Wolfram Syndrome Awareness

$4,491 of $15,000 goal

Raised by 50 people in 50 months

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Megan was diagnosed in January 2014 with a rare genetic disorder called Wolfram Syndrome. Our goal is now to raise awareness of this disorder and more importantly, funding for treatment.

Megan is entering a clinical trial for a potential drug to slow the progression of her Wolfram Syndrome.

We will be required to travel to St. Louis ten (10) times over the next 6 months to be a participant in the study.

We are fundraising to cover the travel costs. All funds received will be applied directly to these expenses. Any funds received above the travel costs will be donated directly to the Snow Foundation for research and any clinical trial needs.

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Ben P Sheargold
24 months ago

Awesome work Mrs Mac!! !! Have shared this campain

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$4,491 of $15,000 goal

Raised by 50 people in 50 months
Created May 17, 2014
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$100
Anonymous
5 months ago
TH
$25
Taylor Hoskins
14 months ago

Praying for peace and strength Megan. Taylor Hoskins ( I used to sing with your Dad many years ago...lol)

SB
$30
Stacey Brooks
14 months ago

Best of Luck on this journey!

MB
$100
Mark Bearby
15 months ago

Thinking of you.

Ben P Sheargold
24 months ago

Awesome work Mrs Mac!! !! Have shared this campain

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