Wolfram Syndrome Awareness

$4,261 of $15k goal

Raised by 45 people in 35 months
Susie Mackanos  GROVE CITY, OH

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Megan was diagnosed in January 2014 with a rare genetic disorder called Wolfram Syndrome. Our goal is now to raise awareness of this disorder and more importantly, funding for treatment.

Megan is entering a clinical trial for a potential drug to slow the progression of her Wolfram Syndrome.

We will be required to travel to St. Louis ten (10) times over the next 6 months to be a participant in the study.

We are fundraising to cover the travel costs. All funds received will be applied directly to these expenses. Any funds received above the travel costs will be donated directly to the Snow Foundation for research and any clinical trial needs.

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Ben P Sheargold
10 months ago

Awesome work Mrs Mac!! !! Have shared this campain

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$4,261 of $15k goal

Raised by 45 people in 35 months
Created May 17, 2014
BB
$50
BARBARA BLIMM
26 days ago
DY
$50
Donald Yaros
27 days ago
MB
$100
Mark Bearby
28 days ago

Thinking of you.

BB
$100
Bertha Bearby
1 month ago
SB
$100
Scott Bearby
1 month ago
SE
$100
Scott Van Eman
1 month ago
$100
Anonymous
4 months ago
GI
$100
Georgiana Inskeep
5 months ago

I love you, Megan & Susie. Will send more later

EH
$100
Eric and Angela Hills
5 months ago
MH
$100
Matthew Hills
5 months ago
Ben P Sheargold
10 months ago

Awesome work Mrs Mac!! !! Have shared this campain

+ Read More
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