TS Book-Jane Chassey Memorial Fund

$5,325 of $4,000 goal

Raised by 71 people in 38 months
My mother, Jane Chassey, passed away on August 14th after a fierce but short battle with pancreatic cancer. As part of her final wishes, it was her desire that in lieu of any flowers, donations be made toward the publication of this book.

Mom was one of the original supporters of the St. Louis Turners Syndrome Society. For almost 30 years, she raised funds, volunteered at events and worked in the Meet & Greet room at the St. Louis Turners Syndrome clinic in Cardinal Glennon Children's Hospital.

For many years, I have been working on a book which details my personal journey of living with Turner Syndrome (TS). Our goal is to raise awareness about this rare chromosomal disorder with accurate information, breaking down stereotypes, misconceptions, and bringing hope and support to newly diagnosed TS families.

For those who do not know, Turner syndrome is a chromosomal condition describing girls and women with common features caused by complete or partial absence of the second sex chromosome.  TS occurs in approximately 1 of every 2,000 live female births and approximately 10% of all miscarriages.  This calculates to approximately 80,000 – 100,000 girls/women in the United States. Ninety eight percent of TS babies miscarry during the first trimester or are aborted, so we are the two percent that survived!

This book will provide a wide range of medical and support resources to help guide families through the different challenges of each life stage a TS child will progress through. It will be distributed through TS clinics, physician and nursing organizations (endocrinologists, ENT's, cardiologists) 
and on the Turners Syndrome website.

It is our hope that it will serve as an inspiration to parents who are scared and feel alone raising their TS daughter. My mother experienced these stresses first-hand raising me and also supporting me, with my TS daughter. She loved speaking with newly diagnosed families and providing understanding and knowledge as a parent and grandparent of two TS women.

Thank you very much for your donation and honoring my beloved mother in support of her hearts desire.
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Just wanted to update everyone on this exciting project! I have chosen Xlibris Publishing to publish my book and have passed the copyright infringement portion. I am now in the edit stage.
I would like to thank everyone for their support in making this dream come true. I just wish my mother was here to see the final product!
❤️
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Heaven has gained another angel today as my mother is now with the Lord.
We sincerely appreciate those honoring her last wishes and donating to our go fund me page. This was something she was passionate about. Anyone that knew her knew what a giving and kind person she was. It was a lot harder for her to receive so thank you for showing your love and support to a cause she cared so deeply about.
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We are one step closer to getting my book published.! It looks like I will be going through and publishing through Amazon. Will be confirming details soon and posting another update soon!!!!
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9/2/15- I apologize for any inconvenience. I found out my account was closed for awhile but I have rectified the problem. I cannot proceed any further until I reach my goal so PLEASE consider donating if you haven't already!
Thank you in advance for your generosity.. Cheryl
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$5,325 of $4,000 goal

Raised by 71 people in 38 months
Created June 13, 2015
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$50
Anonymous
9 months ago
SE
$10
Sarah Engle
10 months ago

I am so sorry that you lost your mom. I am very close to my mom and can't imagine losing her. I am 27 years old and have Turner Syndrome, so I am extremely glad to donate and excited to read the book when it's finished! :)

BW
$40
Bonnie Wolk
10 months ago

With love from Bonnie, Valerie, Shelby, Nicol, Yvonne, and Janet

LF
$500
Lightbridge Foundation
12 months ago

Brenda & Family, So sorry for your loss.

PM

Greg & Family, We are so very sorry. Our thoughts and prayers are with you.

SS
$25
Sara Stozki
12 months ago

Sending love and prayers <3

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