7
7

Please help me get my wings.

£660 of £5,773 goal

Raised by 7 people in 27 days
In 2007 I was diagnosed with Post Traumatic Stress Disorder and gradually over the next few years I started to become so exhausted I couldn't walk.  In 2012 I was finally diagnosed with Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome. Over the next 5 years I went from an outgoing and active mother who was up for most things, to someone who couldn't even get out of bed. Excruciating pain and fatigue has reduced my life from an off road mountain biker and wedding photographer to being trapped within my own home.

There is no treatment for M.E. and P.T.S.D. is a daily struggle with anxiety. The medical profession are only just recognising M.E. as a biomedical disorder. Research is slow, but people have been languishing for decades with this illness. I refuse to give up hope, but I'm also refusing to put my life on hold. 


So this was us in 2009. The Reece family household before I got very ill on a holiday in Dorset. We're an active family who used to have an eclectic mix of exploring, biking, and general outdoorsy activities. We'd try most things once, and sometimes twice just to make sure we were a little weird! 


This is me last year, and yes I hate this photo. This is me in a wheelchair shop trying out wheelchairs when we, as a family, realised that I was in less pain and less fatigued when I used my wheelchair full time. I sobbed my heart out just after this. I'm not asking you to fund a wheelchair, you see I was assessed by the amazing NHS and I qualify for a full time chair so I have been prescribed one. 

So what am I asking for?
Basically a few pieces of equipment which will make a massive amount of difference to us. They're called a Freewheeler, off-road wheels and a Smartdrive MX. It would enable us to get out more, and get back to doing what we were before. Walks in Thetford forest on the sculpture trail, chasing my, now 11 year old, son round the park, train with my husband to do 5km races, go for coffee with friends, travel but mostly to get out of my house. 

There's so so much we want to do. And I'm very aware how much my youngest has grown since I've been ill. I realised the other day he's never seen me healthy.  I want to put that right before he gets much older.
+ Read More
Update 4
Posted by Michelle Reece
3 days ago
   Share
Fantastic news on the fundraising front. I managed to secure a grant from Barchester and now have the Spokz off-road pack winging its way to me. It'll be here early next week so I can't wait to update with photos.

Full steam ahead for the Smartdrive by Max Mobility and I'll be flying around the street of Norwich.
+ Read More
Update 3
Posted by Michelle Reece
14 days ago
   Share
So we an Occupational Therapist round this week for a disabled facility grant assessment. She left so perplexed. She reckons this is the most complex adaptation she's ever looked at.

It seems my house is the worst design ever for wheelchair access. It's a massive 30 inch drop between my front door and the ground so a ramp won't really work without losing my entire garden. Pretty sure Tobey will be upset if he loses the garden.

Meanwhile I took the weekend off from fundraising. I had been checking out grants, but I have to have a social worker for 99% of those applications. I will chase them up AGAIN this week. It's been 6 MONTHS since I first asked them. And I've chased them up every month hit maybe this time I'll actually get one.
+ Read More
Update 2
Posted by Michelle Reece
22 days ago
   Share
So the second piece of equipment is the most expensive. It comes in at over £4700. It is virtually impossible to get a powered wheelchair on the NHS, and they are stonkingly expensive.

Due to the nature of my illness I get fatigued really easily, and although I am building up upper body strength it would be an unrealistic goal to expect myself to be able to push myself into the city, and all round the city, and home again.

So this piece of equipment would be used every day. It's a powered wheel which fixes onto the back of the wheelchair. It would stop Tobey, Miesha or Sam having to push me when I get enervated. Trust me there's nothing more demoralising than having to ask your eleven year old for a push! Hills are exhausting, especially for the person pushing me up.

Yes I'm aware I live in a flat Norfolk......but we do still have hills. I live up Ketts Hill in Norwich, the Forum (our library) is on top of a hill. This would enable me to do it alone.

http://www.max-mobility.com
+ Read More
Update 1
Posted by Michelle Reece
25 days ago
   Share
So I thought I'd explain a little bit more about the equipment we're trying to fund. The first piece is called a Freewheel.
It's an attachment which goes on the front of my wheelchair. It's designed to help with uneven ground as the front castors get stuck really easily and you're likely to tip yourself out of your wheelchair.
In Norwich we're fortunate to have a diverse range of pavement surface, including cobble stones. Not so great in a wheelchair, and it makes it impossible to wheel yourself independently. This piece of equipment solves this problem and would help me fly through the city.

https://youtu.be/XToOB6rKOBE

The link takes you to a video demonstrating the freewheel.
+ Read More
Read a Previous Update
Be the first to leave a comment on this campaign.

£660 of £5,773 goal

Raised by 7 people in 27 days
Created February 28, 2017
£20
Rebecca Gibbs
3 days ago

I know it isn't much. But hope it helps xx

B
£540
Barchester
3 days ago(Offline Donation)

Wow a very generous grant from Barchester. Thank you

£35
Anonymous
21 days ago
£10
Jon Cross
21 days ago
1
1
DM
£15
Dan Mindru
25 days ago
1
1
£15
Anonymous
27 days ago
1
1
£25
Jerin Poliskey
27 days ago
1
1
Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a £5 donation can help!
Donate Now Not now

Pledge now, give later.

Pledge Now
You won't be charged for this pledge. We'll let Michelle know that you have pledged support.
Thank you!
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.