Gena's medical expenses

$12,184 of $25,000 goal

Raised by 84 people in 18 months
Gena Elam
on behalf of Gena Elam
 HOUSTON, TX

My name is Ivan Greager and I'm a friend and co-worker of Gena Elam. I started this GoFundMe to assist Gena in covering the mounting medical and personal expenses arising from yet another extended stay in hospital. But before we get to the donation request, let me give you some backstory on this amazing and inspirational little lady…

Gena was born 38 years ago with a series of challenging medical conditions. Not only was she born with a single ventricle, an extremely rare congenital heart defect (CHD) affecting about 5 out of every 100,000 live births, but she also has situs inversus, another rare condition in which all organs are mirrored or reversed from their normal positions. The combination of these congenital conditions has required Gena to face up to more surgical interventions than anybody should ever reasonably have to contemplate in a lifetime. The current count is around 25 procedures, including 6 heart surgeries one of which resulted in a life threatening Staph infection! These surgeries have turned her into the proverbial bionic woman with a dual chambered pace-maker, a mechanical AV valve and a stent.

The scary part is that she is not a transplant candidate and her remaining heart tissue is so scarred from all the surgeries there isn’t a lot of healthy tissue left.  She lives every day knowing that should her heart have any further serious complications, there is no way to fix it.  The beautiful part of this ugly story is that no one would look at Gena and think, “that girl has half of a heart”. She is one of the oldest living patients with this combination of rare congenital heart defects, and she has gotten to that point by not allowing this genetic misfortune to define her.

Instead she has been determined to show how much a CHD woman can achieve. Aside from her regular day job, Gena qualified as both a nutritionist and fitness instructor in order to demonstrate the benefits of a healthy, active lifestyle to other CHD patients. She spends time providing ministry and counselling to pediatric CHD patients. She writes a blog to share her journey and provide guidance to a younger generation of heart patients, in the hope that they will seek inspiration, comfort and direction from her own experiences. When the doctors told her that she could not do any strenuous aerobic exercise, she trained and successfully completed a half marathon. When the doctors said she couldn’t be an athlete, she summarily started weight training and transformed herself into an amateur bodybuilder. No obstacle is too large for this lady to overcome! 

“Be strong and courageous”, says the Lord. Gena is both of these things and so much more. Her determination, bravery, optimism and sheer guts are an inspiration to everyone that has had the pleasure of meeting her.

As if Gena hasn’t gone through enough already, a recent turn of events has knocked her squarely on the chin.  She experienced an alarmingly rapid reduction in her oxygen saturation levels – a few months ago she was an active amateur weight lifter and today she struggles to slowly walk 300ft without being completely of breath. She now lives 24 hours a day on oxygen. She passes out uncontrollably several times a day. Gena’s unique anatomy has attracted a lot of academic attention over the years however the specialist medical teams at the Memorial Hermann Heart and Vascular Center and the Mayo Clinic are currently at a loss with regards to the source of the current health problems. She was admitted into Memorial Hermann Hospital on November 23rd 2016 in order to allow closer monitoring of her oxygen levels as well as to control her pain. Without a clear clinical and/or surgical plan it is not clear how long Gena will need to stay in hospital. Although she is due to start receiving disability insurance the end of November 2016, this is only 60% of her regular salary and does not come close to covering the rapidly escalating medical bills.

She is strong-willed, fiercely independent and isn't used to asking for help. She certainly does not want people to feel this is about making money from her unique medical condition. However we would like to give her the financial reserves to cover immediate personal and medical expenses, so that she can focus 100% of her energy into getting well again and hopefully return to support her many CHD-related charitable causes. Any money raised beyond Gena’s actual personal and medical expenses will be donated to the American Heart Association. If, by the grace of God, we get to that point we will of course report back on how much money was donated.

Thanks so much for reading about Gena’s story and expressing some interest in helping.  I kindly ask anyone that has been touched by her beaming smile, zest for life and downright sassiness to help donate what they can – any donation will be immensely appreciated. If you can't I understand and would just ask you to share this with as many people as you can. We also ask for your prayers as Gena continues to fight the next battle in what has been a very, very long war.

With love and thanks,
The Greager family

PS:      Gena is a talented writer and her blog is definitely worth a read. If you are interested, please visit www.genaelam.com .

16089125_1480011696.9951_funddescription

+ Read More
This update is long overdue, my sincere apologies for that. The last few weeks have been a whirlwind. The last time you heard from me I was leaving for the frozen tundra call Rochester, MN. It got down to -23 degrees there. That's friggin cold for this Texas girl!

We arrived to spend a few days and have a few tests done. My precious Dr. Eidem saw me and decided to admit me to St. Mary's hospital and give me the holiday special. I had every test run on my heart, lungs and head from here to kingdom come, or at least that is what it felt like.

In the end, we found a few things. I have a hole in my lung and one of my pacemaker leads is detached. Overall, I am not dying. This is fantastic news!!! On the other hand, science hasn't caught up to Gena yet. We don't know everything. They don't know why my O2 stats are dropping as low as they are. They can't see everything they need to see because of the glorious way the good Lord designed my body. There is no explanation for the pain I am having. The consensus was doing nothing is much safer for now.

I have weaned off the pain meds and been doing therapy to rebuild my cardiovascular system so that I only need the O2 during the night. I am even lifting in the gym again. Everyday gets easier. Learning to live a new normal has been difficult, but it isn't my first rodeo. There are still a few days that aren’t great, but they are manageable now.

I am anxious to get back to work. I am going stir crazy here at home. A person can only read and watch so much. I know, I can hear how bad you feel for me on that. ;) Honestly though, having something to do everyday gives you a sense of purpose.

I am overwhelming grateful to each and every one of you for your generous donation to my medical expenses. My trip, clinic visit and hospital stay has reached almost $50k. If I had spare organs, I would consider selling them... LOL! I'm just kidding. Your donations are making a dent that I could have never made on my own. Thank you so, so much from the bottom of my mended heart.

Love and hugs,
Gena
+ Read More
Hi all,

Many, many thanks for the generous donations over the past three weeks. The outpouring of emotional and financial support has been overwhelming and I know Gena is immensely grateful for everyone's prayers, kindness and generosity.

Perhaps a quick update on Gena's medical condition...Gena and her Dad travelled up to the Mayo Clinic in Rochester, MN this week. She went through another battery of cardiac and pulmonary tests on Friday December16 - based on these tests, the cardiology team has decided to admit her into hospital (yet again) for closer monitoring and more intensive testing.

Gena is in good spirits all things considered and she is currently receiving some of the best medical care in the world. It is comforting to hear that the cardiologist will not release her until he gets to the bottom of her current set of problems.

It does of course mean that Gena will potentially spend yet another holiday season in a cardiology ward. We all know that Gena is an incredibly strong woman with a huge zest for life and an amazing will to rise up from the current setbacks, but please keep her in your thoughts and prayers over this Christmas season.

Thanks again and I wish you all a very merry Christmas,
Ivan
+ Read More
Well, I am going to the Mayo Clinic on Thursday. We will have appointments all day Friday and stay through Tuesday. It is going to be between 12 and -13 degrees while we are there. Seems warm?! Oh my.
I am so grateful to finally be going up. It is hard for me to pray these days. However, I know that my spirit stands firm when I cannot. I am so grateful to all of you who are praying for me. Thank you for your donations that are getting me there. I ask that you help me pray for an outcome. A diagnosis that will lead me away from the oxygen machines and back to my gym equipment. I will send an update when I can.
Gena
BTW - I love these Snapchat filters! Making me look well and stuff!
+ Read More
When boredom strikes and you need to post an update, Snapchat seems fun! Today I am so tired, but I just can't sleep (I think that is a Sarah McLaughlin line?). I have this cough that is driving me bat$&@! crazy. It is really helping with my breathing and pain, too. (Dripping Sarcasm abound) You know the silver lining in all of this is that hopefully through all these tests, doctors around the globe helping and me hopping around the country, a diagnosis will be found. That will not only be helpful for my wellbeing, but it will help the younger CHD survivors behind me. I want nothing more than this life to be a lesson, and a tool for doctors to help all the little ones, the teenagers, the twenty and the thirty somethings who have half of a heart. If it saves them from having one less test, poke, procedure or surgery then all of this is 100% worth it. I may feel awful today, but as my sweet Pat Pat said to me not so long ago. "Your a modern day marvel and a freaking badass... Even when you don't feel like one, you have still beaten the odds and broken all the rules. You love being a rule breaker, Gena." He is so right! Thank you Patrick. I love you.

Thank you for your love, and support and donations. I feel truly blessed by each of you. I should be off to Mayo soon. No solid date yet, but hopefully before Christmas. Daddy is working on it with the docs. I will keep you all posted. Thank you all from my whole half heart!!
Love ❤️ Gena
Pat Pat, June Bug & Me, being silly!
Snapchat Rocks
+ Read More
Read a Previous Update
Taiya Semper
18 months ago

Gena is truly an anazing woman! I had the pleasure of meeting her a few years ago as she was one of the leaders at a retreat I attended. Her smile lights up any room, and her gentle spirit makes everyone feel loved.

+ Read More

$12,184 of $25,000 goal

Raised by 84 people in 18 months
Created November 24, 2016
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$30
Anonymous
15 months ago
$50
Anonymous
17 months ago
CS
$50
Clois Smith
17 months ago

Dearest Gena, you are in my love, thoughts, prayers, and friendship. "May the God of hope fill you with all joy and peace as you trust in Him so that you may overflow with hope by the power of the Holy Spirit." (Romans 15:13) Clois

KS
$100
Kendra Schroeder
17 months ago

I love you so much!!! Your such a beautiful friend,soul, the most influential, loving, kind, sweetest, friend I have ever had. Your laughter is contagious and smile is so heartwarming there's not a day that goes by that I do not think about you love you miss you and pray for you! Just know I'm always here for you. Remember laughter is contagious and smile is so heartwarming there's not a day that goes by that I do not think about you love you miss you and pray for you! Just know I'm always here for you. Remember your my GE who brings good things to life! I Love you ALWAYS! Kendy, Kylee, & Aandon

EB
$100
Eric Bourque
17 months ago

Stay strong Gina!

Taiya Semper
18 months ago

Gena is truly an anazing woman! I had the pleasure of meeting her a few years ago as she was one of the leaders at a retreat I attended. Her smile lights up any room, and her gentle spirit makes everyone feel loved.

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.