Aj's Lucky Fin(A Hand to Hold)

My son Alec was born with VACTERL assosciation syndrome. VACTERL association is a disorder that affects many body systems. VACTERLstands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. People diagnosed with VACTERL associationtypically have at least three of these characteristic features. It is so rare that it only effects 1-10,00-40,000 births. Ajs underlying diagnoses are unilateral renal agensis (missing kidney) and unilateral radial aplasia( missing the radius bone) Aj has the most severe type of radial aplasia which is type 4. This means bone is completely missing in his arm. Another term is radial club hand. It effects 1 jn 75,000 births. I set up this gofundme to raise awareness on this genetic disorder.   so often I have so many people come up to me and asked if Ajs arm has been broken. While I know that this is just a harmless question it got me to thinking I didn't know what this disorder was until my son was diagnosed with it and I want everybody to know that this is just something that happened and something he was born with. AJ will be undergoing surgery within the next few months to fix his hypoplastic thumb hypoplastic means that it does not work at all and has no function so what they are going to do is remove that thumb and move his index finger over to be his new thumb. At this time AJ does not have the pincer grasp on his left hand, making holding and using objects a challenge. I will be staying with AJ in South Carolina during his surgery and during his recovery as he learns to use his new hand. Any donations made in AJ's fund will go towards our travel and lodging and meals during our trips. I recently left my job so I could be home with AJ to work with him and also prepare him for surgery as he has to wear his brace everyday. You're probably wondering why I called this lucky fin. Well I think of AJ's arm like a lucky fin just like Nemo .Nemo had a little arm and my little AJ has a little arm but it does not slow him down, thank you so much for taking time to read his page and if you aren't able to make a donation please tell your friends about his diagnosis or share this link. Also just keeping us and your prayers as we go on this journey will be enough I will post updates as I receive them including the surgery date.