Jenna Rose Sunflower Benefit

HI, this page is in coordination with the Sunflower benefit we are holding on 6/24/17 to raise awareness for two rare and horrible diseases, Lupus and TTP, that took our loved one much too early, please read Jenna's story and find details on the benefit below:


We lost our Jenna Rose suddenly four years ago, initially diagnosed with Lupus and then told it was a combination of Lupus and Thrombotic thrombocytopenic purpura (TTP) which is a rare blood disorder. 

Our primary goal is to raise awareness for others that are possibly struggling for answers like we were, so others might know what to look for and/or questions to ask, or tell their doctors to check for these things that we were not aware of!

Too many times during our struggle hearing her symptoms were unusual and there was no specific data they could test for to give us the answers we needed, then hearing different things with every doctor we visited, hopefully this can help others.
 
All donations to this page will go directly to the New Jersey chapter of Lupus. Our Sunflower Benefit will also raise awareness for Lupus & TTP as well as all funds raised there will be sent directly to Answering TTP for research and patient care and Lupus.


TTP Overview | Answering TTP Foundation
https://www.answeringttp.org/ttp-overview