Let's Overcome & Beat Lyme Disease

$22,910 of $1 goal

Raised by 227 people in 32 months

Perhaps gifting and greatness are proportionate to the corresponding odds of affliction? Famous 19th century British actor Max Beerbohm is quoted as saying, “I have known no man of genius who had not to pay, in some affliction or defect either physical or spiritual, for what the gods had given him”.

Rachelle Lahelao’nalani has been richly blessed, and she has devoutly shared the attributes of her beautiful soul with countless people since her teenage years. Born and raised in Hawai’i, she lives by and shares the Aloha of pure and unconditional love. Giving, understanding and acceptance, have always been the hallmarks of her existence.
 
Be it spiritual insights and advice, to locating and treating physical ailments, to even probing and explaining the darkness in a patient’s troubled past, Lahela has always touched and encouraged anybody who sought her treatment. Those abilities extended into the challenging realm of professional sport where she was a sought-after masseuse and mentor on the pro’ surfing circuit for 15 years.

Destiny is indeed unfathomable, but after undeterminable and intermittent assaults on her personal health over the past 20 years, it seems the root cause of those considerable attacks has been Lyme disease. Lahela was recently diagnosed with the torrid tribulation, an extremely aggressive bacterium-based infection that attacks the joints, heart, and nervous system. Typical symptoms include fever, sanity destroying headaches, radical seizures, endless fatigue and body strain that extends to every joint and sinew.  

She is stoutly bearing the shocking symptoms of her affliction, but with the accompanying inability to work, Lahela is unable to cope with the crippling costs of treatment for a disease that is not recognised by the Australian government, and therefore is bereft of Medicare support. After a lifetime of giving so much, she now needs to ask for your prayers and, if possible, your generosity.

In the native Hawaiian tongue, the suffix to Lahela’s bestowed cultural name, “onalani”  translates to ‘…open to the heavens’. No truer words have ever been spoken over her. She is indeed – but by necessity, she is now also open to your kindness and support. Mahalo!


“I need help!”

These were three simple words my beautiful friend
Rachelle found so difficult to say yesterday…

Why is it so hard to ask for the support we need
when we need it most?

Rachelle is a meditation teacher, the most magnificent
masseuse and a healer who has contracted Lyme disease.

In the space of a few weeks, she has lost control of her motor functions, is having 10-20 seizures a day and can no longer speak a complete sentence.

Lyme disease isn’t recognised in Australia - so as a Mum of two, with an awesome partner Simon (who is now unable to leave her side for the fear she will hurt herself) they need help and they’re a little desperate right now.

Once she gains some strength back or the seizures slow down, the Goal is to get her to Germany for treatment… until then, they need two types of help;
Firstly, they need love.
Then… they need money.

Nuff said.

If you can only afford the love… then that is simply beautiful, thank you. If you can afford to give some cash… a dollar, or ten (or a thousand), will help in a myriad of ways.

Thank you for listening. Have a magical Christmas/holiday/break?!

And most importantly… love it all, cos it’s so fragile and so precious…

All our love
Zara (& Troy) - Rachelle's Close Clients (Melbourne)


"Mother. Healer. Goddess. Hula practitioner. Writer. Fighter. Lover. These are a few words that define Rachelle. Lymes. This is a new word that doesn't define her, but is now apart of her. Rachelle began having excruciating head pain. She saw her Doctor who took tests and found that her Adrenals weren't producing any cortisol, and she was admitted to the hospital. Since then she has been in and out of hospital three times in a week. She is unable to work, her speech is stunted and daily functions are difficult. 

Over the past decade Rachelle would have random severe ailments that would appear then disappear out of thin air. She thought she was just lucky, that her body self healed; but that wasn't the case. Lymes can live In your body for years undetected. Mimicking other ailments. 

Rachelle was diagnosed with lymes, Australia doesn't consider Lyme a disease that exists therefore treatment can not be covered by public healthcare. 

She has a lyme specialist doctor in which she has to pay out of pocket. This is why we need your help. " - Beatrice Hirota (Hawai'i), one of Rachelle's Closest Friends


"Rachelle Bersamin, 43 years of age, a Mother, Healer, Wellness Practitioner, Writer, Fighter, Lover. Rachelle now suffers from Lyme Disease, two words that shocked us and has changed her life forever. Lyme disease is an infection caused by a bacteria known as Borrelia when bitten by a tick. The disease can impact a variety of body systems and organs, along with mimicking other illnesses. Along with Lyme Disease there a range of other co-infections such as babesia, bartonella, ehrlichia, etc.. Rachelle has faced an immense number of challenges that prevent her from going to work, driving, and even leaving the house. Every day she has 12-14 muscle spasms (very similar to seizures) that last for 15-20mins long, going in and out of consciousness, choking on her own tongue, and the worst part; it can happen at any moment and time. Not only this but Rachelle suffers from short term memory loss, stutters and at times her left leg is paralyzed. She suffers from a bloated stomach 24/7 and can be left in pain for hours on end.

Rachelle faces a number of challenges every single day, whether it be struggling to get through the day (as she mostly has to sleep 18 hours a day) or having to recover from her last muscle spasm. With your support, I know we will be able to help pay for her treatment, rent, and hopefully giving her the opportunity to get treated properly in the US or Germany as it is not recognised well here in Australia." - Rachelle's Son, Koa

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Hi everyone. It's been a long while since we've posted an update. Not that nothing has been happening! So much has been happening and I have been meaning to sit down at the computer and spend some time to share then before you know it, things change. And that's what its been like... inconsistent in so many ways but thankfully, we have little windows of what we (not the average person) would consider 'normality'. About a month ago, Rachelle started on a new treatment regime. A mixture of an aggressive herbal protocol (sourced from the best Lyme literate herbalists in the U.S) as well as antibiotics, weekly physiotherapy, massage therapy, biofeedback and as much organic green leafy vegetables as possible! Even though doctors warned that things may get 'bad', I was still caught off guard when the seizures and blackouts started happening again. Some days I just sat there while she came in & out of episodes, from sunrise to sunset. It's incredibly frustrating looking out the window & seeing a beautiful day just go by...then I look at what she's going through & it brings everything into perspective. Rachelle still mixes up words & sentences on any given day, her ability to perform 'normal tasks' is still nothing like it used to be, adrenals are still not working too well so she is still on steroids. Even though I understand a little more about Lyme disease, I have never got used to the extremes. Some days are absolutely crazy! Other days we take a walk on the beach, then she's in bed for a couple of days, next she's up early doing something productive, then screaming with nerve pain, severe migraines happen every couple of days and she's had a headache now for over 5 weeks, you get the idea.
I really want to say thanks to all of you who have pitched in to help us through this time. Thank you :) & I mean that from the heart, thank you so much. We are still in a spot of financial bother, constantly working toward making ends meet as we journey down this uncertain road. One thing we know for sure is the importance of eating healthy, staying healthy and being diligent.
We've put our heads together during the really frustrating times of 'what are we going to do now?' and started slowing putting our daily practices into something we can share with you all! We've created a local brand to help raise awareness and connect people to the land, the community and others (consciously and ethically). We've been fortunate enough to have such a supportive community and now, we are excited to get things moving forward for us and our family. Something that seemed foreign for so long. Throughout all the hardship, Rachelle (+ the boys and I) have made it a point to keep a positive mindset. Its what keeps us all sane. I have started to realise how much we take for granted in our lives. Now its... stop and appreciate the sunrises, the sunsets, the visiting cat in our garden, the open stretch of roads, being out in nature, having a laugh with friends and eating really wholesome foods. It all matters, not to forget that #loveheals!
So, we would be very grateful for any support on our venture to help keep us all on the healing path as well as sharing a very important message: mālama (which translated from Hawaiian means care, protect, preserve) you can find us on instagram (malamaaustralia) we are waiting patiently for the launch of the website, trying to get things done in those little windows can sometimes be difficult :/ onwards and upwards. We'll keep you posted! Until next time, Simon
one of those 'bad' days
one of the better days :)
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Update: It's been a while since the last update. The reason why I've held off is because our situation has been so inconsistent! It's even been hard for me to understand where our life is at. Guess we know now that this is just Lyme life. Some great days, a few average days & a couple of shockers! I am happy to report that the last week or so Rachelle has improved. Her seizures are down to about 2 or 3 times per week. Her energy levels are definitely better than they were last month too. Hopefully we are through the crazy time! Now that the dust is settling I feel like we have a realistic grasp on where we are right now. The neurological symptoms are still pronounced. Her left side doesn't work too well. Fine motor skills aren't great either. Her speech & cognitive thinking are a far cry from the girl I knew 6 months ago. Her adrenals aren't producing any cortisol. She suffers from fatigue & nerve pain, some nights have been unbearable for her. Apart from all the shit stuff, we actually had a couple of great days. Yesterday we hired a 2 man kayak and I paddled her up & down the creek. Watching her out in the sun & feeling alive again was awesome! This morning I was able to go for a 45 minute surf while she lay on the beach painting. I've become quite intuitive as to when/what's going to happen something I can't explain, I just know. I also can't stress enough how important it is to keep our minds, as well as our bodies healthy. If you're body is struggling physically & your mind has lost the will to push on, it's game over. Some days I used to literally drag Rachelle across the sand (not against her will of course haha) throw her in the water (more like gently ease her into the ocean) drag her back across the sand, into the car & home again. After a beach outing like that, she'd sleep for 2 days straight! But after not being able to leave the house for over a month prior it was totally worth it we reckon! Whatever makes you feel good and healthy, do it. It will keep you alive. During this journey, we've learnt a lot. I would like to share what we've experienced in hope that someone else going through a health crisis, that need not be Lyme, can draw from. We would have done a few things differently if we knew then what we know now. Because attention spans vary & this is about the word limit for most, our next post will be dedicated to helping those that have found themselves in an overwhelming health crisis. I say overwhelming because of the conflicting ideas, treatment plans, different healing mediums & lack of understanding from certain healthcare professionals will have you stirring with emotion, confused ‍♀️ & at times chasing your tail whilst emptying your wallet. Stay tuned, until next time, Simon
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Just a quick update to all that are following Rachelle's progress. I'm feeling a little disheartened today. We've been doing everything right. Diet, treatment plans, doctors, scans, second, third & fourth opinions & had a couple of "better days" last week. We managed to go to the supermarket together & only had to deal with a few scary moments. We found that shopping trolley's are a walking-aid in disguise & felt like things were looking up. Today Rachelle can't move her arms or legs at all. This day has been frustrating in so many levels. She is itchy everywhere & can't itch (imagine that) So all day I have been sitting next to her scratching her & slowly going crazy..together. I hope we can all look back & laugh at this one day. Tomorrow is another day & we just keep moving forward, one day at a time. Simon
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Update. I'm not really sure where to start. Right now I am on Rachelle's phone writing in her notes. She tried to stand up from the edge of the bed & collapsed, just missing her head on the doorway.. I only took my eyes of her for a second. She has a really faint pulse & shallow breathing. I'm no paramedic but giving her a couple of CPR kind of breaths gets her heart & breath back. I would take her to hospital but we've been there so many times & I feel confident in handling most (not all) situations myself. Since we got home from treatment today she lost her ability to talk & can only make mumbling noises. I can see the frustration in her. She has a massive headache, when I say massive I mean she is pulling her hair & mumbling in pain massive...back again she was having a seizure...little tip always have pillows available! Ok back again! She was having an asthma attack. I know I sound dramatic but this is life ATM. I had no idea about Lyme up until recently. My heart heart goes out to everyone. Whatever you've been through & whatever you will eventually go through. Without support from family & friends I'm not sure where we'd be right now. There's a big part of me that wants people to know where their donations are going. This is not a cry for more money, just a personal justification I feel I need to make. This month alone will cost over $7,000 in medical bills. Last month wasn't that cheap either. Rachelle needs constant care & its damn difficult to work as much as I need too. I know Rachelle's recovery will be measured in months not weeks. We have a long way to go & the best treatment is overseas. Our first goal is to get her well enough to travel. We are so, so very grateful for all of your support. We don't want to be the face of tragedy but rather of hope, strength & triumph. As as the saying goes "health isn't everything, but without health everything is nothing" We just want to get this sorted out as soon as we can & enjoy our lives. Love heals. Simon
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Read a Previous Update
Peter Wheldon
32 months ago
2
2

After sharing on FB one of my friends suggested you could go here for some acupuncture treatment specifically for Lymes disease Simon. https://www.endeavour.edu.au/campuses/gold-coast

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Helen Karathanasis
32 months ago
1
1

Sending healing love and light! X

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Caylee Walker
32 months ago
1
1

I have tears in my eyes, because as someone who had a seizure disorder for 3 years and had seizures multiple times a day, my heart aches for your family. I have been where she's been. Sending so much love and prayers ❤️❤️

+ Read More
Andrew Paul Diggins
32 months ago

Hello family I am Andrew Paul Diggins AKA TheAmazingMagicFatz and I am a magic man I am writing this to you to let you know that I have been immensely overwhelmed with the condition of love That I feel that it's my duty to offer you Rachelle and also your support network my magic which is actually the power of positivity I am atm without a car but can be ready in half hour if anyone can give me a lift to you so that I can Give to you bewdyful peoples some of my time I am prepared to give 101 %of my skills talents and gifts to hopefully bring some ease of your suffering My magic is empathic and I would like to create some ease and also understanding of the afflictions that are being faced with the primordial power of that which is love my magic is not voodoo or witchcraft or black magic but rather that of the power of positivity plus also that of compassion and empathy I have read the article and feel that a lot of the symptoms Rachelle is facing can be slowly eased and some may even be eradicated by using the power of positivity and also suggestionings like putting coping mechanisms in place to combat the debilitations of symptoms in reading the article I noticed that many symptoms were actually afflictions caused by generally giving much more of the self than should be required I have fallen in love unconditionally with you all and am willing and am offering my services not for financial gain but to be accepted as another person in the family and friends and also your support network to give to you unconditionally to all my love my mind my spirit and my heart Also my pure essence of creation to benefit each and all witnessing this story unfold I am offering my services to help you through the toughest probably times of your lives my service is magic and truthfully honestly I do indeed think that taking on a little bit of magic can sometimes be just that which is needed for the greater magic to become magical using my magic positively I can create suggestionings that which when put in place create coping mechanisms I feel that it's through coping mechanisms as well as dietry supplements and natural products and also an abundance of unconditionally acceptable love and also power of positivity and praise and beliefs that shall enable Rachelle and also your family and friends and also your support network that will enable you Rachelle to hang in tight not give up your fight trust in yourself and your light And forever forward you shall shine bright you can let it get to you and you might but I wish to share with you my love that is within my heart So if you would like to see me work some magic I truly believe that with strategically placed suggestionings herbal remedies as well as dietry supplements and cbt as well as physical exercises can with these measures put in place Rachelle would have a higher percentage rate of recovery than Waiting for treatment to come I feel confident to say that putting these measures in place will definitely have a higher chance of recovery from this bacterial infection known as lymes my number is 0403716009 call me please I feel that it's my duty to offer you Rachelle and also your support network my magic which is actually love I'm sure you will appreciate and respect that which is magic for you are surrounded by it please ring me family and I shall come and do my thing Sprinklesprinkle magicdust sprinkle sprinkle magic man fatz sprinkle sprinkle magic

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$22,910 of $1 goal

Raised by 227 people in 32 months
Created December 24, 2016
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GP
$500
Greg Pilling
25 months ago

Hope to see you all soon. Lots of love.

LB
$250
Leo Bersamin
25 months ago
J(
$50
Julie Curia (Pritchard)
29 months ago

You are in our thoughts and prayers daily!!

MC
$100
Millie Cooke
29 months ago
NH
$10
Nahian Al Hasan
29 months ago
$265
Anonymous
29 months ago
$20
Jacky Haworth
29 months ago
HC
$50
Heather Corbishley
30 months ago
$100
Anonymous
30 months ago
OP
$20
Oscar Price
30 months ago
Peter Wheldon
32 months ago
2
2

After sharing on FB one of my friends suggested you could go here for some acupuncture treatment specifically for Lymes disease Simon. https://www.endeavour.edu.au/campuses/gold-coast

+ Read More
Helen Karathanasis
32 months ago
1
1

Sending healing love and light! X

+ Read More
Caylee Walker
32 months ago
1
1

I have tears in my eyes, because as someone who had a seizure disorder for 3 years and had seizures multiple times a day, my heart aches for your family. I have been where she's been. Sending so much love and prayers ❤️❤️

+ Read More
Andrew Paul Diggins
32 months ago

Hello family I am Andrew Paul Diggins AKA TheAmazingMagicFatz and I am a magic man I am writing this to you to let you know that I have been immensely overwhelmed with the condition of love That I feel that it's my duty to offer you Rachelle and also your support network my magic which is actually the power of positivity I am atm without a car but can be ready in half hour if anyone can give me a lift to you so that I can Give to you bewdyful peoples some of my time I am prepared to give 101 %of my skills talents and gifts to hopefully bring some ease of your suffering My magic is empathic and I would like to create some ease and also understanding of the afflictions that are being faced with the primordial power of that which is love my magic is not voodoo or witchcraft or black magic but rather that of the power of positivity plus also that of compassion and empathy I have read the article and feel that a lot of the symptoms Rachelle is facing can be slowly eased and some may even be eradicated by using the power of positivity and also suggestionings like putting coping mechanisms in place to combat the debilitations of symptoms in reading the article I noticed that many symptoms were actually afflictions caused by generally giving much more of the self than should be required I have fallen in love unconditionally with you all and am willing and am offering my services not for financial gain but to be accepted as another person in the family and friends and also your support network to give to you unconditionally to all my love my mind my spirit and my heart Also my pure essence of creation to benefit each and all witnessing this story unfold I am offering my services to help you through the toughest probably times of your lives my service is magic and truthfully honestly I do indeed think that taking on a little bit of magic can sometimes be just that which is needed for the greater magic to become magical using my magic positively I can create suggestionings that which when put in place create coping mechanisms I feel that it's through coping mechanisms as well as dietry supplements and natural products and also an abundance of unconditionally acceptable love and also power of positivity and praise and beliefs that shall enable Rachelle and also your family and friends and also your support network that will enable you Rachelle to hang in tight not give up your fight trust in yourself and your light And forever forward you shall shine bright you can let it get to you and you might but I wish to share with you my love that is within my heart So if you would like to see me work some magic I truly believe that with strategically placed suggestionings herbal remedies as well as dietry supplements and cbt as well as physical exercises can with these measures put in place Rachelle would have a higher percentage rate of recovery than Waiting for treatment to come I feel confident to say that putting these measures in place will definitely have a higher chance of recovery from this bacterial infection known as lymes my number is 0403716009 call me please I feel that it's my duty to offer you Rachelle and also your support network my magic which is actually love I'm sure you will appreciate and respect that which is magic for you are surrounded by it please ring me family and I shall come and do my thing Sprinklesprinkle magicdust sprinkle sprinkle magic man fatz sprinkle sprinkle magic

+ Read More
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