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A fight for Everly

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Update 01/13/2019
Update on Everly
She has a malformation in her brain that is causing the seizures. She hasn’t had a seizure since Friday night. So if they can control them with meds we with stick to that plan. But if she starts to have multiple seizures and we can’t control them she may possibly need surgery to fix the malformation in her brain. We don’t know what life will be for Everly but we don’t love her any less, we love her more. We will need to learn to lean on friends and family through this trial but we also know GOD is in control. He will have the final say! Thank you for your support. Please continue to pray and share Everly’s story.

Update 01/12/19
I want to first say thank to everyone who has donated and prayed for Everly. Thursday, Jan 10th, we were blessed with an appointment with an epilepsy specialist in San Antonio. After our two hour long consultations our specialist decided it would be best if we had a more aggressive approach to treating and finding the cause to Everly’s seizures. We scheduled to come back to San Antonio the following week and have an 24 to 72hour EEG. As we were trying to leave San Antonio, Everly had another seizure and our specialist advised us to bring her back to the hospital to be admitted. God knew she was not safe going home, Everly has never had a seizure during the day and hasn’t had a seizure during the day since. From the moment we walked into the hospital I knew this is where we need to be. This is where we are going to get answers. Everly has had several more seizures while we have been here. They are watching her very closely and trying to find a medication to control her seizures and the link to these episodes. Everly’s fight is not over. We need big prayers!! God has opened so may doors for us to be here. Everly is a blessing and a true miracle. I will keep you all updated. Please keep sharing Everly’s story and asking friends and family for prayer for my girl.


Chris and I need help. Our baby girl Everly started having seizures 5 days after coming into this world. Since then they have only gotten worse and we need serious help before it’s too late. We are in the middle of a Government shut down and for those who know us, know my husband works for the Government. We need to get our Everly out of Corpus Christ and with a team that can help us. Everly has been here for 6 weeks and I still don’t know my baby girl. There’s something wrong and we need to move fast. If you can help please donate or please just pray for my baby and my family. Thank you.  Our testimony is below. 

Our Everly

This is my favorite story and it’s about my favorite girl, Everly. November 2017 is a November I’ll never forget. Chris had just got home from working a day shift and was happy to share some news he had learned at work after talking to some co workers. This was unusual cause I normally have to pull information out of Chris with a million “ what else “. So he shared that he was talking to a couple of guys that had vasectomy reversal and Chris wanted another baby ! I knew we wanted another baby, I just thought we would foster to adopt or that one day God would just give us a baby... this was not the way God was going to work this out is what I thought. WRONG!!! So I started with “ You’re crazy haha” Chris looked at me and said “ I’m serious. I got the Doctors name and I’ve read his testimony; you need to look him up.” I brushed what he said off and kept on with our nightly craziness of chasing three boys around. Later on that week Chris said “ Julie, I really want another baby. I want to go see this Doctor. “ Again a nervous laugh came over me and I said “ My doctors said I couldn’t have another c-section. We need to pray about this ( let me pray about it is a nice way of saying NO! But I thought it would buy me sometime) . I need to ask my doctor if I’m healthy enough for another baby.” Chris said “ Call your doctor  and let’s pray about it.” But I already knew this was not the way God was going to bless us with a baby... I was sure of it. 




So I gave it a week and my heart started to soften at the thought of my husband wanting another baby... he wanted another baby with me and he’s an amazing father. What’s wrong with me to even second guess him? So I prayed and called my doctor. It was thanksgiving week and when I called I don’t think I was ready for a direct answer and lucky me, she was on vacation and I left a message.  ✅ I called the dr, now let’s just wait for her to tell me NO!! During that week I brought up concerns about paying for this procedure. I told Chris we hadn’t saved for this and the savings we had was for his Gym. “ Do you want to give up your Gym for this surgery?!? “ Chris, “ Yes!” He is serious!!! So I prayed and told God “ if this is your will, my doctor will say I’m healthy to carry another baby.” I closed my prayer and left it in Gods hands. 




November 27, 2017 we received a call from my doctor and she said “ You are healthy to have another baby. If your plan is to grow your family then you should.” Chris was right next to me when I got the call and excitement quickly came over his face and I was excited too!!! We called the Dr to schedule his reversal and quickly knew God had a plan for us. 




Gods hands in this process was evident to my husband way before I started listening but when we both were paying attention as one, we could see Gods face all over His plan for Everly. Before calling we had discussed a date, I told Chris December 15th would be a great day for surgery. He could take a 4 day weekend without having to use leave from work and I was already scheduled for vacation. When we got to that conversation with the DR’s nurse she had told us they were booked solid till February . I looked at Chris and said we will figure it out in February. He nodded his head and we never mentioned “ our plan” to the nurse. The nurse was silent for a min and over the phone Chris and I heard “Wait, I do have December 15th at 8am open?” Chris and I had a GOD MOMENT. We looked a each other and again knew we were doing what was planned for us. Schedule!! Well our next GOD MOMENT was not far away.  

After scheduling our appointment we made a deposit for our surgery and we were asked to bring the remaining balance in the form of a cashiers check. I manage our finances and again wanted go over and make sure we had enough in savings to cover this surgery. Remember our Gym savings fund? The amount we had saved for our home Gym was the exact amount needed for Chris’ reversal surgery!!! Hello GOD!! 




Fast forward several months. Again, I had a plan and God laughed. I had planned we would get pregnant somewhere around June and we would welcome a new baby in a new year. I didn’t want to have a baby in November or December. I work at our church and work is extremely busy during the holidays. Again, my plan, Gods entertainment.  Everything I had researched had said don’t expect any positive pregnancy test before 6 months, perfect!! June, 6 months, baby in Feb!!!! April 3, 2018 while buying birthday cupcakes for Kye Liam’s (our 3rd son) class, I also picked up a pregnancy test. I just didn’t feel myself and maybe I needed to check. I wasn’t really thinking I was pregnant but now it was possible. Test... waiting... looking.... waiting... POSITIVE!!!! But it’s not June!! When am I due? December 12, 2018. Almost one year to the date of the surgery. 




The desires of our heart was to have a girl but I knew with our record of three boys.. odds were against us. I didn’t get my hopes up and I’m a boy mom. God made me to be a boy mom. I’m not even sure I know how to handle a girl..‍♀️ Well I decided to surprise Chris and find out the gender of our little baby before our  20 week sono. June rolled around I went in for labs and kept this secret for two weeks. I tell Chris everything... even things he shouldn’t know about me.. I tell him!! This was hard... I felt like a liar... I don’t like liars but this was worth it. I called my doctors office to check on my results and the nurse read “ Your results show you are pregnant with a girl “. I felt like I had  just blacked out... like I didn’t hear what just came out of her mouth. I repeated what she said and she confirmed. I burst into tears and ran into my coworkers office. We both cried and thought of ways to share the news with Chris. Yes, I told someone else before telling Chris. I was an awful person in June. So, I bought a cute little “ Daddy’s Princess” outfit and put it in a bag for Chris. I sat all our boys down and Chris opened his gift . “ Why is there pink in here?!!! Are we having a GIRL?!!” Behind the camera tears rolled down my face. We got our GIRL!!! 




Fast forward again. November came and almost went. I was 37 weeks and ready to have a baby whenever GOD was ready. November was the slowest month of 2018. I was miserable and in pain. November 27, 2018 I woke up at 230am to my water breaking!! Finally!!! She’s coming!! At 530am I was rolled back to the ER and at 5:54 am on November 27, 2018 Everly Kay Day joined our family. Exactly one year to the date of scheduling Chris’ surgery. Hello GOD!! 




Everly Kay is our favorite story, our favorite testimony and our favorite Girl! 




On December 27th, our girl was diagnosed with epilepsy after several seizures. It’s heartbreaking watching your kids hurt but it’s a whole new feeling watching your baby have a seizure. Her diagnosis stung but Chris and I trust in the Lord and know he is with us. We’re going to get through this. Last night, Everly had three seizures in one night.. this is abnormal for Everly. As much as I hated her seizures, I wanted the one seizure a night back. I wanted that abnormal that had become our normal back!!! I’m scared and worried about my girl. I packed up my girl and brought her into Driscoll to be admitted and monitored again. Looking for answers and looking for relief from a doctor. But while in the ER, alone with my girl, I remembered. My Everly is in the hands of our Lord. God gave her to us. God blessed us with Everly. God said to us, “ I have this special girl that I want to give you. Will you take care of her for me?” Chris and I said Yes. Our hearts hurt, our chins quiver and our eyes leak from the unknown but our faith is in our Lord, Jesus Christ. He will get us through this and He will take care of our favorite girl.
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  • YveTte De la Peña
    • $50 
    • 5 yrs
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Organizer

Julie Day
Organizer
Corpus Christi, TX

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