Second surgery funding needed!✋

$10,900 of $19,000 goal

Raised by 55 people in 35 months
Hi, I'm Lori.  Signing up here has been a hard decision but I have found no alternatives.  I need to have all teeth removed and IMPLANT ASSISTED DENTURES to replace.  The problem?  I'm disabled and Medicare doesn't pay any dental.  Most people can get by with dentures, but with lupus and Sjögren's I must have implant assisted dentures or I will suffer deterioration of the jaw bones, which will then not even support regular dentures.  The implanted "pegs" into the bone keeps this from happening.  Unfortunately, implants can vary from $10,000-$20,000!  I called the place that advertises on TV where it's all high tech, "you can get temporary teeth in a day" and their range was $30,000-$55,000!  No kidding!  

I was accepted as a patient by! SIU-E Dental School in Alton IL for treatment by students at a discount price.  I want to make this clear-I took good care of my teeth.  Just two years ago I had all work done that was needed-I had saved up and the discount price was $1500 through the health department.  Just two years later and I have lost/had removed more teeth and the rest MUST follow.  The health department doesn't do implants of any type.

My major phobia has always been missing teeth.  I used to smile and laugh and not anymore.  I don't like to talk without covering my mouth with my hand.  COULD YOU LIVE COMFORTABLY DAY BY DAY WITH NO TEETH?   Please, donate.  I know $10,000 isn't going to be enough but it already seems such a huge number to me.  Sharing my campaign will help as well.  Thank you.

I have neurocognitive lupus, Sjögren's, chronic erythema nodosum, my thyroid is dead and, not surprisingly I suffer from situational depression.  I am in rather severe pain 24/7.  Rarely does it let up, more often it gets worse.

The erythema nodosum went haywire and has damaged nerves and tissue in my lower legs and feet.  It won't go away, as it does with most people, and has been active over 10 years now.  The lupus has been giving me symptoms for years, then it finally decided to just go for it and checked all the right boxes in the lab results for a positive diagnosis.  Honestly?  Lupus is the disease from hell.  If you look it up you will find that it can, and will, make your life hell with any and every symptom there is.  If you want the most basic understanding of the life of lupus, please read http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/  

(These comments relate to the original goal of this campaign which was gastric bypass surgery.  There's no point having that since unless I get this dental issue resolved it will do the work of the surgery-I won't be able to chew!)  I want out of this recliner but even though I eat pretty healthy my weight is out of control.  This last year my weight has gone up and down and back again for unknown reasons because I eat the same things most of the time.  Fruit, yogurt, granola, whole grain crackers, soup, sometimes I'll have fish or a burrito.  I assume it's lupus that messed with my taste buds as I couldn't eat or even smell meat for over 2 years.  I can eat it sometimes now but it's not something I have on hand.  My weight has been big forever, but I did the numbers from this up and down and it added 129 lbs. to this body.  Yes, I lost 59 of that.  But the Dr.'s scale doesn't lie (it does groan when it sees me coming!) and the already overweight woman who now lives in a recliner most days never knows what the dreaded scale will say.  

So, imagine constant pain in both legs (simulation possible if someone whacks you with a 2"x4" in several places on both legs.  Several times a day).  Add in new symptoms of muscle spasms throughout your body that can be wicked painful.  Then pain through the rest of your body because lupus sucks.  I want to get up and go places.  I'm only 53 and I don't know how long I have to live, but I want to LIVE!  If the surgery works I will probably be back because I doubt Medicare will fully pay for skin removal, but the thought of living with that excess skin is appalling!  (Was referring to original goal of gastric bypass surgery, I am hoping that having no teeth will help with the weight.)

See September 8th Update for the dental background and issues.  Lupus life is a never-ending story of pain, new symptoms that can be ANYTHING, and for some of us severe loneliness. 

Thanks for reading my story.  Your donation would be greatly appreciated and may help lengthen my life.  Take care and I wish you the best.
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Hello everyone. Apologies for the delay in getting back to you with an update. Yes, surgery is delayed. I still have the money donated, no worries there. Unfortunately I seem to have become the punch line of my own joke of a life. If it can go wrong, it has. Lupus and erythema nodosum have bombarded me with the worst symptoms I've ever experienced. I find myself just wanting to say blah blah blah to tell more!
The dental school has stated that there were 2 cancelled appts too many and they specified dates-Dad was dying on the first and I was having extreme vaginal bleeding the second. Since I'm not supposed to have periods and there was absolutely no physical way to drive 3 hours...okay, done with details here. I will be talking with them once I have the treatment done for the bleeding. It's shocking, but there are delays with that too. Everything has become a case of "you can't get there from here"! Daily I am fighting something and quite honestly there are days where I do nothing but cry from pain, sleep to escape, and want to just say "I GIVE UP"!
But guess what. I'm not a quitter! I will let you know what happens. Thank you, again. Take care and be well.

Lori ❤✋
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[[Before I begin, did you know that you can enter your e-mail address here and you'll get all updates? I was kind of surprised to see that only 3 people signed up for this! I also found another section that showed we have NEVER had a donation that was triggered by a shared post. Please, could you share for me? I hate that I have to do this. You must understand that. If I had any other options I would take advantage of them. If I am able to get the money due to me, we will be almost done. But until then, I need your help. I am sorry to bother you, thank you.]]

Hi everyone,
(Sorry, edited & reposted! ✋)
I know that it has been a while but life has not been fun and I didn't want to spread the blues. Yes, I am still needing donations for that second surgery, $8,000. Please, SHARE this post, and thank you. A lot of stuff has happened. My oral surgery is delayed until after the New Year thanks to some female health issues that popped up. I am probably looking at surgery for that as well. I should probably just say definitely looking at surgery for that. Anyway, I think you already know that I lost my father in April. My "stepmother", if you want to call her that, has done some questionable things and through her attorney, that her daughter works for, they found a legal loophole that allows her to steal my inheritance from me. Which she did. It was $7,500, which if you note you will see is almost the entire amount that would have paid for my second surgery, which is what I believe Dad was going for. When you sign to be an executor the definition of EXECUTOR states that it is a "legal and moral obligation to fulfill the wishes of the decedent". Well, she is supposed to be a good Catholic church woman yet apparently morals are maybe not something they consider in that church? I don't know. What I do know is that I'm going to keep trying to get it. I have been so stressed, things have been happening one after another, piling up on me, and I find myself just sitting back unable to do anything. My mind goes round and round and I can't seem to move forward. I did also get my truck from Dad. The papers were actually done by her so it's in my name. Dad gave it to me years ago, we just never got around to doing the papers. Unfortunately, my sister believes that it should be hers and refuses to give it to me! I have given her numerous opportunities, I have asked politely, I have done everything I can and the only option left per the police is to have her arrested for auto theft. Which I am going to do. That may seem cold but if you knew our history you would agree. She has always thought that she could take from me whatever she wanted. And never pay anything back. I'm done with that. I'm done with them. My friends are my family. It's a much happier family. And I am very content with that. Actually it's a huge weight off of my shoulders.
The guy's just left after fixing my recliner for the third time in 3 days-not their fault. We are waiting on a whole new mechanism. The broken part was crushing the remote cord so the electric recliner kept cutting out.
As you can see, life is not full of smiles. I skipped Thanksgiving-hey, the smell of meat cooking makes me nauseous! I did have pumpkin pie, of course. And I have mashed potatoes and rolls if I get in the mood to eat them. This time of year is bad for me, has been for a couple of decades or so. I tend to hibernate, hence saving the world from having to tolerate me. My bright light this year is my friend Gina. She helps me with everything, gets my groceries, takes me to the dentist, whatever. I have no idea where I'd be without her. Thank you, G! She was called my "Fruit Cart Fairy" but without teeth some things aren't possible right now. We'll get there, I hope.
That's all for now. Please SHARE . That's a big dollar amount, scary big!
I wish everyone safe and Happy Holidays. Don't drink and drive. Maybe volunteer as designated driver? Your friends will love you! (Okay, more than usual!) Take care and be well.

Lori A Hill
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A friend of mine with a heart of gold has donated the $1400 needed to set my first surgery! What an amazing gift. Thank you, again, for giving me back some dignity and the gift of chewing,. Hugs!

Lori
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Hi everyone. This one is a bit different because along with it being a request to all, it is a note to my high school class's Facebook page. We were less than 400 in total but they've still got some really good sports teams and a good education system. I know that it's easy to miss a post, so I'm skipping the extra photo and leaving my giant face instead! I just need to give it another chance. Thanks for coming with me!

I'm posting this one last time to my high school's class page because I truly need your help to get the surgery I need. I understand if you can't help financially. SHARING on all of your media sites is a big way to help as well! It's probably unwise to say this because I'm sure some of you will be thinking "Well, she's got an attitude, forget her!" What is this I'm talking about?

The last time I posted this on my school site it was looked at, actually clicked on, by 103 people-nice! I got 1 like. I got 0 shares. How is it a lost dog gets shared over 1,000 times in an HOUR, yet this surgery I need is so unimportant? Without the 2 surgeries I will spend the rest of my life without teeth, unable to even wear dentures. Think about this being you, getting ready to go in the morning so you brush your tongue and gums, and you don't look in the mirror because you cannot look at yourself. I only go to doctor and dental appointments, nowhere else. It's been that way for a few YEARS now.

I need $1,400 to get the first surgery done.

I'll then need $8,000 to get the second surgery I need.

If you read to here, thank you. It's appreciated very much. I understand if you can't help financially. SHARING on all of your media sites is a big way to help as well! Take care and be well. ❣✋
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$10,900 of $19,000 goal

Raised by 55 people in 35 months
Created May 30, 2015
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$100
Anonymous
4 months ago
$1,400
Anonymous
7 months ago
$50
Sam Powdrell
8 months ago

I hope you can have your op soon.

$100
Anonymous
9 months ago
1
1
AL
$200
Ailish Longmore
10 months ago
1
1

I hope you were able to get at least some work done on your teeth. Keep up your good spirits.Best wishes to you.

$400
Anonymous
11 months ago
1
1
$1,500
Anonymous
11 months ago
2
2
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