Aubree Ryan Rouse
Donation protected
Aubree Ryan Rouse, was born on September 17, 2018 at 1:29 PM. Unfortunately, her heart stopped the minute she was born, and she lost her battle against Hydrops. She was such a tough, strong girl, and she put up one heck of a fight. She is the beloved daughter of Kendall & Meghann, and Kensley's little sister, and loved by numerous family and friends.
Meghann has also had an extremely challenging cesarean birth and recovery. She could have ended up with a hysterectomy, or even worse, losing her own life without the wonderful team of doctors and nurses who worked so hard to save her uterus, and her life. She not only lost her first born child, she has went through this agonizing near death and very painful experience.
This campaign is created to help cover funeral/burial expenses for sweet Aubree. Any help you can give is much appreciated, and if you cannot donate financially, just sharing this page would help as well. Please keep the entire Rouse Family in your thoughts and prayers.
“We’ll choose you. And we'll choose you over and over and over. Without pause, without a doubt, in a heartbeat. We’ll keep choosing you.”
-------------------------
Aubree's Story via Meghann.
June 11:
I went for my 16 week appointment yesterday, and what was supposed to be a 10 minute appointment turned into several hours, a consultation with a perinatologist, and multiple ultrasounds. It was determined that our baby has something known as hydrops fetalis, and the chances of our baby surviving are very slim—before or after birth. This means the baby has fluid on the brain, lungs, and belly, and it is slowing the baby’s heart rate, which was in the 80’s. It could be genetic, which isn’t treatable, or an infection, which could be treatable; however, my doctor has said our baby’s mortality rate is at 95% Right now we are trying to figure out the cause in hopes that it can be reversed, but once again, these chances are very slim because it’s usually not infection related and that would be the only reversible option in our case. We basically have to sit and wait for my next appointment next Thursday and for blood work to come back to see if we get any answers and to figure out what the next step is. If the baby makes it until 18 weeks, I will have an appointment at Children’s hospital for an echocardiogram of the baby’s heart, but my current doctor doesn’t think we will make it that far If this isn’t reversible, which it likely isn’t, the baby will eventually pass away, and I will have to be induced to give birth to my sweet angel once that happens
June 21:
Baby is still alive Baby looked like a baby today compared to last week when the ultrasound didn’t look like anything because I have a fibroid that was in the way. Nothing is really changed. It was a different doctor today, and she said the baby didn’t have fluid on the brain, but in the skin of the back of the head, which is better than fluid on the actual brain, but still not good. Still fluid in the baby’s lungs and belly, and hands and feet are still clubbed, so overall, condition hasn’t changed. She believes the amount of fluid hasn’t changed either, which isn’t good, but at least it’s not worse.
I got the results back from the tests I had done last week. My parvo, CMV, and toxoplasmosis results were all negative, which ruled out infection. The genetic blood draw test I had was also negative for the things it tested, which are trisomy 13, 18, and 21 (Patau syndrome, Edward’s syndrome, and Down syndrome). They did an amniocentesis today on me to see if any other genetic abnormalities show up. Baby’s heart rate went from being in the 80’s last week, which was severely low, and today it was normal at 129 before my amniocentesis and 149 after the amniocentesis. The results from my amniocentesis will take at least a week to come back. We thought the baby had a genetic abnormality of not having a bladder from what I read on my ultrasound results last week. The doctor said today that she didn’t see a bladder on the ultrasound, but with the baby being sick, they wouldn’t expect to see a bladder because the baby probably isn’t producing urine, which would be what causes it to show up on an ultrasound, but that doesn’t mean it isn’t there. She said that last week the stomach wasn’t seen either (which I didn’t know), but it was on the ultrasound today because there was substance in the baby’s stomach. I will have weekly appointments until something happens. I am scheduled to have an echocardiogram of the baby’s heart on Wednesday at children’s hospital, which will let us know if there are any defects with the baby’s heart causing this fluid, and will have another ultrasound Wednesday, if the baby makes it that far.
Baby’s chances of dying are still 95%, but right now, that 5% chance of hope is still there when we thought it wasn’t.
June 27:
We have a fighter on our hands Two weeks ago the doctor was pretty certain the baby wouldn’t make it to today. Baby’s heart rate was 134 and strong. Echo was negative for any abnormalities. Baby’s condition is unchanged minus one positive that the bladder was seen today and the baby is producing urine. Still waiting for amniocentesis results to come back. Prognosis is still the same and it’s just a week by week waiting game. Thank you for the continued prayers ❤️
July 3:
Week by week we have to find out if our baby is still with us and the daily worry and stress is unlike anything I’ve had to deal with ever in my life. Thankfully, that little heart is still pumping at 128 beats a minute as of this morning and I just cry thankful tears every time I hear that sweet sound My amniocentesis results also came back negative. It’s impossible to test the baby for every genetic possibility, but everything they’ve tested for is negative, so there’s a possibility we might never find out what’s wrong. My blood pressure was also great this morning and so far I haven’t showed any signs of mirror syndrome. The fluid on the baby’s lungs, back of the head, and belly are stable. It’s so confusing because our baby seems fine minus the hydrops, but the doctors are convinced the baby won’t survive this. That 5% is still here and we still have hope as long as that sweet little heart is still beating ❤️ Thank you for the prayers and please keep them coming
Aug 16:
Our sweet little babe had a heart rate of 144 today ❤️ The ultrasound tech turned it into 3D for us again, and a Kensley got down to my belly and said, “Hi, baby girl!” and we watched the baby go from a straight face to having a smirk go right across her sweet little face on the screen It’s so cool to be able to see her reaction on screen, but I’m not super surprised because she goes crazy in my belly whenever she hears her daddy and Kensley’s voices You would never know how sick she is with how active she is! Children’s has scheduled our extensive appointments with children’s fetal center for the end of the month. Hoping for more answers and a plan on what we are going to do to save her life Please continue to keep the prayers coming! This baby has made it clear she is not giving up! ❤️
Aug 25:
27 weeks today!!!! My heart is soooo thankful!!!
We meet with the Cincinnati Fetal Center this upcoming week and need some major, major prayers, please!!! We still have hope to be able to deal with the current issues we are aware of right now, so please pray that our upcoming tests don’t show any more issues and for our new team of doctors to be able to help our precious little baby!! ❤️ ❤️ ❤️
I am just so grateful that we have made it this far and her story is still being written! Praying she can still hang on and that her chances of survival will start to increase next week
Aug 30:
We’ve waited over 2 months to find out the baby is NEGATIVE for Noonan’s syndrome! Had she been positive for this, she wouldn’t have stood a chance and our chances of going through this again could have been as high as 50%. SO THANKFUL to have gotten this news today!!! ❤️
Sept 1:
Our baby has been turning CANNOT’s into CAN’s! ❤️“A week or two, at most.” Well, here we are 10 weeks past the “two at most” mark! This week’s bump update deserves a bump wiggle because WE MADE IT TO 28 WEEKS! OFFICIALLY IN THE THIRD TRIMESTER! Never underestimate the strength, ability, fight, determination and miracle inside of a baby that’s given a 5% chance to LIVE ❤️❤️❤️Thank you, God! I can only hope that we continue to be blessed! ❤️
Sept 15:
We made it to 30 weeks! THIRTY WEEKS! 3 whole months past the day she was diagnosed with hydrops!!!
I have been feeling so miserable and being pregnant with a sick baby is really taking a toll on my body because the symptoms are even worse, but I will gladly accept the pain and suffering if we get to have our miracle ❤️
Please continue to pray that our girl continues this fight and continues to show just how powerful a 5% chance is
Sept 18:
September 17, 2018, our precious daughter, Aubree Ryan Rouse was born at 1:29 PM. It also just so happened to be the anniversary of the day her daddy and I met ❤️
Unfortunately, her heart stopped the minute she was born, and she lost her battle against hydrops. She was such a tough, strong girl, and she put up one heck of a fight. Her daddy and I can live without regret knowing we did everything we could to try to save her.
I’m so proud to be your mommy, Aubree Ryan
My life will never be the same
Sept 19:
Just updating everyone about what’s going on with me because I am getting a lot of messages and it’s hard for me to respond.
I had to have a C section on the 17th because the baby was so swollen and she was breech. They had a difficult time trying to get her out that they had to do a T cut C section. They were able to get her out that way, and I had a lot of bleeding so they had to do a lot of stitching on my uterus. The anesthesiologist noticed my color had changed drastically and requested a CBC. I had lost 3 L of blood at that point and my hemoglobin dropped significantly. At 6 pm that night, they wanted a repeat CBC just to see how things were going, and my counts dropped even more, so they sent me to SICU with suspicion that I had a bleed of some sort and was having a bleeding disorder called DIC. They started out giving me PRBCs, FFP, and platelets. Around 11 pm that night, I started having tightness in my chest and severe shoulder pain. I told the nurse it felt like something was pushing on my diaphragm and putting pressure on my lungs and shoulder. It kept getting worse, and the surgical OB doctor came in and saw me at 3:55 AM and I told her what was going on. My hemoglobin had dropped to 6.0 after receiving 4 units of PRBCs, and once I told her my symptoms, she was convinced I had a bleed. She palpated my abdomen and noticed crepitus right away (air bubbles), which meant there was fluid building up. She did an ultrasound to confirm and sure enough, I was bleeding. They put in a central line in my neck and sent me to emergency surgery within 30 minutes. The doctors thought I needed to have a hysterectomy in order to save my life, but they decided to take out my uterus and squeeze it out like a sponge, and then but a balloon inside of it to try to get it firm again. I ended up losing another 2 L of blood and they transfused 8 more additional units of PRBCs. They kept me in the OR and just watched me for 45 minutes to see if that had a chance of working or else they were going to do a hysterectomy. Within a 12 hour period, I received 13 units of PRBCs, 4 units of plasma, 2 units of platelets, and 1 unit of cryo. There were more blood products given to me than that, but that’s all I know for sure how much I received. Thankfully, my blood counts stabilized and they were hopeful the balloon would work. I was on a ventilator until about 2 PM yesterday. I’m having extreme pain from all the incisions, damage internally, and bruising and still not out of the woods of having a hysterectomy. They’re in the process of removing the balloon and watching for bleeding, and hoping I can transfer out of SICU. I’m also having breathing issues from being on the ventilator and having all these abdominal incisions and bruising that it’s making it hard to breathe efficiently, so they have me on high flo oxygen.
Today is our 4 month wedding anniversary, and we’ve literally had every single one of our vows put to the test in just this short amount of time. My sweet husband is currently donating blood at Hoxworth right now as a thank you for all the blood they gave me to save my life ❤️
Meghann has also had an extremely challenging cesarean birth and recovery. She could have ended up with a hysterectomy, or even worse, losing her own life without the wonderful team of doctors and nurses who worked so hard to save her uterus, and her life. She not only lost her first born child, she has went through this agonizing near death and very painful experience.
This campaign is created to help cover funeral/burial expenses for sweet Aubree. Any help you can give is much appreciated, and if you cannot donate financially, just sharing this page would help as well. Please keep the entire Rouse Family in your thoughts and prayers.
“We’ll choose you. And we'll choose you over and over and over. Without pause, without a doubt, in a heartbeat. We’ll keep choosing you.”
-------------------------
Aubree's Story via Meghann.
June 11:
I went for my 16 week appointment yesterday, and what was supposed to be a 10 minute appointment turned into several hours, a consultation with a perinatologist, and multiple ultrasounds. It was determined that our baby has something known as hydrops fetalis, and the chances of our baby surviving are very slim—before or after birth. This means the baby has fluid on the brain, lungs, and belly, and it is slowing the baby’s heart rate, which was in the 80’s. It could be genetic, which isn’t treatable, or an infection, which could be treatable; however, my doctor has said our baby’s mortality rate is at 95% Right now we are trying to figure out the cause in hopes that it can be reversed, but once again, these chances are very slim because it’s usually not infection related and that would be the only reversible option in our case. We basically have to sit and wait for my next appointment next Thursday and for blood work to come back to see if we get any answers and to figure out what the next step is. If the baby makes it until 18 weeks, I will have an appointment at Children’s hospital for an echocardiogram of the baby’s heart, but my current doctor doesn’t think we will make it that far If this isn’t reversible, which it likely isn’t, the baby will eventually pass away, and I will have to be induced to give birth to my sweet angel once that happens
June 21:
Baby is still alive Baby looked like a baby today compared to last week when the ultrasound didn’t look like anything because I have a fibroid that was in the way. Nothing is really changed. It was a different doctor today, and she said the baby didn’t have fluid on the brain, but in the skin of the back of the head, which is better than fluid on the actual brain, but still not good. Still fluid in the baby’s lungs and belly, and hands and feet are still clubbed, so overall, condition hasn’t changed. She believes the amount of fluid hasn’t changed either, which isn’t good, but at least it’s not worse.
I got the results back from the tests I had done last week. My parvo, CMV, and toxoplasmosis results were all negative, which ruled out infection. The genetic blood draw test I had was also negative for the things it tested, which are trisomy 13, 18, and 21 (Patau syndrome, Edward’s syndrome, and Down syndrome). They did an amniocentesis today on me to see if any other genetic abnormalities show up. Baby’s heart rate went from being in the 80’s last week, which was severely low, and today it was normal at 129 before my amniocentesis and 149 after the amniocentesis. The results from my amniocentesis will take at least a week to come back. We thought the baby had a genetic abnormality of not having a bladder from what I read on my ultrasound results last week. The doctor said today that she didn’t see a bladder on the ultrasound, but with the baby being sick, they wouldn’t expect to see a bladder because the baby probably isn’t producing urine, which would be what causes it to show up on an ultrasound, but that doesn’t mean it isn’t there. She said that last week the stomach wasn’t seen either (which I didn’t know), but it was on the ultrasound today because there was substance in the baby’s stomach. I will have weekly appointments until something happens. I am scheduled to have an echocardiogram of the baby’s heart on Wednesday at children’s hospital, which will let us know if there are any defects with the baby’s heart causing this fluid, and will have another ultrasound Wednesday, if the baby makes it that far.
Baby’s chances of dying are still 95%, but right now, that 5% chance of hope is still there when we thought it wasn’t.
June 27:
We have a fighter on our hands Two weeks ago the doctor was pretty certain the baby wouldn’t make it to today. Baby’s heart rate was 134 and strong. Echo was negative for any abnormalities. Baby’s condition is unchanged minus one positive that the bladder was seen today and the baby is producing urine. Still waiting for amniocentesis results to come back. Prognosis is still the same and it’s just a week by week waiting game. Thank you for the continued prayers ❤️
July 3:
Week by week we have to find out if our baby is still with us and the daily worry and stress is unlike anything I’ve had to deal with ever in my life. Thankfully, that little heart is still pumping at 128 beats a minute as of this morning and I just cry thankful tears every time I hear that sweet sound My amniocentesis results also came back negative. It’s impossible to test the baby for every genetic possibility, but everything they’ve tested for is negative, so there’s a possibility we might never find out what’s wrong. My blood pressure was also great this morning and so far I haven’t showed any signs of mirror syndrome. The fluid on the baby’s lungs, back of the head, and belly are stable. It’s so confusing because our baby seems fine minus the hydrops, but the doctors are convinced the baby won’t survive this. That 5% is still here and we still have hope as long as that sweet little heart is still beating ❤️ Thank you for the prayers and please keep them coming
Aug 16:
Our sweet little babe had a heart rate of 144 today ❤️ The ultrasound tech turned it into 3D for us again, and a Kensley got down to my belly and said, “Hi, baby girl!” and we watched the baby go from a straight face to having a smirk go right across her sweet little face on the screen It’s so cool to be able to see her reaction on screen, but I’m not super surprised because she goes crazy in my belly whenever she hears her daddy and Kensley’s voices You would never know how sick she is with how active she is! Children’s has scheduled our extensive appointments with children’s fetal center for the end of the month. Hoping for more answers and a plan on what we are going to do to save her life Please continue to keep the prayers coming! This baby has made it clear she is not giving up! ❤️
Aug 25:
27 weeks today!!!! My heart is soooo thankful!!!
We meet with the Cincinnati Fetal Center this upcoming week and need some major, major prayers, please!!! We still have hope to be able to deal with the current issues we are aware of right now, so please pray that our upcoming tests don’t show any more issues and for our new team of doctors to be able to help our precious little baby!! ❤️ ❤️ ❤️
I am just so grateful that we have made it this far and her story is still being written! Praying she can still hang on and that her chances of survival will start to increase next week
Aug 30:
We’ve waited over 2 months to find out the baby is NEGATIVE for Noonan’s syndrome! Had she been positive for this, she wouldn’t have stood a chance and our chances of going through this again could have been as high as 50%. SO THANKFUL to have gotten this news today!!! ❤️
Sept 1:
Our baby has been turning CANNOT’s into CAN’s! ❤️“A week or two, at most.” Well, here we are 10 weeks past the “two at most” mark! This week’s bump update deserves a bump wiggle because WE MADE IT TO 28 WEEKS! OFFICIALLY IN THE THIRD TRIMESTER! Never underestimate the strength, ability, fight, determination and miracle inside of a baby that’s given a 5% chance to LIVE ❤️❤️❤️Thank you, God! I can only hope that we continue to be blessed! ❤️
Sept 15:
We made it to 30 weeks! THIRTY WEEKS! 3 whole months past the day she was diagnosed with hydrops!!!
I have been feeling so miserable and being pregnant with a sick baby is really taking a toll on my body because the symptoms are even worse, but I will gladly accept the pain and suffering if we get to have our miracle ❤️
Please continue to pray that our girl continues this fight and continues to show just how powerful a 5% chance is
Sept 18:
September 17, 2018, our precious daughter, Aubree Ryan Rouse was born at 1:29 PM. It also just so happened to be the anniversary of the day her daddy and I met ❤️
Unfortunately, her heart stopped the minute she was born, and she lost her battle against hydrops. She was such a tough, strong girl, and she put up one heck of a fight. Her daddy and I can live without regret knowing we did everything we could to try to save her.
I’m so proud to be your mommy, Aubree Ryan
My life will never be the same
Sept 19:
Just updating everyone about what’s going on with me because I am getting a lot of messages and it’s hard for me to respond.
I had to have a C section on the 17th because the baby was so swollen and she was breech. They had a difficult time trying to get her out that they had to do a T cut C section. They were able to get her out that way, and I had a lot of bleeding so they had to do a lot of stitching on my uterus. The anesthesiologist noticed my color had changed drastically and requested a CBC. I had lost 3 L of blood at that point and my hemoglobin dropped significantly. At 6 pm that night, they wanted a repeat CBC just to see how things were going, and my counts dropped even more, so they sent me to SICU with suspicion that I had a bleed of some sort and was having a bleeding disorder called DIC. They started out giving me PRBCs, FFP, and platelets. Around 11 pm that night, I started having tightness in my chest and severe shoulder pain. I told the nurse it felt like something was pushing on my diaphragm and putting pressure on my lungs and shoulder. It kept getting worse, and the surgical OB doctor came in and saw me at 3:55 AM and I told her what was going on. My hemoglobin had dropped to 6.0 after receiving 4 units of PRBCs, and once I told her my symptoms, she was convinced I had a bleed. She palpated my abdomen and noticed crepitus right away (air bubbles), which meant there was fluid building up. She did an ultrasound to confirm and sure enough, I was bleeding. They put in a central line in my neck and sent me to emergency surgery within 30 minutes. The doctors thought I needed to have a hysterectomy in order to save my life, but they decided to take out my uterus and squeeze it out like a sponge, and then but a balloon inside of it to try to get it firm again. I ended up losing another 2 L of blood and they transfused 8 more additional units of PRBCs. They kept me in the OR and just watched me for 45 minutes to see if that had a chance of working or else they were going to do a hysterectomy. Within a 12 hour period, I received 13 units of PRBCs, 4 units of plasma, 2 units of platelets, and 1 unit of cryo. There were more blood products given to me than that, but that’s all I know for sure how much I received. Thankfully, my blood counts stabilized and they were hopeful the balloon would work. I was on a ventilator until about 2 PM yesterday. I’m having extreme pain from all the incisions, damage internally, and bruising and still not out of the woods of having a hysterectomy. They’re in the process of removing the balloon and watching for bleeding, and hoping I can transfer out of SICU. I’m also having breathing issues from being on the ventilator and having all these abdominal incisions and bruising that it’s making it hard to breathe efficiently, so they have me on high flo oxygen.
Today is our 4 month wedding anniversary, and we’ve literally had every single one of our vows put to the test in just this short amount of time. My sweet husband is currently donating blood at Hoxworth right now as a thank you for all the blood they gave me to save my life ❤️
Organizer and beneficiary
Kacy Elliott
Organizer
Covington, KY
Meghann Rouse
Beneficiary
