Helping Sofias Heart
Sofia also had her sleep study done and results show she has some blockage at night but nothing to concerning. This is why her o2 drops but they don't feel like she needs to be on a cpap machine at night.
Cardiology was saying that we may have to reevaluate what we will be doing during her cath. Everytime sofi gets upset, crys, or even gets tired she turns blue, even with her heart being fully "repaired". Her pressures in her heart are increasing and the function of her right vertical is decreasing. We are not sure whether we need to remove the patch that we use to close her VSD, close her VSD completely, or leave things as they are. Her 2 cardiologists from both Duke and Boston will talk about it and try to make a decision before we go.
We ask that everyone just continue to keep Sofi in your thoughts that this will be a simple cath procedure and we don't have to stay longer than a few days.
We did an echo and found that the pressure in the right side of her heart are increasing and the function of the right side of her heart is decreasing. All signs point to her pulmonary arteries narrowing.
What sucks about this is we can't have her cath done until she gets her teeth done because if they were to place shunts or any other device while having bad teeth there is an even higher chance of her developing an infection. We are looking at having her teeth done at UNC because Duke no longer has a dentistry service. After her teeth are done we have to wait 6 weeks before we can do her cath. Hopefully we get this done soon so we can get to Boston and have her cath done before things become worse. Over all though she is doing great. Now just to keep her healthy during the h*ll, I mean cold season.