Ava's Angels 2014. #helpava

Ava is a sick child with a life limiting condition caused by a brain injury at birth. She is at risk of fatally choking at any moment as she has an unsafe swallow which means she can't be left on her own for even a second. Her condition affects her so severely that I need to have another person in the house at all times just to be able to do the things most take for granted; such as use the toilet, make a coffee or cook a meal because Ava needs constant supervision in case she chokes. Ava currently receives no home care assistance. To ensure she doesn't choke and die in her sleep and to try give me a little sleep, Ava uses a special alarm that will wake me if she stops breathing for 20 seconds. Ava tends to only sleep for 2 to 3 hours consecutively and requires sedation to help her sleep. She is fully dependant on me for everything as she has Quadriplegic cerebral palsy as well as other complications, and is hearing and visually impaired. Ava has no fine motor skills so even needs help to play. She is literally trapped in her own body. Moving her also puts pressure on her tummy which in turn can make her feel the need to vomit and greatly increases her risk of choking. She requires suction when she chokes to try and rescue her and every time she chokes or vomits, I worry will this be the one that takes her from me. Ava chokes several times a day, and every time is just as scary as the first time. Ava received her 1st treatment of stemcells in May 2017 and Ava started to show signs of improvement as soon as 2 days in to the 4 day treatment plan. We would love to be able to take her back for another round as soon as possible to help Ava further. In the hope that she may one day gain control of her swallow reflex and take away the risk of choking and even maybe one day gain use of her arms to play. Stem cell treatment has been shown to improve the quality of life in other children similar to Ava and we have experienced 1st hand some of the benefits it can make with how the 1st treatment had helped Ava. Improving her muscle tone and vision aswell as helping her with the ability to turn her head and look for people and noises. All thanks to the extremely generous members of the public and friends and family. So here we are again reaching out to you, the public, and ask if you can find it in your heart to once again donate as much as you can afford to help improve Ava’s life chances. It is vital that we get Ava to Panama as soon as possible in order for the stem cells to make more of a difference in her day to day life. We try to make the most of every day. Whether it be a good or bad day, every day Ava is alive is a gift. Life is not "easy" or "normal" and in fact is very difficult and stressful living with the threat of your child dying at any moment. I tuck my broken heart away and get on with things and concentrate on making Ava happy and comfortable. Every day, I am there to fight the fight with her. I do lose it from time to time, and my broken heart breaks free as watching my child suffering just gets too much while the world goes on regardless. Ava is so strong and determined, that even when I am at my lowest, she continues to fight with her heart-warming smile that makes every tear worth it. It’s in these moments that I really appreciate how lucky I am to have Ava in my life; she gives me the strength I need to keep fighting. We are hoping to raise enough to cover the cost of her treatment, aftercare and transport to Panama, and she needs it as soon as possible aswell as some intensive therapy after the treatment to help with the possibility he coukd gain some control of her head and arms. If every person who read this donated even £1, I know we could get Ava the treatment she needs to give her the chance she deserves. We need your help... Even if you can’t donate; share Ava’s story, and let’s give this little fighter a fighting chance. #helpava