Aggressive Brain Tumour
Donation protected
" I caught the Gord Downie, " is what Darrin keeps on saying. He has always been a huge fan of music, he jokes if he had to catch a celebrity disease, he's glad to have the association with the famous Tragically Hip singer.
Darrin is the most incredible husband, father, son, brother, nephew, uncle & friend. This guy is so loved & just the best guy you could ever meet. He still is solely concerned with everyone else, so he tries to make us laugh. His two biggest fears are for his family and others experiencing pain when they hear this tragic news.
On July 22nd, 2017 our lives took a shocking and devastating turn. This was a day that should have been all about celebrating his son's 7th birthday. But instead he lay on a hospital stretcher with an agonizing headache & our worst fears were confirmed: Darrin has a massive brain tumour. The next day, MRI confirmed Darrin has a massive, aggressive brain tumour, believed to be Glioblastoma-the same brain tumour lead singer Gordon Downie is afflicted with. One week ago, he was smiling & loving his trip with his family to the dinosaur Museum. Today, he is undergoing brain surgery. To say this is shocking is an understatement. It has been a horrifying few days for all of us, but even worse has been to see the pain in Darrin's eyes as he worries for his family.
Darrin & his wife, Tammy are our heros. They have a love that is authentic, deep & true. They are best friends. They are quite easily the most wonderful couple we have ever known. Darrin & Tammy were already dealt a difficult set of cards. Nearly 12 years ago, they were over the moon excited to become parents.
When their precious daughter, Bella, was born they were shocked to learn she has a debilitating and extremely rare disease, Cornelia De Lange Syndrome. There is no cure. Bella cannot speak, bend her limbs, walk properly, communicate or eat. She survives solely on her feeding tube, which gives her nourishment a few times a day. Her feeds often leave her in agony. She requires around the clock care, provided by Darrin & Tammy. They are a team to keep Bella safe. Recently, they have also lost after school daycare for Bella & Darrin altered his work schedule to be off in time to be their childcare. Darrin is so afraid, not all for himself, but for his family -how will his special needs daughter be looked after now? Bella's debilitating disability & associated costs require a two parent income. How will his little boy ever celebrate his birthday again,
remembering this tragic association? And then all of the, "what ifs" that are so terrifying.
Today, July 25th Darrin is undergoing brain surgery to remove as much of this mass as possible. It is an extremely complicated and lengthly surgery, the risks are overwhelming. The neurosurgical team is removing as much of the tumour as they safely can. Then we will learn the next stages of treatment.
As as you can see, this is a tragic situation. Your funds will directly support Darrin's treatment, alleviate the financial burden of both parents being unable to work and assist with the ongoing family costs as well as Bella's special care. Thank you so much for your support and for sharing this very important campaign.
Darrin is the most incredible husband, father, son, brother, nephew, uncle & friend. This guy is so loved & just the best guy you could ever meet. He still is solely concerned with everyone else, so he tries to make us laugh. His two biggest fears are for his family and others experiencing pain when they hear this tragic news.
On July 22nd, 2017 our lives took a shocking and devastating turn. This was a day that should have been all about celebrating his son's 7th birthday. But instead he lay on a hospital stretcher with an agonizing headache & our worst fears were confirmed: Darrin has a massive brain tumour. The next day, MRI confirmed Darrin has a massive, aggressive brain tumour, believed to be Glioblastoma-the same brain tumour lead singer Gordon Downie is afflicted with. One week ago, he was smiling & loving his trip with his family to the dinosaur Museum. Today, he is undergoing brain surgery. To say this is shocking is an understatement. It has been a horrifying few days for all of us, but even worse has been to see the pain in Darrin's eyes as he worries for his family.
Darrin & his wife, Tammy are our heros. They have a love that is authentic, deep & true. They are best friends. They are quite easily the most wonderful couple we have ever known. Darrin & Tammy were already dealt a difficult set of cards. Nearly 12 years ago, they were over the moon excited to become parents.
When their precious daughter, Bella, was born they were shocked to learn she has a debilitating and extremely rare disease, Cornelia De Lange Syndrome. There is no cure. Bella cannot speak, bend her limbs, walk properly, communicate or eat. She survives solely on her feeding tube, which gives her nourishment a few times a day. Her feeds often leave her in agony. She requires around the clock care, provided by Darrin & Tammy. They are a team to keep Bella safe. Recently, they have also lost after school daycare for Bella & Darrin altered his work schedule to be off in time to be their childcare. Darrin is so afraid, not all for himself, but for his family -how will his special needs daughter be looked after now? Bella's debilitating disability & associated costs require a two parent income. How will his little boy ever celebrate his birthday again,
remembering this tragic association? And then all of the, "what ifs" that are so terrifying.
Today, July 25th Darrin is undergoing brain surgery to remove as much of this mass as possible. It is an extremely complicated and lengthly surgery, the risks are overwhelming. The neurosurgical team is removing as much of the tumour as they safely can. Then we will learn the next stages of treatment.
As as you can see, this is a tragic situation. Your funds will directly support Darrin's treatment, alleviate the financial burden of both parents being unable to work and assist with the ongoing family costs as well as Bella's special care. Thank you so much for your support and for sharing this very important campaign.
Organizer and beneficiary
Lisa Yusishen
Organizer
Kamloops, BC
Tammy Yusishen
Beneficiary
