Happy New Year! Hard to believe another year has passed. The Holidays always bring back memories of Trey beginning his battle, his first chemo treatment was 5 days before Christmas and today didn't seem to exist back then. But here we are and life is very good. Trey had scans on December 30th and they came back clean. We had one minor scare as they sent us back for one x-ray because a dot was showing up on his lung but it was his scapula in the way. Trey has to get an IV for dye when they do the MRI. This is no minor procedure, he will tell you he won't go, you will fight him to get out of bed, he will lock the doors to the car when you get to the hospital, you will drag him to the oncology clinic, wrestle him into the chair to get the IV, the nurse will wipe his arm with the alcohol wipe and tell him not to breath on it as he blows on it vigorously. He will say he is ready, then try to bolt for the door, at which point Jen holds his legs so he won't kick the nurse, Ty puts him in an arm bar, holds his head and covers his mouth so he won't spit or head-butt someone. The nurse is quick, gets it in and Trey looks at everyone like "Hey no big deal, Mom, Dad why you breathing so hard". As hard as it can be at times it is comical as well, Jekyll and Hyde. This last appointment was another milestone as it was the last scan on the 4 month interval. He now goes to scans every 6 months for the next 2 years and possibly moving to the Hope (Helping Oncology Patients Excel) clinic for survivors the second year. Wow! He still has some hurdles ahead but we couldn't feel more blessed and grateful for where he is. As always he is busy, busy. Played flag football and soccer in the fall, is doing wrestling and basketball now and as it warmed up the other day he said he needs to start working on his pitching. This summer Trey was picked up by the Regis University men's soccer team as part of Team Impact, which pairs College teams with kids who have had life threatening diseases . Trey of course made fast friends with many of the players. He signed a letter of intent and agreed to the terms laid out by the Head coach. It has been a great experience and it lasts for 2 more years! Jen is going to Orlando, Florida on Wednesday to run in what is called the "Dopey" Challenge as part of a fundraiser for Give kids the World which is where we stayed on Trey's make-a-wish trip. She will run a 5K race on Thursday, a 10K race on Friday, a half marathon on Saturday and finish with a full marathon on Sunday. Yes, what the heck is right, she is a little crazy but she has done very well raising money for GKTW, plus it's in Florida. She says it will be her last but don't bet the farm on that.
We hope you had a happy holiday season and wish you the best in this New year.
Summer has come and gone and Trey is ready to start 2nd grade tomorrow. He is excited to start school as well be with the teacher he has this year. He had a great summer playing baseball, riding his bike and playing outside as much as possible. He got in some Rockies games, a trip to water world and to Houston to see Grandpa and Grandma Tatham. His health is very good, and had scans a couple of weeks ago which were clean again. We had a little wrestling match getting his IV in but 4 adults were able to hold him down with only minor injuries. He always says "Well that wasn't so bad" and apologizes to everyone, so that helps with it. He will have his next scan in December then we will go to every 6 months. 2 years of those and he will move into the surviorship program which is odd to write for a then 10 year old. The feeling of how blessed we are has not faded and how much support we had and still have as so many of you ask how Trey is. Thank you so much. Hope you and yours are all well. God bless.
Hello, hope this finds you enjoying some spring weather. Trey had surgery about 2 weeks ago to reconnect his damaged facial nerve to a nerve in his tongue (Hypoglossal) to help relieve some of the palsy symptoms on the left side of his face. This was more for aesthetics moving forward than any functional need. The surgery was about four hours and he spent the night in the hospital. Trey's ENT doctor is #1 or #2 (depending on which poll you read) in the country so we feel very lucky to have Trey in his care. Dr. Chan and Trey have slowly developed a friendship as Trey is not fond of anyone who pokes around his ear but he has warmed up to Dr. Chan in the past year. Dr. Chan performed the biopsy way back when this party started and had the difficult task of telling us that it was something to be concerned with. He has become more than just a doctor for us like so many other's at Children's. We are blessed and grateful to have such great and caring people for Trey. The day after the surgery Dr. Chan informed us that Trey would need to abstain from bike & scooter riding, jumping on the tramp, and any contact sports/rough housing for 3 weeks. Uhhh so do you want to tell him that or is there someone who can because that won't sit well with him. 2 days after we got home he was on the tramp in wrestling match with 1 of the neighbor kids so we had to breakdown and offer up the xbox to slow him down. His scar is pretty noticeable right now and he likes to tell people he fought a ninja-bear in the alley by the ice-cream store. The effects of the surgery will take time and change as he continues to grow but as you can see in the pictures there are some subtle changes already. When Trey gets anesthesia we try to get as much done as possible so he had his scans and blood tests done, which all came back looking good. We tried to work in getting his finger and toe nails clipped but that isn't in our insurance network. He continues to stay very busy with activities, and loves school. His next set of scans will be the last of the round at 4 month intervals and then he will go to every 6 months for the next 2 years. Amazing to think of where he is from where he was. Every day is not good but there is good in every day! Take care!
Happy Thanksgiving to all. We have so much to be thankful for, our families, friends and so many others who have touched our lives in so many ways. We hope you have a wonderful day. Trey had scans today and they came back N.E.D., no evidence of disease. Always an incredible feeling, never to be taken for granted. He has grown 3 inches and gained 5 pounds in the last 4 months which is great. His feet seem to be exploding as he has needed new shoes a few times these past few months. Today was also significant as it was the first time he has done scans without anesthesia, so nice to leave without that hangover. He is also now 2 years post treatment!! He finished up concurrent soccer and flag football seasons and is moving in to wrestling and basketball. Not sure how those two work together but he enjoys them. He is hard to slow down, which is a blessing as well. School is going very well and he loves his teacher. He told the doctor today that math and reading are his favorite subjects, hopefully it will stay as such. Attached is 1 of 2 commercials Trey did as an ambassador for Children's Hospital with a local Subaru dealer. These have appeared during Colorado Rockies and Colorado Avalanche games. It is funny when people tell us they saw Trey on TV. He has no idea!! Have a wonderful Holiday season.
Trey had scans yesterday and thankfully they came back clean again. At the end of September he will be 2 years out from his last treatment. Hard to believe it will have been that long. He is doing pretty well, a few minor bumps in the road. In March he got a tooth infection that got pretty bad and had to spend 3 days in the hospital. Then in April he got a flu bug and just got so dehydrated he spent another 3 days in the hospital. More tales for the legend of Trey. As you can see from the picture he has been out and about in his role as an ambassador for Children's Hospital. He was a little nervous when he had to walk out for the Avalanche fashion show, but Coach Mario helped him make it. He was at the grand opening of the Ryan Secrest Studio and movie at Children's. Got to rub elbows with Ryan. But the highlight was meeting Todd Helton, former Rockies player. Trey was in the middle of baseball season and was speechless, which if you know Trey is doesn't happen often. He couldn't stop talking about meeting him. He got to help lead the parade of Rockies Rookies out on to Coors field at a game and told Mom & Dad who each player was as we past them or during the game. Whatever sport he is playing he is fully immersed in, watching games on TV, finding highlights on youtube or playing it with his brother. He does not want to miss the All-Star game tonight! He also enjoyed free Slurpee day with his brother and sister, summer is good. He is also going to STEM summer school, (science, technology, engineering and math) and has a fabulous teacher. He will be starting 1st grade here pretty soon and really loves school. His next scan will be in November and hopefully his first without anesthesia as the recovery afterwards is not fun, very agitated. Thanks again for all of your support and enjoy the rest of the summer!
Trey had scans on Wednesday and they came back clean again. The doctors feel like he is doing very well and his recovery is coming along nicely. He is doing very well in school and stayed busy this winter with wrestling and just finished basketball. He took a trip to Florida with his brother, sister, grandma D, cousin Morgan and mom to watch mom run a marathon. The race was a fundraiser for Give kids the World, and included a trip to Disney World. Not a bad trip in January. Trey is also going to be a cancer ambassador for Children's Hospital. We don't know many details but he has a kick off luncheon at the Denver zoo Saturday and a fashion show with the Colorado Avalanche at the end of March. One sad thing that we experienced is that two of the people who gave a lot of care to Trey are sadly moving on our main nurse Kerri move to a new Children's location and Dr. Lindsey is going to Cincinnati to do some other research, they were both awesome throughout Trey's treatment. We will miss them. Prayers for strength to everyone affected by cancer.
Well Trey had scans on Monday and thank God they came back clean. This marked 1 year after the end of treatment, so it was certainly special. Where has the time gone?? He will now have scans every 4 months with his next in January. As you can see he is doing very well, as are his brother and sister. His hair is getting very dark black as it used to be more dark brown. He has finished speech therapy, which went well. He is getting stronger and is force to be contended with in sibling wrestling matches. He started Kindergarten and is very aloof when asked if he likes it. He loves it but cool guys gotta keep it on the down low ya know. He has been told that recess and lunch do not count as subjects when asked for favorites. He is busy this fall playing both soccer and flag football and likes to practice both in the living room with complete disregard for anything fragile. If mom shuts down practice he likes to record college or pro football games and make dad sit with him and break the film down to pick up tips or tell dad how Peyton Manning could be better. Jen is training for a marathon in January in Florida. The marathon is a fundraiser for Give kids the World village, which is where we stayed during Trey's make a wish trip and hosts families from all over the world. She is trying to raise $3000, which will help benefit more families staying there. It is an amazing place, with many amazing people. In addition Tommy, Taylor, Trey and Jen will volunteer to work at GKTW for one day while there. Here is a link with information and if you wish to donate. https://www.firstgiving.com/fundraiser/JenniferTatham/wdwmarathonweekend2014#.UcMY2VyCgTQ.facebook
Thank you for your continued support and God Bless.
Summer is here. We had a great time on the Make a Wish trip to Orlando as you can see in the picture. Trey and family were treated like kings and we were spoiled more than being at Grandma's house. The place we stayed is called Give kids the world and the title fits. Ice cream all day, 2 pools, dining room, disney character visits, train, minature golf and parade's almost everyday. As you can see the house's are made to look like a fairy-tale village which the kids love. It hosts families from all over the world who are on trips like ours. We managed not to run ourselves down while doing as much as possible. 2 of the Disneyworld park, Sea World and Universal. Lot's of walking, which helped to work off all the food. Trey started his trip to Disney and decided he could ride Space Mtn. Well, he had fun for half the ride and then he wanted it to stop. After that if he couldn't see what it did he didn't want on it. As you can see we had front row seats for the Shamu show as you can see. Great seats for most of the show and then at the end 3 of them pulled up and showered us with 3 waves of water. Drenched would be an understatement, but it was worth it. Trey got to take on Darth Vader and use all those sword skills he and his brother have been honing for years. Afterwards he got to meet Darth and get a picture taken with him, not to close thou since he is a bad guy. It was really nice to see everyone have a good time and a great experience for our family. We would never be able to say thank you enough to those who made it possible. We are very grateful for the trip and humbled at the same time as we met many other family's who went through as much or more than us. Trey is having a great summer playing baseball (just ask him he'll tell you how good he is), going to summer rec and hanging out with his big brother. He has scan's this next week and we pray they come back as clean as his plate on Mac & Cheese night. God Bless!
Summer is almost upon us! Trey has found out who his kindergarten teacher will be next year and is very excited. He is ready for summer to start but more on that later. In the picture is him and 2 other boys who are going to be part of "Frank's Ride" on Sunday. This is a fundraiser for the Make-a-wish foundation and the ride is a sponsor for Trey's make-a-wish trip. His helment is custom fit with signatures from Frank's Ride board members. On Sunday Trey will ride in a side car. About 400 other bikers will be there and will tour 4 northern Colorado watering holes for brief stops. It finishes up at Anderson Farms with a BBQ and music. Very exciting and humbling to say the least. We met some great, caring people the day the picture was taken. It should be an adventure. When school ends next week, we have a few hours to get ready to go on Trey's make-a-wish trip to Florida. He picked DisneyWorld and we get to stay at a great place called Give kids the world. There is not much they don't have there and Trey was very excited when he found out they start serving ice cream at 9am in the morning (*see below)! He can't stop talking about seeing Mickey Mouse and hopes to see a gator! He is very deserving of the trip and we are so grateful to everyone who has made this possible. Trey had some dental work done last week, as he still has some issue's with his teeth from treatment and his lack of brushing (uh ice cream for breakfast, okay maybe once). The dentist has to have Trey knocked out as he won't sit still and fights like the Tasmanian devil. He bounced back pretty well and was playing soccer the next day. He is finishing up flag football and soccer, and is starting baseball. No rest in him. It's gonna be a great summer! Hope things are good in your neck of the woods.
Good news Trey's last scan was clear, his next one is in June. He is doing very well and is continuing speech therapy to help with nerve damage on the left side of his face. He is busy with school and sports. He is playing soccer, flag football and will begin baseball in May. Busy is an understatement for him. He would do more but there are only so many hours in Mom and Dad's day. Trey is looking forward to his Make-a-wish trip in May to DisneyWorld. As you can imagine his popularity has risen with his brother and sister because of this. It should be a great celebration for our family and all he has endured. Trey's t-ball coach, who works for 9news in Denver put together a great story on Trey. It included his friend Sam who is a great inspiration with an attitude like Trey's. It's a good thing they go to different schools or some teacher would be in for ride for sure. Here is the the link to the story. God Bless! http://www.9news.com/sports/article/330602/345/Five-year-old-battles-Cancer-with-Sports
Trey was diagnosed with Rhabdomyosarcoma on December 12. This is a soft tissue cancer which accounts for 4% of all childhood cancers. 350 cases are diagnosed each year in the United States and the majority of these are in children younger than the age of 9. Forunately for Trey the Cancer is only located in his ear canal and nowhere else in his body. He has a long road of treatments and tests ahead of him but with your words of encouragement he will make it.