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Longevity for Lily

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Hello Everyone! As we hate to ask for any help like a lot of people, here we are. We were prepared in our lives for 2 children, small 3 bedroom home, and a normal life. What we weren't prepared for was Lily's diagnosis. She was diagnosed with SMA (spinal muscular atrophy). our needs began to change immediately. Our small house has become even smaller, with all of Lily's medical equipment, wheelchair, etc. Our dinner table is now gone to make room for her equipment. We will post a video within the next few weeks to show the daily struggles we face with Lily being able (or lack thereof) to move about the house in her chair. We are in a desperate need to move to a place with a more open floorplan to keep her mobility and independence as normal as it can be. With both of us working full time we do not qualify for any kind of help to relocate. Also with all of her medical bills its impossible for us to put much back to try and relocate.  Any little bit helps as each day that goes by and Lily get older her chair will eventually get bigger and the issues will be even greater. Thank You for reading and any support !

Organizer

Randy Tracy Parlier
Organizer
Galesburg, IL

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