Nicholas Journey to Recovery!
We are humbled to ask people for help. Fact is our bills don't stop rolling in because of my sons diagnosis. Electric, gas, water, car insurance, house insurance, rent, gas for the car, car maitnence.... none of them stop just because your child has cancer. These are what we need financial help with. If you think well this isn't my kid its not problem then stop and think what if it was....
Here is our story......
End of February through March and into April, Nicholas had complained of headaches, ear aches, sinus problems, threw up every time he ate his eyes hurt and just seemed like everything was going wrong. He would randomly fall his balance got so bad he refused to even try to ride a bike. He even randomly fell down steps. His pediatrician kept brushing me off saying it was growing pains. Then when we got him in it was double ear infection, sinus infection, strep throat and even possibly needed tubes in his ears.
April 13, 2013 he turned 8 years old. That night we were in the E.R his vomiting wasn't any better, his headaches were more intense and he almost seemed to have a mini seizure. The E.R doctor said to take him home give him more Motrin for the headache and finish his antibiotics for the sinus infection and follow up with his pediatrician in a couple days. I looked at my son finally asleep in the fetal position on a gurney coat over his eyes hand on his ear looked at the ER doc and said NO! This isn't a sinus infection it's not growing pains, something's wrong. An 8 year old boy doesn't go from playing trucks in the sand riding his bike around the driveway for hours and wanting to help take cars apart, to sleeping almost 18 hours a day, unable to concentrate, throwing up every time he eats crazy migraines and being super sweet to snippy and nasty. Not to mention sinus infection wouldn't cause his left eye to go lazy!! I told him if he discharged us I'd be right back.
So, he ordered a CT scan. Seemed like it took forever for them to come back. I was pulled into a room and told there was a sizeable mass on the left side of my son's brain. He was being admitted.
We spent April 14th getting tests, nausea meds, and popsicles and watching movies. That night I crawled into his bed and held him through a headache turned seizure, then he slept.
April 15th surgery. Time would reveal his left side didn't work. With therapy, he got minimal use of his left hip and knee. He can't move his ankle or toes. He can lift his left arm but that's about it, nothing from elbow down. He was left handed before surgery. He is learning to write with his right very well. Vision in his left eye is seriously diminished and will turn to use his right. Things have been hard for him but he hardly complains. He so wants to go out and play and get dirty like he used to and doesn't really understand why he cannot.
Nicks diagnosis is Glioblastoma Multiforme stage 4, Stage 4 Brain Cancer. He is at Toledo Children's Hospital Floor 5 Oncology every week for either blood work or Chemo Therapy. He started out by having to undergo 33 rounds of radiation. He is on steroids to control swelling and fluid buildup as he does not want a drain put in his head he has become very self-conscience as the steroid and not being able to run around has caused significant weight gain. He requires a wheel chair as he can become fatigued or joint pain. He has a standard buy off the shelf wheel chair which is causing him to get a curve in his spine and a fitted one is required. We live in a very old home which is in need of repairs and updates. We need a wheel chair ramp on the house for him and somehow obtain a wheelchair friendly vehicle. On top of this, we have bills adding up daily.
We understand many people are on hard times but, understand,anything helps and is so very, deeply appreciated!! We also use PayPal through: toledosweetie69 @ yahoo.com. We have not set up a bank account where people can donate yet. My son spends a lot of time left out of things as not much is available for one handed children. We strive to enrich his life as much as possible. For anyone that would like to send cards or anything we do have an address we are using for mail. 4140 South avenue Toledo Ohio 43615. Again anything can mean everything! , - See more at: Fighting this takes so much out of him. Sadly less then 5% of any money donated to Cancer research goes to Childhood Cancer research. When I say he is my hero and where I draw strength i'm 100% serious.
For those that have issues with fees assocaited with go fund me he has a page on you caring page.
This kid loves Duck Dynasty, Fast n Loud, WWE, Bad Fish racing and a few other things. His life use to be outdoors, playing in the dirt, helping in the shop loved big machines and just being a boy. Now that is greatly hindered. Even riding his quad bike is hard because of the weakness in his left leg and inability to use his left arm.
we understand our number wont build the house my son needs but were afraid the full number will scare away people from helping.
Today we had our 3 month MRI. He got Zofran ahead of time but when they added the contrast it still made him throw up. I don't understand why with Zofran he still got sick. Poor baby!! Got some new pictures I have to transfer onto here and I can share.
Happy New Year Everyone!!
So far things have been pretty good. We have rough patches when its Temodar time. We still do not have use of the left arm and pain spikes in the left leg and foot at times. His next MRI should be in January if my thinking is correct. Crossed fingers prayers and the whole nine yards!!
Here is a cute picture of some Christmas items he received. Very good looking man if I do say so myself!!
Happy Saint Patricks Day!!
We had to spend most of our day at the hospital today. Arrived at 9am. Got accessed and blood drawn then waited. Waiting always seems to take forever!! Blood work came back and all his counts were low so rather then chemo he got a transfusion for plateletts. We'll be back next week and see then.
Taking care of him is not a burden but financailly it has caused a huge strain. Our home is not handicapp set up. There is no insulation in the walls so it requires more heat in the winter which means electricity and gas shoot up. In the summer his meds make him easy to overheat so the a/c has to stay on with no insulation to hold the hot out and cold in. That means more electricity. Driving to appointments, picking up medications etc that requires gas.
thank you so much John and suzette! God bless you!!!
love you so much Epic , and god bless you Tony. You have no idea what an amazing thing you have done for my nephew. God bless you all!!!
We having been helping people with Cancer for the past year, as our friend Dave has suffered in his battle with Stage IV Lung Cancer. We would like to be able to add you to our donation site so that we can draw more attention and possibly some more donations your way. Please let us know if you think this will help.
thank you and god bless you heather!
I am a nurse at UTMC and seen your story on WTOL. I am interested in helping your family out and getting my co-workers involved. If you could contact me via e-mail I would appreciate it. My e-mail is email@example.com. Thanks.
Thank you so much ! I am just crying like a baby and the wonderful support! I am Nic's aunt, and I love this baby so much and am so thankful to everyone!! My heart is so happy and overwhelmed at everyone's kindness!! Thank you so much Erin Gibson, Eric Lewinski, William Owen Meyers, and the Anonymous donors. God Bless you and Thank you so much!!!
Thank you so much John Edwards, and Amy Adkins! God Bless you!
Though we have no money to donate (we are sinking!), we will definitely be sharing your story far and wide. What our community did for Devin can be matched and surpassed by your community for your little boy. We will work to make it happen!!
God bless you michael. Thank you so much!! Love ya!
Thank you sooo much Louis, Amanda, Melissa, Kristie and everyone who has helped. God Bless you all. Love ya!!!
This is my nephew, he is my TICKLUS, I am asking everyone I know to please help. If you can't donate financially, please support by sharing this with as many people as you can. Thank you sooooo much. God Bless!
Don't Forget you can follow Nick and see his story and past pictures and struggles on his FB group. https://www.facebook.com/groups/510208625710043/