Thomas's Fight

$21,691 of $1 goal

Raised by 126 people in 40 months
Marie McGillycuddy   WEST ROXBURY, MA
Thomas Lane was born June 28, 2012 with a rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARKPD), which causes enlarged cystic kidneys. ARKPD affects approximately 1 in 20,000 babies and sadly there is no cure for ARKPD, only treatment with dialysis and transplantation.

Thomas resides in West Roxbury, with his Dad, Danny Lane of Milton, and his Mom, Johanna (McGillycuddy) Lane who moved here from County Kerry, Ireland and grew up in Dorchester. Thomas also has an older brother, Daniel who is 2.


Thomas is our little hero and has quite the battle ahead of him. He has spent the majority of his life hospitalized and has undergone several major surgeries including nephrectomy, a tracheostomy and several feeding tube placements. Currently Thomas relies on a ventilator 24 hours a day in order to breathe due to lung complications. Unfortunately Thomas also suffers from Caroli Syndrome, a cystic disease of the liver, which effects 1 in 1 million people.


Along with needing a kidney transplant Thomas will eventually need a liver transplant. Throughout this past year Thomas has been nothing but a superhero. Please join us to support Thomas and his family and together we can help fight Thomas's Fight.


https://www.facebook.com/ThomassFight



Note: The person in charge of this page and online fund is Marie McGillycuddy, one of Thomas's many Aunts and Johanna's sister. If you have any questions please do not hesitate to contact me.


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Update 1
38 months ago
Today is a very special day. Thomas turns 1!!!! He and his family have had a very hectic and at times scary year. We are so very thankful for this beautiful life and to celebrate today his birth and his continued journey! Thank you all so very much for your kind words and generous donations. Words can never express our gratitude.
Many Blessing and Love,
Marie on behalf of Thomas and his family
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$21,691 of $1 goal

Raised by 126 people in 40 months
Created May 14, 2013
JM
$50
Joseph McGillycuddy
29 months ago

Keep up the good work and god bless from Joseph & Katrina.

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KK
$500
Katy & Ray Kenney
31 months ago

We are always thinking of Thomas. We send lots of love and pray that Thomas gets stronger and stronger every day.

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JS
$150
JF Electrical Service
32 months ago
CB
$100
Cathy Boyd
32 months ago

Thomas is in my prayers and so are you.

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$100
Anonymous
32 months ago
$50
Anonymous
32 months ago
PM
$25
Paula Melchin
33 months ago

God bless Thomas! Prayers for your family.

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SG
$25
Shannon Gallagher
33 months ago
$100
Anonymous
33 months ago
GM
$100
Gene McGillycuddy
33 months ago

We are all looking forward to meeting Thomas one day and wishing him a speedy recovery. He is a very brave little guy.

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