Amiracle for Aliya

..hi I’m Desiree Sutton, Aliya Gil’s mom and I have learned a few days ago my daughter may not live to see her first birthday. My baby was born at 29 weeks Premature on June 19, 2019. She weighted 2pounds and 5ounces and has been fighting for her life ever since. She was born with many heart defects including a asd, vsd, a tiny arotic arch and many other tiny holes in her heart. She has premature lungs that resulted in chronic lung disease and pulmonary hypertension.  She has genetic abnormalities, and  extra fluid on her brain. Aliya also has osteopenia, which is thin bones that can easily be fractured or broken. My baby has been on breathing machines and medication since birth. When me and her father got the news that she would finally  be able to go home five months later on November 19 we were overjoyed with excitement. Just to get hit with news that she would not be stable enough to come home. Our dreams were crushed. We had everything in place ready to take our baby girl home. And just two days later I got a phone call on my break at work telling me Aliya was in lung distress and quickly sent to westchester Pediatric ICU. Ever since we have been in westchester picu and this hospital stay has been the most difficult. This is the most tragic experience we have ever been through. I have seen Aliya go through hundreds of testing, blood transfusions, x-rays, echo cardio grams, MRIs, bone fractures, feeding test, and also 5 cardiac arrest. My baby has been through it all. I have never in my wildest dreams imagined a life like this for my babygirl. Just a few days ago I got the worst news of my life. My baby girl’s life here on earth is limited. Please, I am asking you for your prayers and any donations to give my baby the best going away ceremony that we can give her. I want to show her that her life on earth no longer has to be difficult.. thank you so much for your support and any donations, God Bless