Wishes for Wyatt's Recovery
I wanted to clarify some things about when Wyatt gets ill enough that he needs to go to PA.
We have been extremely fortunate to have Angel Flight NE on our side. Many, many times have they found volunteers to fly us into Pittsburgh when we needed them the most.
This time, it is with Wyatt’s best interest that we are waiting for our insurance to approve a medical flight with bed to bed transfer. Which leaves us in RI until all of it is approved.
With that being said, I am unable to determine an exact date that we will leave.
Once we get to PA he will have a hospital room and I choose to stay with him so that I can be close and advocate for him since he can not speak for himself, besides, who knows him better than me.. no one.
The Ronald McDonald House is fantastic! We have used them time and time again. Our last visit wasn’t as fantastic as previous times. Due to lack of communication etc., it was difficult to check out during an extreme emergency that could have cost Wyatt his life. (I try not to think about that) Since then, I have done everything I possibly could to avoid using their services.
There is a waiting list to get in there, so even if I submit an application it could be a week before a room is available. When this happens I have had to seek lodging elsewhere. Even with other non profits it has cost me at least $60 a night for a room, plus I needed to pay for a cab or rent a car to get to and from the hospital. With car seat/stroller and Wyatt. If I did get in to RMH I would have to stay in the room every night while Wyatt is in the hospital or I run the risk of losing the room and that’s just not going to happen. I stay where Wyatt stays.
Thankfully these days I have an absolutely amazing friend who lives 30 mins from the hospital, Libby LOVE YOU! Who opens up her home to Wyatt and I when he’s discharged but has to stay in the area. I still need to purchase food and pay for a car to travel back and forth to the hospital for check ups and to get released back home.
It has always been extremely difficult for me to ask for help. I hate doing it. I have been unable to hold a steady job since Wyatt was diagnosed in 2014. Between FMLA running out and my position given to someone else, to missing too many days of work because Wyatt gets hospitalized.
To those of you who have helped us, I just want to say how grateful I am to you.
This past month has really got me in a bad place. I’m trying my best to stay strong and be there for my son because that’s my job. I won’t be on fb much unless it is to update Wyatt’s page. Should you have any questions or concerns please contact my mother, Anna Marino as my focus is on Wyatt and making sure these doctors do what is expected of them to help prevent this from recurring.
Thanks! Sorry for the long post!
My prayer's and love are with you each and everyday Wyatt. Stay strong you beautiful, handsome lil one♥♥♥♥ XXXXXX OOOOOO
How is little man doing today I wish I could give praying that him
I pray for Wyatt all the time and Nicole & Dave and his whole family. I send my love & prayer's & thought's to them with this long road ahead of them. I hope & pray that Wyatt receives a liver soon, so he, mommy & daddy may go on the way to a wonderful, successful speedy recovery. May GodBless Wyatt and his whole family. Wyatt stay strong lil guy♥♥ And Nichole & Dave also and Alway's Positive Thinking! Love You All, Gail Rowe
Thank You Very Much keeping me up to date on how Wyatt's doing, I Love That Beautiful, Handsome Strong Boy♥♥ Love You, Wyatt XXOO
I would like to thank everyone for your donations, it is so very helpful . THANK YOU