Treating Karyn Devinney's Lyme Disease!

$8,938 of $30k goal

Raised by 44 people in 35 months
Jennifer Devinney  SILER CITY, NC
My sister Karyn has always been my hero and my best friend. I always looked up at her with wide eyes taking in everything she did, and using her to mold who I wanted to be. The last time I remember ever seeing my sister healthy was my sophomore year of high school. We were playing doubles tennis at the school and everything was perfect. The very next morning my mom woke me up crying telling me that something was wrong with Karyn and they were taking her to the hospital. When I asked her if my sister was going to be okay, she told me she didn't know and some how I knew this was going to be a long struggle. It turned out Karyn had a severe case of vertigo. At this point in time the doctors at Duke hospitals diagnosed her with vertigo and nothing else, but really this was the first time Lyme's Disease launched a severe attack on her body. It wasn't long after this that Lyme's Disease first came to our attention. We sent off the blood work to be tested for Lyme and it came back negative. Because of that test we never looked back at the idea of Lyme, instead we kept hunting for answers of why Karyn was so sick.
In the months and years that followed Karyn continually got sicker. She visited some of the best medical facilities in the country, including both Mayo Clinics and John Hopkins. Doctor's told her it was just vertigo or Lupus or Ehler's Danlos Syndrome; but none of the diagnoses ever matched her symptoms completely. Karyn was getting alarmingly sicker and eventually our parents had to move so that they were closer to her and could help take care of her. From there on out the escalation of the disease was alarming and all of her family began to really fear what was going to happen next.
A year ago, in October, I was visiting my sister and we were getting things ready for our annual Halloween party. That night after we went to bed my sister woke me up clinching her chest telling me that I needed to call Mom, because she needed to go to the hospital. One ambulance trip later and many hours in the hospital she was sent home again with no answers of what was happening to her. She had been to so many doctors so often that the doctors she visited just came to believe that everything she felt was psychosomatic.

It wasn't until this year that Lyme's Disease was brought to our attention again. We learned that the test she took all those years ago was inaccurate. We went to a Lyme specialist who claimed that Karyn was a very classic case of Lyme's Disease. From this point on things seemed to move so quickly. Karyn was quickly diagnosed with Lyme's Disease and put on antibiotics. At this point Karyn is on IV antibiotics about seven hours a day six days a week. Because Lyme's Disease is not recognized in North Carolina, insurance is refusing to pay for anything involving Lyme. Just the antibiotics themselves are around $3500 a month, and this is not including doctor's appointments, the home nurse or physical therapy. This is why we are calling on the community's help. We have not had any hope of Karyn getting better since she got sick all those years ago. This treatment can save her life in more than one way; it can keep her alive and re-gift her the right to do anything she wants with her life. Thank you so much for taking the time to read her story, and please keep her in your thoughts and prayers.


The Treatment is Working!

UPDATE 11/18/2013: Karyn is getting less migraines and can officially read large print books


UPDATE 11/21/2013:Karyn was actually able to make cookies yesterday for the first time in a while! But the medicine she is taking is making it hard to sleep so please keep her in your thoughts.
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Update 34
33 months ago

I hope everyone is having a good weekend. Let's try to get some more shares and get Karyn's Story out to more people!
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Update 33
33 months ago

Happy Wednesday! Thanks for all the contributions, let's keep it up! Every penny helps!
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Update 32
33 months ago

Happy Friday! Thanks for all of the donations, let's keep it up!
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Update 31
33 months ago

Happy New Years Eve! Let's celebrate the new year by getting Karyn well again!
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$8,938 of $30k goal

Raised by 44 people in 35 months
Created October 31, 2013
DM
$88
David Misenheimer
30 months ago

Thanks for sharing your story. We are hoping for your return to good health.

$25
Anonymous
31 months ago
$50
Anonymous
32 months ago
FM
$50
Frank Moore
33 months ago

Jennifer, I've experienced an encounter with Lyme's disease once before. I was lucky. Diagnosed after three mos., but like you, I gradually got worse and was feeling oh so bad. Hey, hang in there young lady. It WILL get better. Happy, Healthy, & Prosperous New Year to you.

$25
Anonymous
33 months ago
CF
$3,835
Community Against Lyme Fundraiser
33 months ago (Offline Donation)

This was our total profit from our BBQ & auction fundraiser which took place in Pittsboro on December 14th. Thanks for all who came out to support us.

$10
Anonymous
33 months ago
$75
Anonymous
33 months ago
$25
Anonymous
34 months ago
$25
Anonymous
34 months ago
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