Pray as Payton Waits for Transplant

$19,975 of $35,000 goal

Raised by 216 people in 55 months
Payton is 22 and was diagnosed with complex regional pain syndrome in 2011 after a simple volleyball injury.  We were able to get her into remission twice but this last time it caused her foot to contract and roll in and under.   On September 26, 2016 she had her leg amputated below the knee.  We had to revise it and release her hamstrings on July 12 2017 and she's finally tolerating the prosthetic for short periods of time.    She's such a fighter and we felt amputation gives her the best chance of a normal life.  We sold our home if 16 years  in July and downsized to a 2 bedroom townhouse so we could get Payton the care she needs in Cleveland.   Payton and I have been in Cleveland since April 23rd.  She was finally approved for transplant last Thursday,  November 16, 2017.  She will be listed for her stomach,  pancreas,  small,  and large intestine.   We are beyond grateful for this chance at life for her.   This really is the last option.   We have been living in the Ronald McDonald house for over 215 days and it's time to move to a rental.   We happened upon a house that was for sale and the gentleman decided to rent for a bit.   We were told by the city that we could take an emergency withdrawal from a retirement fund but found out yesterday that that info was incorrect so we are scrambling to get the first months rent and deposit by next week. We also need a few household things to get started and furniture.  We had no idea this was all going to go south so quickly.   We appreciate every bit of help and God willing we'll be settled on December 1st and waiting for the call to give Payton her second chance at life. 
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Biggest update yet!!!! Today Payton is officially on the list. She is listed for a stomach, pancreas, small and large intestines. This is the first day of the next chapter. 9 months today since she left everyone in Colorado to head here. It’s been rough, lonely, stressful, yet now we look forward to the next step. Now we wait. Unfortunately we wait for another family to lose a loved one so payton can live. The burden is real and not lost on us for one second. Please pray for a short wait and we get the call soon. Thanks again to everyone who has taken this journey with us. It’s been a long long long one but we’re in the right place.
God bless those who donate
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Now that the last 15 hours are over I'll update. Payton was playing her gospel music and cleaning her room last night a little after 10 when she screamed for help. Her bad leg had twisted in her prosthetic and dislocated her knee part way. I could barely move it enough to get her peostheric off and that was excruciating. I ended up calling 911 for help getting her to the er. In the ambulance her heart rate was 175 so they panicked a little and got her there quickly. The next few hours were scary as they couldn't find a pulse behind her knee and the mention of amputating above the knee was terrifying. Luckily they finally found a faint pulse and they gave her some pain meds... Not nearly enough, and pulled the leg back where it should be. Her leg still wasn't straight and the pain was horrible so she is admitted and in mri as I type. Praying they find nothing concerning and that she just needs a little rest. She's come so far since July with the leg and any steps backwards scares her. Trying my best to keep her spirits up with ZERO sleep:( I'll update after I hear the results of the mri later. Thanks again for supporting us and say a little extra prayer for her today.
Loading her into the ambulance in the pouring rain.
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Quick update. I was able to break Payton out of the hospital Monday evening. She's "home" resting. It's amazing how draining it is to be sick. She doesn't sleep well when she's in the hospital so I'm just letting her catch up. We have no appointments this week so it's good to just go easy. Her poor body is just tired:( We were told by her surgeon that the letter to the state had been submitted Saturday but her coordinator said nothing yesterday. It's very frustrating and we're doing our best to stay positive. The committee approved her 8 weeks ago and we never thought we'd still be waiting for approval. The system seems to fight us every step of the way but we're still fighting. We just don't have endless resources to just hang out. It's so hard. We love being in a house and having privacy and being able to control the level of cleanliness, but it all comes at a price. Today we're sneaking away to a movie since I got 3 gift cards for Christmas:) I pray she's listed this week or early next. We need to move forward. Thanks again to everyone who continues supporting us. We love you all.
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What a start to the year. Payton was feeling sick Sunday and her transplant Dr wanted her seen so off to er we went. She had symptoms of sepsis but no fever this time, which is strange for her. Her skin looks TERRIBLE and they decided to admit her and just watch. Low and behold her blood cultures grew quickly. She's fighting a few bugs and they added a couple more antibiotics today. She's got a new temporary line in her neck and as soon as they're sure her blood is clean then she'll get a new central line. Her transplant surgeon was confused as to why she wasn't listed yet. I won't go into details but the ball was dropped somewhere and we're sure they're on it now. It really shouldn't take her getting so sick for someone to help but I guess that's what's happened. Hopefully we move forward soon. They're treating her aggressively as her poor body is so tired. I'll update as things change.... for the better we pray. As always, thanks again to each and every one of you who continues supporting our family in this fight. We just want Payton to have a chance at life....
One grateful family on Christmas morning.
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Read a Previous Update
Lauren Kailor Boothe
25 months ago
3
3

Dear Payton, we here at Chick-fil-A at Fort Collins still think about you constantly since we were able to assist you in August of 2014. You are continuously in our prayers. Your fight has been tremendous and I hope that someday we will be able to see you in great health. May the Lord guide you and always know that we stand behind you as well.

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Kaitlin Walter
17 months ago
1
1

Payton, from one CRPS warrior to another, may the light of God shine through you and through all the doctors in the surgery. May be give them the knowledge needed to execute this flawlessly. I pray that your pain is controlled very well, and you don't have to fight with them because you're in pain. You are so strong! You are going to kick ass just like you do for everything else! You and your family are in my prayers, especially today. If you need absolutely anything, or would just like to talk, message me and I will give you my cell. You got this, lady! #warrior #ferociousfighter

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$19,975 of $35,000 goal

Raised by 216 people in 55 months
Created August 7, 2013
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Lauren Kailor Boothe
25 months ago
3
3

Dear Payton, we here at Chick-fil-A at Fort Collins still think about you constantly since we were able to assist you in August of 2014. You are continuously in our prayers. Your fight has been tremendous and I hope that someday we will be able to see you in great health. May the Lord guide you and always know that we stand behind you as well.

+ Read More
Kaitlin Walter
17 months ago
1
1

Payton, from one CRPS warrior to another, may the light of God shine through you and through all the doctors in the surgery. May be give them the knowledge needed to execute this flawlessly. I pray that your pain is controlled very well, and you don't have to fight with them because you're in pain. You are so strong! You are going to kick ass just like you do for everything else! You and your family are in my prayers, especially today. If you need absolutely anything, or would just like to talk, message me and I will give you my cell. You got this, lady! #warrior #ferociousfighter

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