Baby Maya - SMA Type 1
Donation protected
Baby Maya was born on March 4, 2018. On August 7, 2018, she was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 by the Neuromuscular Department at Virginia Commonwealth University hospital.
SMA is a rare genetic disorder that affects voluntary muscle movement. For babies this mostly means BREATHING and SWALLOWING. There are 4 levels of SMA. The lower the level, the more severe the effects.
Baby May is a happy baby, and SHE SMILES A LOT!! But because of SMA she can't push herself up, roll over, or control her head movements like other babies at this age.
Her family is racing against the clock to find and start a treatment plan that will preserve her ability to eat and drink without a feeding tube.
Treatment is very expensive, and her family will face many unknowns and endure many hardships.
Please help support Baby Maya and her family as they begin their treatment journey.
See the links below to get more information about SMA:
Cure SMA
Spinal Muscular Atrophy
SMA is a rare genetic disorder that affects voluntary muscle movement. For babies this mostly means BREATHING and SWALLOWING. There are 4 levels of SMA. The lower the level, the more severe the effects.
Baby May is a happy baby, and SHE SMILES A LOT!! But because of SMA she can't push herself up, roll over, or control her head movements like other babies at this age.
Her family is racing against the clock to find and start a treatment plan that will preserve her ability to eat and drink without a feeding tube.
Treatment is very expensive, and her family will face many unknowns and endure many hardships.
Please help support Baby Maya and her family as they begin their treatment journey.
See the links below to get more information about SMA:
Cure SMA
Spinal Muscular Atrophy
Organizer and beneficiary
Deanna Cousino
Organizer
Tuckahoe, VA
Gislane Lima
Beneficiary
