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Help save my life

£8,700 of £65,000 goal

Raised by 295 people in 14 months
“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King Jr

I will explain my situation as simply as I can with the help of my family. I am 29 years old and have been 90% housebound for the past 3 and a half years and when I do go out it is mostly to the hospital in a wheelchair. The depth of my nightmare and health struggles began 13 - 14 years ago. I had always been a healthy child but that soon changed. I went on holiday to the country part of Italy twice in my teenage years.  During these vacations I received many insect bites but at the time thought nothing more about them, I was a young happy child enjoying myself. On one occasion when I was 15 we had only been a few days into the holiday when me and my mother had to rush home early because I was really sick, so much so I didn’t feel like I would make it back home. 

Following this incident my health deteriorated resulting in me spending the years that followed in and out of hospital as an inpatient and also attending various outpatient appointments with different specialists. I was diagnosed with several chronic illnesses including ulcerative colitis but something still didn’t feel right. On top of the growing long list of unexplained symptoms I kept getting repeated viruses and infections one after the other including glandular fever. Not one doctor actually knew what was really going on with me, even though my health continued to decline. I couldn’t hold a job down despite my best efforts without having weeks to months where I couldn’t make it out of bed plus other agonising symptoms. 

                     me as a healthy child and teenager

In 2014 after my body had put up with a decade of repeated infections and viruses things spiralled rapidly. I spent the whole of summer in and out of hospital with one virus and infection after the other, my weight plummeted and I could barely even talk and I just felt like I was going to die. By August I couldn’t get myself up off the couch when I returned home from my latest hospital admission. I would crawl to the bathroom on my hands and knees crying with the pain it took to get me there. I was informed by a specialist I had M.E. I was told I had to learn to live with it and that there was nothing they could do and I would just have to learn to pace myself. I was devastated to be told that at 26 years old my life would not be the same and my dreams of one day being healthy had been dashed. I continued to try and do the best that I could to help myself get well through supplements, meditation, clean diet and rest. I did everything I could and yet my body continued to suffer set back after set back putting me back in hospital on many occasions.

This year I decided to have private testing for Lyme disease done. I did this after being informed that the basic test available in England was only 35 - 45% accurate on the nhs and does not test for the many other co-infections that can go along with Lyme. My private test results confirmed that I have the disease and co-infections. I didn’t know much about the condition until this year and I felt such a relief to finally know what was wrong with me after so long, it explained my past medical history and the symptoms I have been experiencing for 13 - 14 years. Then reality hit home, how do I fight this?! At late stages Lyme can spread to the brain, heart, nervous system and muscles and if the immune system fails it can shut down the body and be fatal.

  
I feel like I have been fighting my whole life and do not even know what it feels like to not be in pain or suffering anymore with disabling symptoms such as black outs, blurred vision, night sweats, palpitations, fevers, tremors, twitches, constant infections, speech problems, brain fog, severe fatigue, sensitive to noise and light, facial paralysis, weakness, balance problems, memory loss, confusion, breathing difficulties, dizziness, muscle and joint pains throughout my whole body especially in my neck, shoulders, spine, arms, legs, chest and head, headaches, sleep issues and so on, the list goes on which makes me fear for my future.

If I don’t get the treatments my body needs I feel like I may just die one day and no one outside of my family will notice that I have gone. I spend at least 22-23 hours laying down looking at four walls every day and it feels like a prison sentence. I just want a chance to get healthy and be part of the world again. Unfortunately my neurological and cognitive symptoms are so severe now as well as having trouble with my autonomic nervous system through being undiagnosed for so long I need evasive treatment that is just not available on the nhs.

 
I know I have to take matters into my own hands now and do something before it is too late. I have had nights where I just didn’t want to be alive anymore because the symptoms have been really bad day in day out with no break and I have felt like I couldn’t take the suffering anymore, but I then think of my dog who has been my constant companion always by my side and how he would not cope without me and how it would affect all those who love me. Through their love for me I draw strength to keep fighting, to not lose hope and to carry on because despite my many obstacles life is worth fighting for. I am a fighter and I refuse to let this win. I won’t give up on my life without fighting tooth and nail for it.

I have always been a private person and never asked for anything for myself from anyone. I have always been the kind of person who likes to give and see other people happy rather than receiving. But my health circumstances have forced me to seek help and speak up before it is too late. I missed out on so many of the things my friends were doing in their twenty’s and spent a lot of it in and out of hospitals. It feels like part of me died in 2014 and that I am no longer living just barely existing.

There are treatments available that could save my life, but it costs a lot of money. I firstly need to get private treatments in this country at a private clinic that has helped cases like mine improve their symptoms over a period of time so I can be stable enough to be able fly to Germany for treatments at a clinic that have a very high success rate at helping people with Lyme & M.E regain their life back. My family have researched thoroughly both the private UK and German clinics. I believe these treatments will help me get my life back and for the first time since I was 15 years old I will be able start living in this world again instead of just existing.


What your donations will help towards:
• Treatment and consultations with private medical doctors who I will be working with for at least the next two years who are educated in M.E, Lyme and co-infections.
• IV antibiotics 
• IV vitamins and shots as I am deficient and my body struggles to absorb oral form.
• Detox protocol
• Stem cells 
• Immunotherapy
• Ozone therapy
• Regular lymphatic system drainage massages to help mine start working properly again.
• Regular testing to monitor how my body is responding to the treatments.

IV treatments are used in many severe late stage cases especially in people with absorption problems. My stomach has also now stopped tolerating oral antibiotics.

I will be sharing my healing journey on my public instagram page @samanthashealingjourney so those who support me can see that the generous donations are being spent on treatments to help me get healthy again.


Me and my close family do not have much but we will be putting every penny we have into this treatment but it is no where near enough, I know it is a lot of money to ask for and I would never ask if it wasn’t my life at stake but this amount is to cover the full cost of all treatments like is mentioned above and this is because of the severe stage my health is at there is no quick option in recovery, I wish there was. Many people who have tried quick fix treatments have relapsed later and I want to avoid that as much as possible. It’s going to take roughly 2 - 3 years of treatments for my body to heal and be in remission but I am hoping to notice big improvements sooner. When I am well again for the first time in many years I plan on paying the help I have received forward by studying so I can get my dream job in helping other people. It would be an amazing start to 2018 knowing I am one step closer to getting the life back that was taken from me.

Please I do not like to beg but whatever you can spare even just a few pounds, dollars or euro’s could really save my life. All funds raised will go towards urgent medical treatments.

You can also donate directly to:
Samantha Jean Calby
BIC: BARCGB22
IBAN: GB60BARC20503693970914
Sort code: 205036
Account Number: 93970914

From the bottom of my heart I thank you all.

Samantha x
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Thank you so much for the support evryone. I appreciate it so much more than words can say. It has been beyond difficult to go through this journey that makes it feel like your dying every day with horrendous symptoms. Right now just getting to my doctors appointments in my wheelchair is very difficult and i am still spending 22 hours a day laying down with excruciating symptoms but I pray to God every day and have hope that I will get my health back in the end. Please keep sharing, every penny will be spent on the treatments to save my life most importantly stem cells in Germany. These treatments will help save my life after being sick for 14 years and mostly housebound for nearly 4. When I can raise the funds needed me/myfamily will be updating with photos and videos of the treatments so you can follow the journey with me.

Love

Samantha x
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I know it’s confusing but just to clear a couple things up as I had a message from someone who was confused why the nhs couldn’t treat late stage Lyme. So I thought I’d explain it as simply as my brain will allow me to incase anyone else was confused. If a person has been bitten recently which is acute Lyme it’s much more easier to treat and recover fully from and the nhs will treat that usually with a 3 week course of oral antibiotics if it shows up on their 35-45% accurate test but when you have late stage Lyme because it has been left undiagnosed for so long it is too late by that stage as the disease spreads through the body and by that point a short course of oral antibiotics has no affect. I have been sick for 13-14 years and have tried oral antibiotics and they haven’t worked and I’ve gotten sicker. I am just thankful that my private tests finely gave me the diagnosis I have been looking for after so many years of being so sick. A lot of late stage sufferers have been in my position trying to raise the funds they need for these private treatments that have shown high success rates over time with late stage cases and given them a life back.

I appreciate all the best wishes, prayers and donations everyone has been sending me I really do, it has actually brought tears to my eyes to know other people care so much. Every single donation and well wishes is deeply appreciated more than words can say. All I want is to be able to experience life outside my house and live as a healthy adult which is not something I have experienced yet. I am hoping I can continue to raise funds to make this dream of getting well and one day helping others in return will come true. Sending lots of love from the bottom of my heart, thank you.
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I just wanted to say a massive thank you from the bottom of my heart to everyone who has donated and shared my page so far. I appreciate it more than words can say and it gives me hope going into the new year knowing that I am one step closer to my goal of getting the treatments that I need. Every pound, euro and dollar really does count when it comes to getting the help I need to help me get my life back so please continue to share my page if you can. Once again I thank you and I am very grateful for all your kind help. Wishing you all the best for the coming new year.

Much love

Samantha x
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£8,700 of £65,000 goal

Raised by 295 people in 14 months
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