Aunika Rowan Kerr (ARK)
Spende geschützt
Aunika Rowan Kerr (the ARK) was born September 23, beautiful and strong, but with a variety of health challenges. These health challenges came as a surprise to her parents Jason and Maggie, as there had been no issues with the pregnancy and no indication that anything was wrong.
Unfortunately shortly after she was delivered, Aunika had severe breathing and feeding issues resulting in her being transferred to the Hospital for Sick Children in Toronto. Throughout her short life Dr's have discovered, Auni has zero T-cells, and therefore no functioning immune system. To date, all testing for genetic issues have come back negative, and Dr's are left at a stand still questioning why she is missing her T-cells. Every day that passes she is more at risk. Time unfortunately is not on her side. Treatment options that have been suggested are for her to undergo a bone marrow transplant (@ Sick Kids Hospital, Toronto), and/or a thymus gland transplant (@ Duke University, North Carolina) which could cost up to $100,000 for testing and.
To help decide on the best option for Aunika, they need a 'Whole Exome Sequence' of genetic testing to be completed at the Genedx genetic testing facility in Maryland. The cost of the test is $9000 USD. Currently the. Timeline given for testing is 5 months. This is far too long, because every day, Aunika is at risk. The Ontario government requires parents to wait up to 8 weeks to complete an application through OHIP, followed by another 2-3 months for testing to be completed. We must raise awareness at the highest level to help speed this process up in any way we can for Aunika.
Aunika's blood has also been submitted for testing, in search of a suitable bone marrow donor. If you are interested in becoming a bone marrow donor in Canada, visit www.onematch.ca for more information.
Because her body does not have the ability to fight any infection if she contracts one, thus impacting her ability to survive, Aunika is being kept in isolation at her family's home. They simply can not loose their baby girl.
Please help by donating to this fund or ask our government Kathleen Wynne @Kathleen_Wynne and Justin Trudeau @JustinTrudeau to fast track the approval for her Exome sequencing that will assist the doctors in finding the right treatment plan. Send this message to physicians, friends, anybody with connections that may be able to help Aunika.
The family is working closely with their Paediatrician at Soldiers Memorial Hospital in Orillia, ON, Dr. Ryan Smith, and doctors at the Hospital for Sick Children in Toronto, ON Dr. Eyal Grunebaum, Immunology, and Dr. Stephen Meyn, Genetics. please reach out to us, or to them, with any questions, information, or ideas about how we can save Aunika.
**Please note that the family has resisted such a campaign hoping for a solution. They have insisted any funds that are not used to directly support the medical testing and cure of Aunika be donated back to charities helping families in similar situations. ** if you require further details about this portion of the campaign please contact [E-Mail ausgeblendet]
The ARK is strong!
Unfortunately shortly after she was delivered, Aunika had severe breathing and feeding issues resulting in her being transferred to the Hospital for Sick Children in Toronto. Throughout her short life Dr's have discovered, Auni has zero T-cells, and therefore no functioning immune system. To date, all testing for genetic issues have come back negative, and Dr's are left at a stand still questioning why she is missing her T-cells. Every day that passes she is more at risk. Time unfortunately is not on her side. Treatment options that have been suggested are for her to undergo a bone marrow transplant (@ Sick Kids Hospital, Toronto), and/or a thymus gland transplant (@ Duke University, North Carolina) which could cost up to $100,000 for testing and.
To help decide on the best option for Aunika, they need a 'Whole Exome Sequence' of genetic testing to be completed at the Genedx genetic testing facility in Maryland. The cost of the test is $9000 USD. Currently the. Timeline given for testing is 5 months. This is far too long, because every day, Aunika is at risk. The Ontario government requires parents to wait up to 8 weeks to complete an application through OHIP, followed by another 2-3 months for testing to be completed. We must raise awareness at the highest level to help speed this process up in any way we can for Aunika.
Aunika's blood has also been submitted for testing, in search of a suitable bone marrow donor. If you are interested in becoming a bone marrow donor in Canada, visit www.onematch.ca for more information.
Because her body does not have the ability to fight any infection if she contracts one, thus impacting her ability to survive, Aunika is being kept in isolation at her family's home. They simply can not loose their baby girl.
Please help by donating to this fund or ask our government Kathleen Wynne @Kathleen_Wynne and Justin Trudeau @JustinTrudeau to fast track the approval for her Exome sequencing that will assist the doctors in finding the right treatment plan. Send this message to physicians, friends, anybody with connections that may be able to help Aunika.
The family is working closely with their Paediatrician at Soldiers Memorial Hospital in Orillia, ON, Dr. Ryan Smith, and doctors at the Hospital for Sick Children in Toronto, ON Dr. Eyal Grunebaum, Immunology, and Dr. Stephen Meyn, Genetics. please reach out to us, or to them, with any questions, information, or ideas about how we can save Aunika.
**Please note that the family has resisted such a campaign hoping for a solution. They have insisted any funds that are not used to directly support the medical testing and cure of Aunika be donated back to charities helping families in similar situations. ** if you require further details about this portion of the campaign please contact [E-Mail ausgeblendet]
The ARK is strong!
Organisator
Ashley Fairgrieve-McInnis
Organisator
Orillia, ON
