Supporting Nevaeh's palliative care

Please help us support Nevaeh and her loved ones.
My name is Jodie and I'm  "Aunty Jodes" to Nevaeh.  We don't know how long we all have with her, but we want her parents especially  to be able to be by her side for every possible loving second so I have set up this campaign to support them. 

Unfortunately treatment, is no longer an option for this little hero, now it's just about showering her in love, kindness and comfort for as long as we possibly can.

But, this comes at a cost. Palliative care is expensive and one parent has had to stop working all together to become the primary carer, not something you can always be financially prepared for. This was done in order to rightfully spend every possible second they have with their precious girl... and just when you think life couldn't suck anymore, of course the bills keep coming in and financial resources have worn thin after almost 3 years of treatment, medication, time off work has in turn had a negative financial impact on this beautiful household. 

So we've made this page to support these wonderful people, as they support their extremely wonderful, but incredibly sick little person the donations raised will go directly to the mothers, the purpose is to assist to cover household bills and daily expenses so both parents can afford to be at home together.

Here's some facts:

Nevaeh  is only 6 years old!

Nevaeh was diagnosed with an aggressive malignant brain tumour called medulloblastoma on 4th May 2014 - one month shy of her 4th birthday.

She endured a 10 hour brain surgery to remove the tumour and then went on to have 32 rounds of radiotherapy to the brain and the spine and 4 months of chemotherapy.

In December 2015 at a routine MRI, she relapsed and they found another medulloblastoma had grown so she endured another brain surgery and another 32 rounds of chemotherapy to the brain and the spine.

In June 2016, MRI showed that the tumours had spread to her spine, in what they call a sugar splatter, they then opted for another 30 rounds of radiotherapy to her spine to try and blast them. In September 2016 MRI showed they had grown and she was now palliative, there were no more treatment options available medically, so the family were on their own. 

Christmas Day 2016 Nevaeh was too weak and sick to get out of bed and enjoy lunch or even unwrap her Xmas presents or Santa presents.

By the end of January 2017 Nevaeh lost the use of her legs and the ability to walk. She has been progressively deteriorating and now she is at home, as they promised her "no more hospital".

This amazing family has taken on the responsibility of parents and nurses all in one. Nevaeh is now non-verbal and can only communicate via a hand squeeze, she is still fighting, she is still here but has very limited time left to be with her parents and her strong and doting sister Tahlia. 

Nevaeh loves life, she is the most resilient, determined and beautiful little girl. She deserves to have her family by her side.  Worried about nothing and continuing to find the incredible strength it takes to say goodbye to your very own precious little angel.

Please support this incredible family going through the absolute unimaginable.