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Bendy But not Broken

$850 of $5,000 goal

Raised by 19 people in 4 months
As many of you know, my wife, Kristy, was diagnosed with Ehlers Danlos Syndrome almost 20 years ago. EDS affects the connective tissue throughout her body. In her type - Hypermobility - the result is frequent and chronic dislocations and subluxations of all her joints. Over time, the wear and tear on the joints, bones, ligaments and tendons is cumulative. Kristy has had four knee surgeries, 2 surgeries to rebuild both ankles and two surgeries to rebuild both hips. She also makes countless trips to various specialists, undergoes frequent testing, receives ongoing Physical Therapy and requires a variety of medication and adaptive equipment. During her disability determination last year, her physician described her condition as "in the advanced stages" due to the amount and severity of damage caused.

Kristy worked for 16+ years in disabilities services, but sadly had to leave the work she loved last year and go on disability. I was in the process of finishing a second Bachelor's Degree, this one in art history, and had been accepted into the graduate studies program. Our long term goal is for my education to result in a professionally fulfilling career which also allows for financial security. Currently, I attend graduate school full-time, have a part-time internship and work a part-time seasonal job which works flexibly with my academic schedule. Unfortunately, this has resulted in our primary source of income being Kristy's disability payments which cover only our rent and basic bills. The medical costs we have accrued in the treatment of EDS have left us thousands of dollars in debt.  

We are appealing to you, our family, friends and colleagues as well as the greater community to consider a donation to help alleviate this burden and allow us to save funds for Kristy's future medical needs. 28250788_15205323500_r.jpegGod bless you and thank you for your consideration of this appeal.

Please feel free to share this campaign with others you may know who have a servant heart for aiding people with chronic illness and disabilities such as Kristy. 

From Kristy: I am an EDS warrior, and I fight like a girl!
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May is Ehlers Danlos Syndrome Awareness Month! Although the medical and physical aspects of this syndrome are most often highlighted, what is focused on less is the financial impact of having a complex, chronic illness. Rob and I are so grateful for the donors who raised $800 for us. Unfortunately, the reality is that thousands of dollars in medical debt still remain. I ask that you would prayerfully consider making a financial donation and share this link with your friends and family to grow the number of people who are aware of EDS. Thank you!
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Things have been quiet on this page lately, as it appears that those who were willing and able to donate have already done so. However, I wanted to acknowledge a very special donor who recently made not only a financial donation, but one of his time and talent as well fulfilling a "bucket list" item for me. I challenge you today to share my link with at least one other person. Help me raise awareness of this rare disease one person at a time!

Thanks, Kristy
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I received a card in the mail today with an anonymous donation of $100. Rob and I feel blessed by this unexpected gift, and are thankful to the donor. I plan to use this donation to make a larger payment to one of my medical providers. This will cover the cost of two months on this particular payment plan. Thank you again to our generous donor!
My parents gave me a ticket to see Les Miserables for my birthday. I am pictured with actor, Robert Ariza, who played Marius. I had an amazing time!
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Rob & I wanted to acknowledge a generous donation of $50 that we received "offline". This donation was blessed with God's timing as I had an unexpected co-pay at a medical appointment the next day. I would not have been able to get the medical services I needed if not for that donation. Every donation counts! Thank you!
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$850 of $5,000 goal

Raised by 19 people in 4 months
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KK
$50
Karl & Helen Kieckbusch
2 months ago
$100
Anonymous
3 months ago
$40
Anonymous
3 months ago
AA
$100
Anonymoys Anonymous
3 months ago (Offline Donation)
AA
$50
Anonymous Anonymous
3 months ago (Offline Donation)
BL
$25
B Love
4 months ago
DC
$50
Derek Counts
4 months ago
KW
$50
Katharine Wells
4 months ago
$20
Anonymous
4 months ago
$15
Ina Kielley
4 months ago
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