LYME IS DEBILITATING MY DAUGHTER
Donation protected
PLEASE HELP MY DAUGHTER AND OTHER PATIENTS AFFORD PROPER TREATMENT.
Hi my name is Vicki I am the mother of my 38 year old daughter (diagnosed with Chronic Lyme and Babesia) Bonnie.
More than 300,000 people a year are diagnosed with Lyme Disease and it's co-infections and each year it rises. That number does not include non reported cases. There is little to no insurance coverage for Chronic Lyme Patients critically needed treatment due to CDC guidelines. Those CDC (13 years old) guidelines haven't been modified enough for patients like myself; chronic patients. Finding a LYME LITERATE Doctor does not come easy and at a HUGE cost. This includes naturopathic doctors as well. Those doctors are few and far between.
Bonnie was once a vibrant, healthy, active woman who had a job, has a son she lives for and did everything with. They would hike all the time, active on the soccer fields, basketball courts, special trips, very involved with family. In 2011, she was with the love of her life and her son. It seemed her life was finally falling into place. However, 2 years later she suddenly lost all function in her left side. At 35 she was walking with a cane. She was misdiagnosed many times. She received a second opinion from another neurologist that suggested she get tested for Lyme Disease. He referred her to the only clinic in CT that would even test or semi treat with her insurance. She tested positive for Lyme and Babesia and went on a heavy dose of Lyme and Babesia antibiotics for 6 months, destroying her gut and leaving her bed bound.
She couldn't do anything with her son and now two step-daughters, and the love of her life.
Since she couldn't tolerate the medications, she switched to Bicillin shots. Those didn't work for her either. She then developed an autoimmune disease from the Lyme and Babesia. She was assigned a visiting nurse to come to her home weekly to infuse her with immunoglobulin, to protect her immune system (IVIG). This would leave her so tired some weeks where she couldn't get up, but would give some good days too.
Eventually, it became so bad, she could no longer work a full or part time job. She was lethargic, couldn't remember much of anything, in pain everyday, massive headaches, sweats, chills, nausea, vision issues, ringing in her ears, all the true and debilitating illnesses Lyme and specifically Babesia, she had.
The practice then shut down due to being sued by insurance doctors treating her.
She was left alone, and not treated, no light at the end of her tunnel. She was depressed, as anyone whose active lifestyle is abruptly uprooted to a life of living in a bed and getting out as much as possible. She was able (after months of no treatment) to continue the IVIG. However the disease had taken over more of her body. She began having seizures. Tonic Clonic Seizures, multiple times a day.
Her husband video-taped them so the "current neurologist" could couple that with her million tests which all came up negative. She said there was nothing wrong. No seizure activity. She was not Lyme Literate.
She had always been drawn to music as she was singing since childhood. That was her only outlet and on "ok" days, she would capitalize on spending time with her family and her music.
The seizures have continued and have currently, like so many times before, stopped all of her outlets. She can't not drive, has a higher risk of brain injury that will impact her older adult life with many more complications, such as Alzheimer's, Respiratory Illness, Loss of Function of her body.
She talked to and heard of an incredible doctor in New England who could treat her and give her (not a cure, but a way to go into remission) some of her life back. But due to the controversy in this medicine (which is OBSURD when you go to the websites and read the SCARY EPIDEMIC), she would have to cash pay the visits costing thousands of dollars. Her first initial doctor visit is $1500. Every appointment after that is $500, plus the cost of supplements and diet changes. His name is remaining anonymous due to the insurance companies going after talented doctors like he is. Any extra monies (which is why this donation goal is set at what it is) will be donated to LymeDisease.org.
She is now seeing this doctor which is fantastic (thankfully to generous donors here), however, after finally being able to get the insurance they thought he accepted, we found out it doesn’t cover him or anything at all. All medical/lab procedures are not covered. It’s climbing in the thousands as I write.
Her family and her husbands family are very supportive which we are thankful for.
My hope is to help her reach the financial goals for these tests and procedures, endless antibiotics and anti viral meds, supplements, doctors visits and co-pays. We have been so appreciative, and any monies you can provide will continue to help her. This is an ongoing issue, not one that can be solved once.
PLEASE CHECKOUT:
www.lymedisease.org
www.ILDAS.org
http://emedicine.medscape.com/article/212605-overview
https://www.lymedisease.org/lyme-fog-wall/
These pages and articles will help you to understand what is happening to my daughter. She has Chronic Lyme and Babesia (a life threatening co-infection and could very possibly die). If she doesn't get the right treatment, this will affect her organs. .
She may not LOOK sick. But that's why this disease is the hidden killer.
"On the outside you look normal, on the inside, you're dying."
Hi my name is Vicki I am the mother of my 38 year old daughter (diagnosed with Chronic Lyme and Babesia) Bonnie.
More than 300,000 people a year are diagnosed with Lyme Disease and it's co-infections and each year it rises. That number does not include non reported cases. There is little to no insurance coverage for Chronic Lyme Patients critically needed treatment due to CDC guidelines. Those CDC (13 years old) guidelines haven't been modified enough for patients like myself; chronic patients. Finding a LYME LITERATE Doctor does not come easy and at a HUGE cost. This includes naturopathic doctors as well. Those doctors are few and far between.
Bonnie was once a vibrant, healthy, active woman who had a job, has a son she lives for and did everything with. They would hike all the time, active on the soccer fields, basketball courts, special trips, very involved with family. In 2011, she was with the love of her life and her son. It seemed her life was finally falling into place. However, 2 years later she suddenly lost all function in her left side. At 35 she was walking with a cane. She was misdiagnosed many times. She received a second opinion from another neurologist that suggested she get tested for Lyme Disease. He referred her to the only clinic in CT that would even test or semi treat with her insurance. She tested positive for Lyme and Babesia and went on a heavy dose of Lyme and Babesia antibiotics for 6 months, destroying her gut and leaving her bed bound.
She couldn't do anything with her son and now two step-daughters, and the love of her life.
Since she couldn't tolerate the medications, she switched to Bicillin shots. Those didn't work for her either. She then developed an autoimmune disease from the Lyme and Babesia. She was assigned a visiting nurse to come to her home weekly to infuse her with immunoglobulin, to protect her immune system (IVIG). This would leave her so tired some weeks where she couldn't get up, but would give some good days too.
Eventually, it became so bad, she could no longer work a full or part time job. She was lethargic, couldn't remember much of anything, in pain everyday, massive headaches, sweats, chills, nausea, vision issues, ringing in her ears, all the true and debilitating illnesses Lyme and specifically Babesia, she had.
The practice then shut down due to being sued by insurance doctors treating her.
She was left alone, and not treated, no light at the end of her tunnel. She was depressed, as anyone whose active lifestyle is abruptly uprooted to a life of living in a bed and getting out as much as possible. She was able (after months of no treatment) to continue the IVIG. However the disease had taken over more of her body. She began having seizures. Tonic Clonic Seizures, multiple times a day.
Her husband video-taped them so the "current neurologist" could couple that with her million tests which all came up negative. She said there was nothing wrong. No seizure activity. She was not Lyme Literate.
She had always been drawn to music as she was singing since childhood. That was her only outlet and on "ok" days, she would capitalize on spending time with her family and her music.
The seizures have continued and have currently, like so many times before, stopped all of her outlets. She can't not drive, has a higher risk of brain injury that will impact her older adult life with many more complications, such as Alzheimer's, Respiratory Illness, Loss of Function of her body.
She talked to and heard of an incredible doctor in New England who could treat her and give her (not a cure, but a way to go into remission) some of her life back. But due to the controversy in this medicine (which is OBSURD when you go to the websites and read the SCARY EPIDEMIC), she would have to cash pay the visits costing thousands of dollars. Her first initial doctor visit is $1500. Every appointment after that is $500, plus the cost of supplements and diet changes. His name is remaining anonymous due to the insurance companies going after talented doctors like he is. Any extra monies (which is why this donation goal is set at what it is) will be donated to LymeDisease.org.
She is now seeing this doctor which is fantastic (thankfully to generous donors here), however, after finally being able to get the insurance they thought he accepted, we found out it doesn’t cover him or anything at all. All medical/lab procedures are not covered. It’s climbing in the thousands as I write.
Her family and her husbands family are very supportive which we are thankful for.
My hope is to help her reach the financial goals for these tests and procedures, endless antibiotics and anti viral meds, supplements, doctors visits and co-pays. We have been so appreciative, and any monies you can provide will continue to help her. This is an ongoing issue, not one that can be solved once.
PLEASE CHECKOUT:
www.lymedisease.org
www.ILDAS.org
http://emedicine.medscape.com/article/212605-overview
https://www.lymedisease.org/lyme-fog-wall/
These pages and articles will help you to understand what is happening to my daughter. She has Chronic Lyme and Babesia (a life threatening co-infection and could very possibly die). If she doesn't get the right treatment, this will affect her organs. .
She may not LOOK sick. But that's why this disease is the hidden killer.
"On the outside you look normal, on the inside, you're dying."
Organizer and beneficiary
Bonnie Sperzel
Organizer
Wallingford, CT
Tyler Grimes
Beneficiary
