Baby Leo Medical Fund
Donation protected
Hello Friends & Family of Anne (Vanek) & Denis St. Martin,
As many of know, Anne & Denis have a 2-year old named Joe and a 4 month old named Leo. Their world was turned upside down when baby Leo was diagnosed with a rare disease called Pompe. This is a rare genetic disease in which there is a deficiency of a certain enzyme that breaks down glycogen to form glucose. Glucose is necessary for muscle growth, especially in a person’s heart and skeletal muscles. This is what is happening with Leo. He has muscle weakness and an enlarged heart and is fighting for his life. There is an enzyme treatment therapy that might help him and will be started on Friday, September 23rd. He was given a feeding tube and a port in his heart to receive the enzyme on Wednesday, September 21. He will be in the Hospital for at least a month. Anne and Denis have taken extended time-off work and will continue, so they can spend as much time as they can as a family. The stress of medical bills is something they should not have to worry about now. The goal here is to lessen this burden on them and to let them know that we care and will do whatever we can to help them out.
We are hoping to spread the word and hoping that people will donate as they are able to help out the financial strain on Anne and Denis. Any amount will help. Please forward and use the “share” button as you see fit. All of us will be forever grateful for all donations and prayers to this young family.
As many of know, Anne & Denis have a 2-year old named Joe and a 4 month old named Leo. Their world was turned upside down when baby Leo was diagnosed with a rare disease called Pompe. This is a rare genetic disease in which there is a deficiency of a certain enzyme that breaks down glycogen to form glucose. Glucose is necessary for muscle growth, especially in a person’s heart and skeletal muscles. This is what is happening with Leo. He has muscle weakness and an enlarged heart and is fighting for his life. There is an enzyme treatment therapy that might help him and will be started on Friday, September 23rd. He was given a feeding tube and a port in his heart to receive the enzyme on Wednesday, September 21. He will be in the Hospital for at least a month. Anne and Denis have taken extended time-off work and will continue, so they can spend as much time as they can as a family. The stress of medical bills is something they should not have to worry about now. The goal here is to lessen this burden on them and to let them know that we care and will do whatever we can to help them out.
We are hoping to spread the word and hoping that people will donate as they are able to help out the financial strain on Anne and Denis. Any amount will help. Please forward and use the “share” button as you see fit. All of us will be forever grateful for all donations and prayers to this young family.
Organizer and beneficiary
Katie Strassener Holmen
Organizer
Eagan, MN
Anne St.Martin
Beneficiary
