Benefit For Colton

This is what's going on with our sweet "Bubbies" Colton.

This GoFundMe has been created to help with all the medical expenses and additional costs being incurred due to Colton's illness and upcoming surgery.

July 11, 2019 UPDATE
Just left the neurologist to review his EEG. Breaks our heart to see how many times are baby is having seizures. And so many we can’t see that are lasting longer than 5 minutes. She showed us that the left side of the brain is almost always in stress. It’s when the left side builds up so much it affects the entire brain and those are the seizures we see. What we thought was going to be a 24-48 hour hospital visit has turned into 5 day. So, Colton and I are scheduled to go into the hospital on July 22nd - 26th for the in patient EEG and MEG scan. After those results will determine when surgery will be.

July 9th
At today’s appointment we spoke with another neurologist who for certain stated that Colton will be having surgery and he seems confident and positive that this will cure the seizures.He stated that the location of the surgery doesn’t concern him for affecting future cognitive development. He wants it done sooner rather than later because up to this point he hasn’t suffered any damage from the seizures but if it continues without treatment he will. As far as all the ins and out if the surgery that is still up in the air bc the surgeon that specializes in epileptic surgery was not there. Next step: -Meet with another neurologist to schedule another inpatient 24-48 hour eeg (a more in depth one to help localize the coordinates of the activity) -once we get the results from that we will schedule the appt with the actual surgeon that will be preforming the surgery and get it scheduled...looking at about a 4-5 hour surgery with a possible 3-5 day in hospital recovery.

June 29 at 9:39 PM 
Thank you so much to everyone who has reached out with prayers. God is amazing! Since so many have asked for an update here you go....

We had an amazing appointment yesterday With a neurologist that actually LISTENED. So many questions were answered and only a few hundred left. We have a long road ahead. But we found an amazing doctor that we feel so confident in.

She told us there is also a cyst on the back left side of his brain that’s 36mm...she is very concerned about it putting pressure on the cerebellar part of his brain. (Yes, we are pissed no one told us about this) This could be causing his balance issues, and the nausea/vomiting. So we went from one issue to now two. 1) the focal dysplasia, on the left side, and 2) the cyst. We don’t know if one is causing more issues or a combination. The last thing she noticed was that his left leg is a little longer than his right. So during his next MRI she will include the spine to check and see if there is a cyst on his spine as well.

Here are our next steps;

1) increase he seizure medication ✅

2) do a 72 hour at home  EEG- We started this today(It’s been a lot! He has to carry a backpack  that has the machine inside at all times. He also has to be watched by a camera . So if he stays in one room for longer than 10 minutes we have to move it. It’s been moved A LOT! There is a button on the machine we hit every time we see something abnormal so the doc can go back and focus on those areas. We have already hit it 3 times )

3) Meet with a Nero-surgeon - we go July 9th

This morning was really hard for Thomas and I so we continue to ask for you to please keep praying . And know that whenever you need it we will be there for you too.

June 27 at 10:36 PM
The past few weeks have been nothing short of one of the longest roller coaster rides for Thomas and I. We’ve been struggling with things internally trying to decide if we wanted to put this out there. This is not for attention or to have people feel pity for us. We are just in search for answers, prayers, and maybe even connecting with someone that’s going through or has gone through the same thing.

The Friday of Father’s Day weekend, June 14th, we noticed Colton was not acting himself so we took him to ER. We were told he was having seizures and we were escorted by ambulance to downtown Memorial Hermann Hospital where we stayed the entire weekend.

That weekend he had a CT, an EEG, and a MRI. The MRI showed a spot on his brain that did not fully develop. They diagnosed him with focal cortical dysplasia, a form of epilepsy, and put him on an anti-seizure medicine. Since we left the hospital he’s had two more seizures, that we know of. We are going to see a neurologist tomorrow to hopefully get some answers and another one in July. All we ask for at this time are prayers that God helps us find what’s triggering the seizures.

This is a video I put together from that weekend and a few other pics of our baby boy!