Ariana's Fight Against Brain Cancer
The next morning Nov 12 we took her to the pediatrician, and we were sent to the hospital for a CT to rule out a concussion. At that time, we were so worried it was a concussion... Little did we know!
The CT showed a possible cyst or tumor in her brain. We were given a few choices on places for an MRI, as kids have to be sedated. We decided on Children's hospital in New Orleans, in case it was worse-case scenario. We were admitted through the ER at Children's that afternoon... They took us straight to the cancer floor without telling us anything, and I almost threw up. I told Lee it must be a mistake and the other rooms were full...
After a lot of talks with doctors, our heads spinning, we were told it was a tumor, and it would need to be operated on, BUT at the moment we had a bigger issue. The CT showed so much fluid on the brain, Ariana needed immediate surgery to put in an exterior ventricular drain. That surgery was about 5:30 or 6 on Nov 12.
We met with our neurosurgeon, and he showed us and told us the tumor was LARGE. It was also attached to important high-functioning areas of the brain. Then she had a brain surgery on Nov 18 to try to get the tumor out. She made it through surgery wonderfully. Doctors, nurses, everyone was pleasantly surprised. We had an MRI the next day.... To see how the tumor looked... And we got the news that 1/3 of the tumor remained. Dr. Roberts felt that he could get more out if he went in a second time, and so we put our trust in that.
Ariana's second brain surgery was Nov 20. Dr Roberts knew he got all he could, but that some still remained. After THAT MRI, we found out 20% is still in there.
We got her oncology report Nov. 21, 2014 on Ariana's 2nd birthday. She was diagnosed with ATRT, a VERY rare, malignant, stage 4 cancer. We knew we needed the best treatment possible, so we reached out to St Jude.
Ariana's pressures were great, so they turned off the EVD. Then, the CTs were good, so they took out the EVD. She was sweating from all the steroids and antibiotics, or so we thought... We later found out she was leaking brain fluid from her stitches...
and so she had her FOURTH surgery on Dec.5 to put in a shunt.
She also got a virus while in the hospital. We have now
been here 23 days, 13 in ICU, and we HOPE to be well enough to go to St. Jude SOON!
We need treatment, and we need it fast.
---Ariana has since had 2 more surgeries- a port and another tumor resection. (Total of 6 surgeries)
She has had 4 months of high dose IV chemo, 6 weeks of proton radiation to the brain, and 6 months of oral maintenance chemo. She has had several seizures and a lot of neuropathic pain. She is not cancer-free, but she WILL be!
Please help us as we help Ariana FIGHT for her life!i
We appreciate everything, and we are especially grateful for the prayers... You ALL will help us win this fight...
much love-- The Farraguts
I’m hosting a Matilda Jane party online. It’s the clothes Ari, Evie, and I wear. A portion of the proceeds from Feb 14-28 from my show will go to Ariana. If you don’t have a little girl to shop for, they also have precious/ comfy women’s clothing AND home items!! Check it out. The picture I’m attaching has info. If you have questions, just message me :)
Just be sure to choose “Jenna” as your Jane when you checkout, if you make a purchase!
Thanks to everyone for the continued support as we try to make the best of each day we have together. You guys are helping to keep Ari smiling. God bless!
Yesterday was the first time I absolutely lost it and broke down! I’ve tried and tried to be strong, but yesterday my heart had enough, and I just was so so upset. Lee and I talked, and I had a good talk with Ariana, and just like that it was over.
It’s just so hard dealing with the day to day on top of all the sickness. It’s especially trying not knowing what to expect. The unknown is very scary. When we left St. Jude, we were told likely 4-6 weeks. On the 30th will be 6 weeks, and I just pray they are wrong. Our new hospice nurse is really great, and Ariana likes her a lot. Ariana has been in pain, so she finally got some pain meds that are helping with her back and head aches. She’s starting to get a little more tired than normal, but she’s still going strong. She has SO MUCH SPIRIT!
Please continue to pray for Ariana’s miracle. Watching her with Jameson and Evangeline... gosh it just makes me so happy and angry at the same time. She deserves so much more. She deserves a future. She’s so amazing.
The DJ was Jay Brown (DJ Spisee with Double DJ’s Entertainment). He offered his services immediately, and that was such a blessing. Life with cancer is so last minute, and you never know how things will go. On Monday, he got the ball rolling for us. Thanks to Jarrod Fetters and Father Adam, we were able to hold the party at Holy Spirit Hall. They were so so so kind to us, and the church even presented Ari with a gift. My heart!
I knew Ariana would FREAK if she could have a special dress, so I sent a group message to all my boutique owner friends! They were all more than willing to help, and Stephanie with Oh Sew Fancy made the PERFECT dress and overnighted it! Ariana’s eyes when she opened that package.... oh my heart..
Then Savannah Carrol (who owns the Stables) totally jumped in and helped me with all of the decor! She made our vision come to life, and y’all, in a matter of days. She even brought a cotton candy machine from D’Iberville Equipment Rental!
Chick Fil A D’Iberville provided the food!!!
Several friends and family also brought food and drinks.
Karoline Johnson, who has become so special in my life, came to photograph the event. The pictures and videos (from everyone) mean more to me than anyone could EVER imagine..
My best friend Lea helped me and Savannah decorate, and Jarrod moved all the tables for us...
Soooooo many people came to celebrate Ariana’s life with us. She wasn’t feeling well, but she was so brave. She danced, played, ran, and she even graced us with several songs. Lordy, I love listening to her sing. I’m soooo grateful God gave us that time to celebrate with her.
After everyone left, we had several people help us clean, and we are so grateful for that, too!
I truly just can’t believe how much support was shown to us by friends and family! Ariana is so so loved, and we are blessed.
Thank you to all who made the event possible! (If I left ANYONE out, I’m so sorry; my brain is fried). Thanks to everyone who dropped everything last min to come. Ariana had the most magical time, and our hearts are so full. God bless you all!
Mr. and Mrs. Farragut....I know Ariana will not be in school for a couple of months. I want you to know that we consider her a special part of our school family and we will pray for her every morning before classes start. Please let me know what we can assist you with as you undergo this extremely difficult process....we will make every effort to support you, Ariana and Jameson. God Bless, Mr. Lopez
Praying for your sweet baby and you as well.
Praying for precious Ariana, you & her dad, & all who love her.
Dear Jenna, My heart Aches for you and your family. I am James’ cousin. My thoughts are with you always. I pray that God gives y’all the courage to brave during this time. Remember to just breathe. I have recently lost 2 grand babies less than 2 months apart. Stay strong
Jenna ~ Ariana looks so happy and absolutely beautiful at her party. We pray for her every night & have done so since my husband first told our daughters and I about Team Ariana. She is truly an amazing little girl and has stolen our hearts. May the Lord watch over you and your family at this difficult time. Praying for a miracle. Godspeed Ariana!
What a lovely dance party!
So so glad to hear Ariana's Disney trip is going well for all of you and pray she will enjoy every moment.
Praying y'all have a safe and fun-filled trip making lots of beautiful memories
Hi, my name Is Shaneik Watson and I am making this gofundme on behalf of my 29 yr old Aunt, Shanna Chen, and her 7 yr old daughter Brianna. On Friday, December 15th, 2017 Shanna went to the emergency room at Vassar Brothers Hospital because she was experiencing severe headaches. As a result of that visit, she and our family was devastated to find out that she had 2 brain aneurysms and would have to undergo emergency surgery that following morning. Shanna went into surgery for what was supposed to be a 4-6 hour procedure, It ended up being 15 hours. The doctor explained to us that during the procedure her brain began to bleed out and swell so they had to work vigorously to stop the bleeding and removed a portion of her skull that couldn’t be replaced due to the swelling of her brain in the process. We were informed today that her skull cannot be replaced for a few months during which time she will have to wear a helmet to protect her brain and go through rehabilitation to regain the full function of her brain. My mother is the oldest of my grandmothers eight children and my aunt Shanna is the youngest. She is more than a aunt to me and my sisters, she was raised by my mother in the same household as us all of our lives. I cry as I write this because I am still in disbelief that this is even reality right now. Shanna is a strong woman and by the grace of God the results of her cat scan show no permanent brain damage but she still has a long road ahead of her before she fully recovers. Shanna works as a PCA and she is a single mother who like many other people in the world live paycheck to paycheck so we are asking for help to keep her and Brianna’s home and for any other expenses that may occur during her time of healing. As of right now, Brianna does not know the extent of what has happened to her mom and we are trying to keep things as normal as possible for her and with the holidays nearing we don’t even know how to break the news to her but the last thing we want is for Brianna and her mom to have to go through this ordeal and end up losing their home and what sense of normalcy they had in their lives before this unexpected tragedy. Anything you can give will be greatly appreciated and even if not a monetary donation we are asking for prayers from all in our time of need. Thank you for taking the time out to read on Shanna and Brianna’s story. https://www.facebook.com/shaneik.watson/posts/10156114225392342
Be safe and have fun @ Disney. Hopefully the weather will be better there than it is here. P.
Prayers for Sweet Arianna . Jenna. She is just so precious. Love y’all so much
Praying for Ariana and all of you.
My Prayers Are With You!! From My Heart To Yours!!
Sending hugs and praying for Ariana and family and the days before Christmas she will be having fun times with mom, dad, brother and sister. Prayers for strength, courage and many, many special moments. Ariana is a special, beautiful brave warrior. Much love to your family.