiting an update. Ethan and I came into the hospital this morning and delivered Avery Grace via C-section at 9:44am. She came out so very strong and even crying. After some methods performed by the NICU they realized they wouldn't be able to save her in the end. After deciding to take out her breathing tube, ethan and I got to spend three wonderful hours holding and loving Avery. It is with an extremely heavy heart that she passed away peacefully at 12:40. Thank you everyone for the wonderful prayers and support. We cannot believe the generosity of our friends and community, it is truly unreal. If you can, please share our page. Thank you all
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Ethan and I would like to thank everyone who donated to our cause and who continue to share our story. Times are very tough right now, but we try to remain strong. Please feel free to continue sharing our story! Also, thoughts and prayers would be greatly appreciated especially since we deliver tomorrow
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Read a Previous Update
Renee' Arseneau Lovgren
15 months ago

I will keep you all in my prayers!❤

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Val Williams
15 months ago

We will be praying for you all and Avery tomorrow as you go through such a difficult day Hugs

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$15,148 of $20,000 goal

Raised by 189 people in 15 months
Created February 26, 2017
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LP
$100
Laura Pils
15 months ago

I'm friends with your mom, Cheryl through PR. I am so terribly sorry for your loss.

RW
$100
Royal & Rose Ann White
15 months ago

sending prayers

JL
$25
Jonah Wilson l
15 months ago

Praying for your family Jonah Wilson and Joey Dean

Renee' Arseneau Lovgren
15 months ago

I will keep you all in my prayers!❤

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Val Williams
15 months ago

We will be praying for you all and Avery tomorrow as you go through such a difficult day Hugs

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