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A Cure for India

$11,600 of $10,000 goal

Raised by 120 people in 7 months
In November of 2016, our one-year-old daughter India was diagnosed with a rare disorder called Portal Vein Thrombosis. After several hiccups along the way, we were finally able to schedule time with a doctor who is known for pioneering and perfecting the cure for her condition (the Meso Rex Shunt). Going forward, our largest obstacle will be that the doctor is located in Chicago, and we would be required to stay there for minimum of four weeks for labs, the procedure, recovery, and follow-ups.

Our insurance will cover India's surgery, but my wife and I will need to take unpaid time off to be with her. During this time, we will need help covering related costs not covered by insurance, such as travel and living expenses. The procedure will take place near the end of August, so we have a short amount of time to save and raise the funds.

We are incredibly grateful for your friendship, kindness, and generosity. We sincerely appreciate any support you can offer, especially your prayers for India. Your contributions will allow us to focus our time and attention on India's surgery and recovery. Thank you from the bottom of our hearts.

How you can help today:

1. Donate what you can; no amount is too small!

2. Share on social media with the hashtag #CureforIndia

3. Help spread the word

A little more background...
For those unfamiliar with India’s condition, Portal Vein Thrombosis is the doctor’s fancy way of saying that the vein that brings blood from the digestive tract to the liver is blocked. None of the doctors are able to explain why it happened, as none of the typical culprits were present, so we have tried our best to manage it until it could be fixed. Luckily, our pediatrician noticed that her spleen seemed to be enlarged and ordered an ultrasound, ultimately ending in an MRI, a biopsy, and her diagnosis.

Since January of 2017, India has endured:

· 2 GI bleeds with two hospital stays of 8 and 9 days, respectively
· 2 Endoscopies with Sclera Therapy
· 1 case of bacterial pneumonia
· 2 PICC lines and two rounds of IV antibiotics administered at home
· 1 Cardio Catheter Procedure

Through all of this, India has continued to grow and develop. She loves her baby brother, Elmo, dancing to music, and being read to. We are hopeful that with the Meso Rex Shunt procedure, India will recover fully and be able to lead a normal life!

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India was discharged today around 1pm. She hit the last of her milestones the day before, so after days of asking, she was finally able eat some actual food. We are super glad to be home. Thank you all for your continued prayers and good thoughts. Happiest of holiday seasons to you! ⛄️
India riding her way to freedom
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India’s surgery went very well. She had one band of scar tissue at her belly button and the intestine managed to wrap itself around it and get knotted. They removed it and everything else looks good. Hopefully recovery will be smooth. We didn’t think she would be back in the operating room, so this was a big surprise. Thank you all for the good thoughts and prayers.
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After 3 months of awesome news about India, we finally hit a snag. After taking India the emergency room for what we thought was a stomach bug on Monday night, we learned that she had partial bowel obstruction in her upper small intestine and were admitted by the morning. The doctors said it was likely caused by scar tissue from the PVT surgery constricting the affected area.

We have been in the PICU for the pas four days hoping it would clear up on its own. Although she seemed to get a little better each day, the doctors indicated that they hadn’t seen enough of an improvement, and scheduled her for an operation later today. The doctors aren’t really sure what they’ll find when they go in, but if all goes well, it should only take a couple hours.
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We have officially completed our first three months with great progress and a positive outlook for moving forward. The doctor seemed excited by her progress, but wanted to continue monitoring her progress because the modified shunt he used was rarely done, so we will be heading back in a few months for another check-up.
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$11,600 of $10,000 goal

Raised by 120 people in 7 months
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$25
Michelle Grewal
5 months ago
$25
Carrie Blaschke
5 months ago
$50
Trey Gillette
5 months ago
MF
$100
Mike Fratto
6 months ago
$50
Anonymous
6 months ago
$50
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6 months ago
$50
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6 months ago
JS
$100
Jan Schendel
6 months ago
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7 months ago
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