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Challenge for Halle-Rose

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So it's........C H A L L E N G E  T I M E

7.5 Marathons, Holyhead 2 Lincoln, 4 days

I know I have been banging on about my next charity challenge and training for it etc etc so I'd like to formally introduce our next Challenge for Halle-Rose in aid of the CF trust!! 
Everyone remembers the Fridge 10k twice, Tough Mudder's, Spartan Race and the last 18hour 35min Long run from Newcastle to Carlisle.

Naturally I had to raise my game, so this time i'm running from Holyhead lighthouse (Wales) to Lincoln (Brayford Pool).
That's a 196miles total over 4 days. Which works out to just under 2 marathons per day!



I normally just do it for my little girla and boy who both suffer with CF.

For those of you that don’t already know my little girl Halle-Rose and little boy Roman were both diagnosed with Cystic Fibrosis at birth (May 2011 and March 2015)
Cystic fibrosis is a life-shortening inherited disease, affecting over 10,000 people in the UK. You can’t catch or develop cystic fibrosis, it's something you're born with. More than 2.5 million people in the UK carry the faulty gene, thats around one in 25 of the population.
Sadly there is currently no cure for cystic fibrosis but many treatments are available to try and help manage it, including physiotherapy, exercise, medication and nutrition.
From the outside you wouldn’t be able to tell Halle-Rose or Roman was poorly she is just like every other little girl, cheeky, happy and loving. But on the inside is a different story.
Each week five babies are born with cystic fibrosis, and two people die from this horrible disease.


But this time I won't only be doing it for my little ones and the CF Trust I will also be raising funds for 2 amazing people who have really touched me over the last year or so!

The first person I will be doing it for is Little Eva-May Tribe.

Eva may was born at 35 weeks in Lincoln by EC, What was meant to be one of the happiest moments of my life turned into a real life nightmare...Eva may was born on 22nd of may 2007, she wasn't breathing, it took staff over 7 minutes to revive her, Eva was then rushed to qmc without her mummy, my worst nightmare was starting...Eva had 16 hours to get on the toby trial, where they shut her whole body down, and froze her brain! That's how she stayed for the next 3 days...they slowly started to warm her up and to our surprise and the doctors she pulled her ventilator off, and started breathing for herself! The moment came when the professor told us, she'd be bed ridden, she'd never walk talk or feed herself, Eva had cp, I was heartbroken...Eva had regular hospital visits, and still does, when Eva may was 3 she underwent more surgery where they saved her life! Her bowels and stomach we're all twisted, she had them removed and put together the proper way, that was the most scariest time of my life, she went on to thrive, doing things the doctor said she wouldn't do,but she couldn't use her left side or stand, I then discovered SDR...a chance for Eva may to have a better quality of life, so my family and I started fundraising, a year and a half ago she had her op, and my what a difference!!!!! How strong she is getting,her speech her standing, everything seems to be coming together, my little girl is going to walk....now Eva may does intense physio daily, going to centres all over the place, including Iain to help her become stronger and independent! Without your support none of this would be possible....it's been a emotional rollercoaster but....SHES WORTH IT!! ❤️❤️


The second person I am doing it for is Mel Scarcliffe. 

On the 25th Jan 2014 mel aged 32 had a massive stroke, the family were told that night turn off the life support machine as there wasn't anymore they could do. As you can imagine family and close friends of mels were shattered at this news. They didn't turn the machines off, but they later found out mel had the locked in syndrome which basically means she is aware of everything but cannot move nor communicate at all,On 15th Feb mel is out of ICU and breathing on her own. At 4 weeks since her stroke mel had equipment removed from her mouth and has laughed n smiled already have proved them wrong. She had started to move her right hand and leg slightly. Friday. Then the family had news they had been waiting for mel was moved to rehabilitation ward. 16 weeks on mel is doing extremely well. Just done a 3 week intensive physiotherapy. Her right side now has full movement. Mel left hospital October 2014. After 10mths of being in there. She came out to live with her sister Clare, careers came into help the family look after mel. Mel had 6 weeks physio from the NHS Mel progressed well. Then went to weekly sessions. June 2015 mel moved in to her own place. And a team of dedicated careers came on bored to solely look after mel along side family to assist in 24hr care. Mel continued with physio progressed well, Learnt all the basics again talking and eating. All at very slow progression In 2016, mel started private seasons with Iain Maynard along side her normal physio. And she has progressed more. All mel wants to do is walk again and live independently , from day one mel has proved the professionals wrong, and continues to, to watch how mels stroke has not only impacted her own life but the impact it's had on her family is heartbreaking to watch. Mel has a long tough journey a head still.

I will also be doing it for the Eva-may Trust (Eva-May Tribe) and also the Keep Smiling Mel Fund (Mel Scarcliffe).
These 2 have shown me that as long as you can smile and have determination then you really can achieve your dreams no matter the setback

All funds raised will get divided between each, so that means the more money we raise the more people we will be helping!! 

So as you can see this mamouth challenge is going to be serious hard work and I hope it persuades you to donate no matter how big or small the donatation, Every penny really does count!!


Please dig deep and help us raise some funds for some truly amazing people.

Big Love, Iain xxxxx


Donations 

  • Kim Depledge
    • £20 
    • 6 yrs

Organizer

Iain Maynard
Organizer

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