Johnny's medical fundraiser
Donation protected
Since birth Johnny has suffered with seizures where he loses the ability to move his body and communicate, his mouth drops open and he slumps over. He is still fully conscious and can look at you while he is suffering one. They usually last between 10 to 120 seconds and can occur from 40 to 100 times a day. Depsite the NHS trying their best they have so far been unable to find out what is wrong with our Johnny.
It impacts on his daily life a great deal, he has to have 1 to 1 support at nursery, he has communication delay and gets frustrated when he can't do the simple tasks we all take for granted.
I have been in touch with a Doctor in America who has said there is a lab called PerkinElmers in Orlando who can do a test called WHOLE EXOME SEQUENCING. He believes this test is our best shot at getting Johnny a diagnoses.
The cost of the test is $1250.00 (about £1000) so we are trying to fundraise in the hope of getting some of the money towards the fee. We would be so grateful for any help you can give us from donations to fund raising ideas.
Thank you on behalf of Johnny and all of us.
It impacts on his daily life a great deal, he has to have 1 to 1 support at nursery, he has communication delay and gets frustrated when he can't do the simple tasks we all take for granted.
I have been in touch with a Doctor in America who has said there is a lab called PerkinElmers in Orlando who can do a test called WHOLE EXOME SEQUENCING. He believes this test is our best shot at getting Johnny a diagnoses.
The cost of the test is $1250.00 (about £1000) so we are trying to fundraise in the hope of getting some of the money towards the fee. We would be so grateful for any help you can give us from donations to fund raising ideas.
Thank you on behalf of Johnny and all of us.
Organizer
Laura Suffolk
Organizer
England
