Jocelyn Bingaman's Voice of Rett

My Coldwell Banker Advantage family asked me to share my story of 'Home'.
Hi, my name is Jocelyn Bingaman and I am a sassy 12-year-old girl who loves watching movies, listening to music and attending school. I live in St. Joseph, Michigan, with my mom (Cathy), dad (Mike - "Bing") and dog (Bear).
I have a rare terminal illness called Rett Syndrome.

Rett Syndrome is a neuro developmental disorder affecting girls exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability and many other difficulties.I am unable to talk (although I still rule the roost), walk or care for myself. I used to be able to eat by mouth but this stupid disease took that from me and now I am fed through a feeding tube in my tummy. My amazing parents lovingly care for me 24/7, along with family, friends and caregivers.
Now that I am almost a teenager or diva (as I like to be called), transporting me in a regular car is very difficult as my parents have to lift my cute 100 lb. self and very heavy wheelchair, in and out of the car.  Friends see the strain this has put on all of us physically and want to help us acquire the necessary van with wheelchair lift to get me around while educating others on Rett Syndrome.While we have given Jocelyn a voice, we pray you will read more on Rett Syndrome and help us buy the van with wheel chair lift this family is so in need of.  We had to get their permission to post this because the Bingaman’s were reluctant. This has been a very personal journey they have all taken with no complaints--what a great example of love.The Coldwell Banker Advantage family asked the Bingaman’s to be able to share with our community their personal journey.  We wish to educate and bring  awareness of Rett Syndrome while at the same time raising funds for our very special child.

Please help us raise $50,000. towards a van with a wheel chair lift.

Here’s an important life lesson: no matter how tough you think your life is there’s always someone who has to face challenges that are even tougher than yours.

http://rettcenter.se/en/rettsyndrome/treatment/physiotherapy.htm

http://www.webmd.com/brain/autism/rett-syndrome#1