Julians Bone Marrow Transplant

$3,350 of $70,000 goal

Raised by 48 people in 21 months
Our son Julian has been diagnosed at the age of 3 yo with a rare disease called Dyskeratosis Congenita. This illness requires a bone marrow transplant. We have been searching for a bone marrow donor since he was 3 years old. Our son will be turning 7 years old in September 2018 and we still have no donor. Julians doctor in Boston suggested another treatment that's not covered by insurance. This treatment is very expensive and will require traveling to Boston for check-ups. During the times we don't need to travel to Boston we will need follow-up appointments were we reside, Florida. The funds collected will be used towards the treatment, lodging, flight tickets and expenses owed. 

You can visit julian and also register to be a potential bone marrow donor by pressing the sign up tab on his page. You might be our sons hope.

https://www.youcouldbethecure.org/story-julian/

Julians Facebook Journey: 

https://www.facebook.com/SaveJulian/

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Please become apart of the bone marrow registry. It doesn't take much to be able to save a life.You can have your swab kit sent to you. We're reaching out now to everyone to help us before its to late. Help us save our son.

If you are 18-44 years old please join as a potential donor at:

https://www.youcouldbethecure.org/story-julian/

You have the Power to Heal in you. Please use it!

Bone Marrow Drive
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Julian hates doing finger pricks since the age of 3 and has asked for butterfly instead.
Julians tongue
Tongue sometimes gets blood filled
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Hello Everyone,

Just a little update. Julian's blood counts were doing so well that check-ups were only once a month. While heading to his regular monthly follow-up he threw just knowing he was going. Unfortunately, as of yesterday Julian's platelets have decreased and now were back to weekly check-ups. This is not good news because now were back to weekly appointments. Keeping our fingers cross that he wont be needing a transfusion or steroids.
Julian enjoys the Ninja Turtles
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Read a Previous Update
Rick Erb
9 months ago
1
1

Registered myself last year!! Easy as a cheek swab. Everyone should consider marrow registry. Love and prayers for you Julian!!

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Ana
20 days ago

Hola Sra Mayra, ha probado checar en la embajada de Nicaragua en Mexico? Quiza ahi le permitan publicar o contactar posibles asociaciones para encontrar donante para Julian, quiza alguien tiene un hijo mayor de 18 nicaraguense-mexicano y vea su caso y quiera hacer el test, creo que Be the match tambien tiene presencia en Mexico. Muchas oraciones para Julian.

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$3,350 of $70,000 goal

Raised by 48 people in 21 months
Created February 8, 2017
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KW
$25
kathy wedl
4 days ago

The photo of Julian and his sister struck my heart.

CW
$400
Christina Watson
23 days ago

Remember Galatians 6:9 ok? ❌⭕️

$50
Anonymous
24 days ago
Rick Erb
9 months ago
1
1

Registered myself last year!! Easy as a cheek swab. Everyone should consider marrow registry. Love and prayers for you Julian!!

+ Read More
Ana
20 days ago

Hola Sra Mayra, ha probado checar en la embajada de Nicaragua en Mexico? Quiza ahi le permitan publicar o contactar posibles asociaciones para encontrar donante para Julian, quiza alguien tiene un hijo mayor de 18 nicaraguense-mexicano y vea su caso y quiera hacer el test, creo que Be the match tambien tiene presencia en Mexico. Muchas oraciones para Julian.

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